Search found 52 matches

by eveable
Sat Apr 13, 2013 9:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13870

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

The data suggests there is a measuring problem as well as too small sample size.
by eveable
Mon Apr 08, 2013 6:36 pm
Forum: Copaxone
Topic: Copaxone working this soon!
Replies: 13
Views: 7117

Re: Copaxone working this soon!

I have been injecting Copaxone since May 2003. I see the benefits 6 mths later. Yes you get bumps and divits but it works. I went a month without it a year ago and I noticed the difference. I won't do that again.

Eve
by eveable
Fri Apr 22, 2011 9:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Best place to Stay
Replies: 0
Views: 1663

Best place to Stay

Which hotel is closest to Capital Region Health Park
711 Troy-Schenectady Road, Suite 113
Latham, NY 12110
by eveable
Wed Sep 15, 2010 2:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Dentist
Replies: 11
Views: 3131

Reply to erinc

Hi erinc, I called this past June and I am told I will have a date in April. My dentist called in August. It is a 2 year wait now.

Eve
by eveable
Wed Sep 15, 2010 6:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Dentist
Replies: 11
Views: 3131

2 Days later

I just got this email. Could people who have had the procedure done please comment. I think the headache is common. Hi Everyone, It is Wed. Delhi time 11:20 am. We are 9 hours ahead. Did not send an update yesterday as Joe was in bed all day and I did not want to leave him. It was a rough day as Joe...
by eveable
Tue Sep 14, 2010 7:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Dentist
Replies: 11
Views: 3131

What kind of shape Joe was in

I have never seen Joe, my dentist lift his right foot as long as I have been seeing him. He shuffles. He is the reason I knew I had MS because when my symptoms started I said to myself "my leg feels like my dentist's leg looks". We have been talking about this when ever I am in. I had give...
by eveable
Mon Sep 13, 2010 5:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Dentist
Replies: 11
Views: 3131

My Dentist

Joe is my dentist. We both live in Ontario Canada and have MS. He is the reason I knew I had MS before my diagnosis.I had given him the number in Albany but 2 years wait was too long so he went to India. Look at the results. A quick update. I am exhausted. We have not slept in 2 days, due to excitem...
by eveable
Sun Sep 12, 2010 8:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angioplasty for all Teleconference
Replies: 0
Views: 1280

Angioplasty for all Teleconference

Hi All : We are all wondering what is happening!! We are now going to tell everyone at the same time !! On Sept. 16 at 4 pm Ontario time, Edward Conway (Lawyer) will be hosting a teleconference. This is a Public conference,anyone can join. Go to our website and click on the conference button and you...
by eveable
Sat Aug 14, 2010 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberated PPMS'ers, please post your experiences here!
Replies: 59
Views: 17852

I will see soon. I am on a waiting list to have the angioplasty. I was diagnosed with PPMS in 2001. My symptoms were and are a weak right hand and right foot drop. I was rediagnosed with RRMS in 2003 by a different neurologist and started on Copaxone May 2003. I progressed from 2001 to 2003 a bit, w...
by eveable
Wed Aug 04, 2010 3:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angioplasty for all Canadians
Replies: 8
Views: 2768

CCSVI testing

Sorry JJ, I have not been on here in a bit. I had the doppler done at Barrie Vascular Imaging. I don't think Albany needs anything but I have a piece of paper showing which 3 tests I failed. Blaze, I don't have a date yet. I received an email on July 2nd that they will send me a date but the do not ...
by eveable
Thu Jul 29, 2010 2:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ontario Will NOT Fund Clinical Trials
Replies: 14
Views: 3443

Sandy MacDonald

That was my point. Sandy MacDonald is waiting for funding and approval that he will now never get. I have people in my MS group waiting for that trial to start. Maybe when our charter suit gets going Dalton may have a change of heart.
by eveable
Wed Jul 28, 2010 6:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ontario Will NOT Fund Clinical Trials
Replies: 14
Views: 3443

Dr Sandy MacDonald's Trreatment Trial

Interesting announcement by Dalton esp since Dr Sandy MacDonald at Barrie Vascular Imaging has anounced his treatment trial starting in the fall. In Barrie, Ontario.
by eveable
Tue Jul 27, 2010 12:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angioplasty for Secondary Progreessive
Replies: 5
Views: 1678

At the SUNY yesterday, Dr. Siskin displayed a slide that clearly showed that one third of the patients he treated experienced very significant symptom improvements (most often involving cognitive, heat sensitivity, and balance and coordination issues), one third experienced slight improvement, and a...
by eveable
Fri Jul 23, 2010 8:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI improvements - what and when?
Replies: 6
Views: 3185

Purple foot

Thanks Rose for telling me that your feet are no longer purple. I have one purple foot, my right. I have had a doppler done on it and both legs 3 times now. Strange that Canada will pay for that but not for an angioplasty. When the last Doppler was done they could not find a pulse in that foot. Whic...
by eveable
Wed Jul 21, 2010 3:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I REFUSE TO PAY TAXES UNTIL CCSVI CARE GIVEN IN CANADA[/b
Replies: 12
Views: 3123

Angioplasty for all Canadians

I agree that the CRC really doesn't care why you didn't pay your taxes. They only care that you did not and they will charge you interest. It is like taking on one of the robots in Terminator. They will not stop. Ever. On the other hand, let's do this through the courts. On July 2nd a group of Canad...

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