Search found 25 matches

by spiff1970
Sun Jan 23, 2011 8:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4374

Let me ask you another question then... For those who had thrombosis, were you prescribed with anticoagulants after the first intervention (when the stent was placed)? Or does thrombosis occur even when you're on anticoagulants?

Spiff
by spiff1970
Sat Jan 22, 2011 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588319

Re: destroying valves

Not sure if we'll hear from you tonight or not! Did anything from the other doctors' presentations change the way you think on any aspect of CCSVI? i think mike dake made me think that some of the J2 and J3 narrowings might actually be stenoses more frequently that dr z and i think they are. But st...
by spiff1970
Fri Jan 14, 2011 2:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4374

Unfortunately my answer would be a YES to all three. My latest US (done 7 mos. after the procedure) showed a blood clot and therefore a 50% stenosis of the left jugular. (Clot wasn't there at 3 mo. check-up) And you can assume my symptoms are much worse. Did you do anticoagulants after the procedur...
by spiff1970
Tue Jan 11, 2011 2:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4374

Thanks for the replies, so far. I've had one stent placed in my LIJ and did angio in my RIJ. It did not work for me as I suspect the RIJ has restenosed. My doc thinks that I should have one stent in my RIJ as well but I am cautious about it cause there has been stories of thrombosis and even resten...
by spiff1970
Tue Jan 11, 2011 8:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4374

Thanks for the replies, so far. I've had one stent placed in my LIJ and did angio in my RIJ. It did not work for me as I suspect the RIJ has restenosed. My doc thinks that I should have one stent in my RIJ as well but I am cautious about it cause there has been stories of thrombosis and even resteno...
by spiff1970
Sun Jan 09, 2011 2:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4374

Nasti wrote:1. yes
2. no
3. no
thanks for that. Do you have progressive MS?

spiff
by spiff1970
Sun Jan 09, 2011 5:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4374

For those with stents in jugulars...

Hiya, With all that's been reported about the risks and benefits of stents, I wonder what actually happened for those who have them placed. Let me ask you then: 1. Did you experience a relapse/progression with stents? 2. Did your jugulars restenosed even with stents? 3. Did you have a blood clot (i....
by spiff1970
Sat Nov 06, 2010 1:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thrombosis in stented vein after CCSVI procedure
Replies: 33
Views: 8367

Hi Mila, Please, give us an update on your situation regarding stents. Have you felt improvements following your second procedure? Has your MS progressed? I have done the procedure in July but will go back soon for a check-up as I've expereienced a small relapse in September. The doctor suspects the...
by spiff1970
Wed Nov 03, 2010 7:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588319

Hi,

Does anyone have any information about the rate of thrombosis following the placement of stents in the jugulars? I heard that there has been many cases but I've only seen a couple of them reported here. More evidence, please.

best,

Spiff
by spiff1970
Wed Nov 03, 2010 7:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Known Risks/Complications of Angioplasty and Venous Stenting
Replies: 129
Views: 99569

Hi, Does anyone have any information about the rate of thrombosis following the placement of stents in the jugulars? I heard that there has been many cases but I've only seen a couple of them reported here. I wonder risky it is to place stents as I have one in the LIJ and my doc thinks I need anothe...
by spiff1970
Thu Oct 28, 2010 8:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588319

Dear Dr. Sclafani, Here is my situation... I've done the procedure in July the 8th to correct stenosis in the LIJ and RIJ and three in the azygos. Dr. Martins Pisco put a stent in my left jugular and did angio in the right and in the azygos. I felt some small improvements right afterwards but they ...
by spiff1970
Wed Oct 27, 2010 6:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588319

Dear Dr. Sclafani, Here is my situation... I've done the procedure in July the 8th to correct stenosis in the LIJ and RIJ and three in the azygos. Dr. Martins Pisco put a stent in my left jugular and did angio in the right and in the azygos. I felt some small improvements right afterwards but they r...
by spiff1970
Mon Sep 27, 2010 11:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588319

Dear Dr. Sclafani, If we assume that the CCSVI theory is right then how can the following have an impact on bloodflow/MS lesions forming issues: a) Posture and position: is it better/worse to be in the supine or lying down position? Can having a bad posture have an impact? b) Physical exercise: doe...
by spiff1970
Sun Sep 26, 2010 4:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1588319

Dear Dr. Sclafani, If we assume that the CCSVI theory is right then how can the following have an impact on bloodflow/MS lesions forming issues: a) Posture and position: is it better/worse to be in the supine or lying down position? Can having a bad posture have an impact? b) Physical exercise: does...
by spiff1970
Mon Aug 09, 2010 4:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 190901

Hi all, I have been using the inclined bed therapy for a couple of weeks now. I am feeling some positive results: I sleep better, have less spasms, no sleep apnea and basically any other weird, MS related symptoms, which made sleep difficult has regressed. The only problem is that during the day my ...