Search found 36 matches

by msjen
Fri Jul 29, 2011 4:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: one year ago today: very brief note :-)
Replies: 25
Views: 3791

It's definitely been a journey. Your attitude is inspiring!
by msjen
Sun Jul 17, 2011 8:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Tinnitus part two
Replies: 7
Views: 1816

My tinnitus comes and goes. I usually notice it when I'm getting ready for bed/rest. It also comes on either the left or right side - not consistent there.
by msjen
Fri Jul 15, 2011 5:42 pm
Forum: General Discussion
Topic: What was you trigger?
Replies: 2
Views: 1169

For me it was definitely stress that pushed me over the edge. I'd felt that something wasn't right with me for a while, but I didn't have any severe symptoms at the time. My mom had a stroke and while I wasn't living at home at the time, it still caused me lots of stress...
by msjen
Fri Jul 15, 2011 5:37 pm
Forum: General Discussion
Topic: BPPV?
Replies: 0
Views: 1119

BPPV?

I know that I've seen several mentions of vertigo in my MS searches, but I'm wondering if anyone has been diagnosed with BPPV? I feel much better after I do the Epley procedure but I am severly vertigo prone now. I can't lift my head to look up, I use 3 pillows to sleep and always sleep on the same ...
by msjen
Tue Jul 05, 2011 7:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cinnamon, a CCSVI super-spice?
Replies: 22
Views: 4679

I haven't taken Cinnamon long enough to know if it truly works, but it does help me feel better (so far). I have had the procedure (actually a few times) and still feel that there is merit and I'll hope that it is figured out why my veins don't want to expand, but I guess I'll keep hoping - in the m...
by msjen
Tue Mar 08, 2011 6:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vein Bypass
Replies: 25
Views: 4893

dania, Thanks for your questions. I think in this forum we hope to find some answers. I have a LJV that is blocked and my speech has started slurring as a result, I may not have other choices how to fix this. I find out if the RJV is still open in a few weeks, but with my sudden decline I can't be v...
by msjen
Mon Feb 28, 2011 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI diet and reccomendations please!
Replies: 1
Views: 1416

I would recommend when looking at diets that you make sure to decide what you can and can't live without. Look at the Best Bet diet and the Swank Diet online - I think those are two of the most popular. I personally cut out all foods that could cause allergies then re-introduced to see what made me ...
by msjen
Thu Feb 10, 2011 6:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1632634

I am having some trouble understanding some of this...
Is it possible to only have reflux? It seems as though the valves are responsible for this and if not properly addressed could cause an unsuccessful procedure? Any thoughts?
by msjen
Tue Jan 25, 2011 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: .
Replies: 58
Views: 6327

I want my IR to treat my veins and my Neurologist to treat my nerves. That being said, my Neurologist hasn't done much besides offer me drugs; but he doesn't know how they work. I don't doubt that they work for some people, but I'm not going to put something in my body when they can't tell me why. T...
by msjen
Fri Jan 21, 2011 7:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I want to be liberated!
Replies: 2
Views: 1633

I have bad veins, so have issues again, but my experience at Tokuda Hospital in Sophia, Bulgaria was good. I was feeling terrible at the time so didn't ask any questions or talk to the doctors like I should have; it was tough for me knowing that English was their second language. I am in the US, so ...
by msjen
Fri Jan 21, 2011 7:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Permanent whistling and painful throbbing in ears
Replies: 14
Views: 3658

I've had issues again since my procedure for CCSVI, but for a long while after I didn't have the throbbing/pounding in my ears. I get vertigo (again, that was about 6 months after that it came back), so I sleep inclined rather than flat and that seems to help. I haven't had issues with whistling. Ho...
by msjen
Thu Dec 23, 2010 3:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34827

I heard from Holly today - Hooray! I know she's super swamped so am hoping it gets better in the new year for every one. Malden & Lyon - You both have good points sometimes, so would you mellow out on the arguing and bringing up stupid stuff? It may be good for people to know that the CCSVI procedur...
by msjen
Tue Dec 21, 2010 2:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani interview
Replies: 45
Views: 7508

I enjoyed the interview and think I like Dr. Sclafani even more now!
by msjen
Fri Dec 17, 2010 7:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI-Tracking.Com
Replies: 31
Views: 8290

I hope that people with negative results will post and continue posting so others can see what happens. I worry about these people and hear initial comments, but don't hear in the long run if they continue to have issues, maintain, or start to get better from those issues that were unexpected. I hop...
by msjen
Fri Dec 17, 2010 7:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: pacific interventionalists poll
Replies: 25
Views: 6107

I saw that too - don't they destroy the valves? I thought valves could grow back and possibly assist in re-stenosis? I may be confused, it wouldn't surprise me! Now I'm curious and may have to look into that...