Search found 28 matches

by Ned
Wed Jul 13, 2011 5:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat Intolerance?
Replies: 46
Views: 7360

Heat intolerance

I used to be extremely heat intolerant, have that gross fatigue that sends you to bed for a couple of hours to recover from having a shower, etc. I was in a bad way, but then I discovered Low Dose Naltrexone (LDN). The heat intolerance, fatigue, bladder/bowel probs, stiffness & more Vanished. I then...
by Ned
Sun Jul 03, 2011 8:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Autoimmune The Real Hoax: Dr. Hubbard
Replies: 14
Views: 2640

I was diagnosed with MS, then 8 years later, Hashimoto's Disease, then 2 years after that, Coeliac Disease, so I have three auto-immune conditions. For many years I was given no particular treatment, except prednisone, & then, 8 years of inter-betaferon, 10 of methotrexate. These did nothing for me ...
by Ned
Sun Jul 03, 2011 8:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 9540

Eye pain cont.

Forgot to mention that I had Bell's Palsy on the right hand side of my face on about year 7. My face dropped right down, but luckily this was a short episode for only a few days. The right eye, eyelid & brow is a slightly different shape now.

Ned
by Ned
Sun Jul 03, 2011 7:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 9540

Eye pain

Hi Dr Diana - My name - ha ha! Yes, Ned was my nickname as a schoolgirl - the first letter of my christian name followed by the first two letters of my maiden name. It seems stuck with me forever! For many years I had a severe intermittent left eye pain. It was like a vertical line from the top of m...
by Ned
Fri Jul 01, 2011 9:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 9540

Eye symptoms

Dear Dr Diana Early on in my MS history, about year 6, my eyes became "fixed" straight ahead. I couldn't move my eyes to the left, right, up or down. If I wanted to look to the left or right, I had to turn not only my head, but my body to look in that direction. This was very inconvenient, & made dr...
by Ned
Mon Jun 06, 2011 5:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: If IBT does not work does that mean CCSVI treatment won't?
Replies: 21
Views: 5313

IBT numb hands & forearms

I've had my third angioplasty for CCSVI 60% stenosed L & R jugular & azygous. I have always had very numb hands and forearms when lying in bed, and angio did nothing to relieve this, so in the last few months I've tried sleeping with two pillows. The effect is Instant! Within 30seconds, the numbness...
by Ned
Fri Mar 11, 2011 4:29 pm
Forum: Stem Cells
Topic: New strategies to restore function in myelin-based disorders
Replies: 1
Views: 1650

Epiblast stem cells

The article, isolation of epiblast stem cells from preimplantation of mouse embryos, by Dr Tesar, was published in Cell in 2007.
It is said this research has potential to repair myelin damage in neurodegenerative diseases.
Are you aware of any further developments since 2007?
by Ned
Thu Nov 25, 2010 5:51 pm
Forum: Stem Cells
Topic: X-Cell Center
Replies: 5
Views: 3079

X-Cell Center

Has anyone had stem cell treatment at this centre?

Does anyone know how this treatment works when you don't have to have chemotherapy?

Nancy
by Ned
Wed Nov 03, 2010 2:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are your hands and/or feet cold?
Replies: 29
Views: 8792

Cold hands and feet

Yep - the right side of my body is cooler than the left. It is also a different colour.
My right hand, leg & foot are troublesome

I've had angioplasty twice, the second time was only 9 days ago, but so far have had No improvement in my right side probs.
by Ned
Wed Nov 03, 2010 1:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thyroid Poll
Replies: 10
Views: 3681

Hashimoto's & LDN

I was diagnosed with Hashimoto's 23 years ago. Have been taking LDN - fantastic stuff - for one year. So far my blood tests for thyroid haven't changed at all, but was hoping that the LDN would alter the condition to enable me to give a tablet the flick. Would be interested to know how long it takes...
by Ned
Sun Oct 10, 2010 4:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Would you do it again?
Replies: 35
Views: 7783

Liberation treatment again?

YES YES YESYESYES YES YES YES YES YES YES YES YES YES YES YES YES YES YES YESYES YES YES YES YES YES YES YES YES YES YES YES YES YESYESYES YESYES YES Am having 2nd angioplasty at the end of October 2010
by Ned
Sun Oct 10, 2010 3:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Franks CCSVI log - @Prof. Vogl Frankfurt
Replies: 51
Views: 12774

Leg muscle twitching

Maybe this is "spasms" in the leg
by Ned
Mon Sep 27, 2010 4:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1817198

Iliopsoas muscles

Hi Dr Sclafani Thankyou for your reply & here are the answers to your questions : My disease burden prior to angioplasty was one of gross fatigue, and physical slowness. I had been experiencing severe stiffness, and couldn't get into bed, or roll over. This was for about 2 months. Due to that, I chu...
by Ned
Mon Sep 27, 2010 2:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1817198

Who is GiCi

I posted that GiCi is Dr Gianfranco Campalari -

He is, in fact Dr Gianfranco Campalani - (with an N, not an R)

Apologies!!
by Ned
Sun Sep 26, 2010 6:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1817198

GiCi

I think "GiCi" is Dr Gianfranco Campalari, who is a specialist Cardiologist. He originated from Ferrara in Italy. the same town as Prof Zamboni. He met Dr Zamboni at a dinner party, and subsequently had the liberation treatment, which was successful. He re-stenosed, and another doctor treated him a ...

Go to advanced search