Search found 35 matches
- Sun Feb 22, 2015 5:17 pm
- Forum: General Discussion
- Topic: 5 days of IV Steroids: Still no improvement
- Replies: 12
- Views: 2641
Re: 5 days of IV Steroids: Still no improvement
Hi, Can you provide us with a bit more colour about his diagnosis, what the people treating him say, what tests he has had and what ones are unusual? As he is young can you detail what his history has been? Regards Hi, Scott. My son was 14 when he had Ataxia and balance problems. I am a Firefighter...
- Sat Feb 21, 2015 11:07 am
- Forum: General Discussion
- Topic: 5 days of IV Steroids: Still no improvement
- Replies: 12
- Views: 2641
Re: 5 days of IV Steroids: Still no improvement
Hi.......My son has been taking B-12 shots for approximately 2 months prior also. Haven't had a b-12 test.
He has been taking protandim, d-3 5,000 iu a day and the b-12 shot 5mg once a week.
He has been taking protandim, d-3 5,000 iu a day and the b-12 shot 5mg once a week.
- Sat Feb 21, 2015 8:37 am
- Forum: General Discussion
- Topic: 5 days of IV Steroids: Still no improvement
- Replies: 12
- Views: 2641
5 days of IV Steroids: Still no improvement
Hi, I have a 18 almost 19 year old son diagnosed with MS at the age of 14. He has not had any issues until a week ago Sunday. Went to the Hospital on Sunday and started the IV Solumedrol. He presented with numbness of the left arm and leg and balance issues "Ataxia". He received 1,000mcg f...
- Sun Dec 07, 2014 5:54 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: New study: 83% of 552 pwMS have CCSVI
- Replies: 12
- Views: 2922
Re: New study: 83% of 552 pwMS have CCSVI
I agree, lets not be closed minded anymore. The majority of Humans seem tolerant with all the change going on in the world except the Neurological Community. Hopefully that is changing as well "I have HOPE". Maybe the Neurological closed mindless will change when the Old Guard goes out and...
- Mon Apr 08, 2013 7:27 am
- Forum: Under 25 with MS
- Topic: 17 with ms
- Replies: 8
- Views: 9799
Re: 17 with ms
Hi, Sorry about your diagnosis. I have a 17 year old son that has ms. He had his first episode at the age of 14, Nystagmus and balance issues. Was in the hospital for 6 days on solumedrol. The Nuero told me that it might be ADEM (ACUTE DISSEMINATED ENCEPHALOMEYELITIS) or MS. I went home and hit the ...
- Sat Jan 26, 2013 12:22 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2369061
Re: DrSclafani answers some questions
Hi Dr. S. I am the father of a 16 almost 17 year old son who presented with ataxia and nystagmus at age 14 almost 15. Diagnosed initially with ADEM, had MRI at 6 months looked good leisions starting to go away "leisions were prdominately Periventricular". Second MRI showed a new leision so...
- Sun Oct 28, 2012 6:20 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2369061
Re: DrSclafani answers some questions
Still here, read it every day. Learning every day also.
- Sat Mar 24, 2012 11:41 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4580
Re: Third CCSVI treatment tomorrow
Great news. Glad your results were positive, and I also hope it lasts.
- Sat Mar 10, 2012 3:42 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and children..
- Replies: 11
- Views: 2829
Re: CCSVI and children..
The Radiology facility in Ft. Myers didn't send the cd of the MRI just the written report (very upset) to Tampa. So don't know like you Rhonda if they are old or new. He was positive about CCSVI but wouldn't elobarate. We talked about the DMD's and I told him we would like to try a strict diet and s...
- Sat Mar 10, 2012 3:26 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4580
Re: Third CCSVI treatment tomorrow
Wish you a speedy recovery. It would be interesting to know if the leision is new or not, and if it responds to the procedure. Best of luck. Jimmy.
- Thu Mar 08, 2012 1:38 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Third CCSVI treatment tomorrow
- Replies: 29
- Views: 4580
Re: Third CCSVI treatment tomorrow
Best of Luck .
- Tue Mar 06, 2012 9:00 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and children..
- Replies: 11
- Views: 2829
Re: CCSVI and children..
Just got my sons MRI report. He had 2 previous MRI's that were stable in the last year and a half. The current MRI shows 2 new leisions Predominately right frontal,not actively enhancing and not hyperacute. Have a appt. with Nuero at U.S.F. in Tampa on Thursday. He has not had any relapses that I ha...
- Thu Mar 01, 2012 7:20 pm
- Forum: General Discussion
- Topic: Any firefighters or former firefighters on here?
- Replies: 11
- Views: 3974
Re: Any firefighters or former firefighters on here?
I'm a firefighter, I dont have MS but have a 15 almost 16 year old son that was diagnosed with MS. If I can help dont hesitate to ask. Or if you want to just talk. Take care. Jimmy.
- Sun Dec 25, 2011 12:51 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Merry Christmas and a HAPPY NEW YEAR to all of us!
- Replies: 12
- Views: 2222
Re: Merry Christmas
Merry Christmas CeCe!!!!! And everybody on this site. Have a wonderful and safe Holiday.
Jimmy B.
Jimmy B.
- Wed Apr 13, 2011 8:28 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Any updates from Dr. Weinstock Guttman's trial?
- Replies: 5
- Views: 2477
Thank's CeCe. I thought their were more children involved in the study. Had a appt. in March with our Nuero in Tampa at USF (Very involved with CCSVI). My son's recent MRI showed no new enhancing leisions and old leisions were barely noticable. He has had no issues since his first attack (very happy...