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Dr. Sclafani - Is it possible to get a copy of the protocol for the follow up Doppler ultrasounds of the IJV. I have a local vascular surgeon who has treated me for MTS and has done my 3-month follow up on my IJV, but not to protocol. He is willing to do continued follow up, but I would like them to...

Nancy, I tried the email you said Holly preferred and it came back to me....is it all correct? I did send one off the the one Cece mentioned and it has not come back so I hope it made it. Zina It's the address she gave me. ccsvi@aac-llc.com. I would suggest copy and paste as I'm not even sure what ...

Dr. Sclafani, are you currently doing the procedure? i am way behind on this thread. so I apologize now, and if anyone else can answer me (cece?) I would appreciate it. I also tried to email Holly and it came back to me, does anyone have her email? I do not want the good doctor to have to waste his...

Dear Dr Sclafani, I'm posting these questions on behalf of Tim. He has tried to open an account in the forum on several occasions, but for some reason it has not worked. "Hi Dr Sclafani I had the CCSVI procedure done in Providence, RI on September 23, 2010. He found my left jugular vein 75% bl...

Hi, Dr. S. It would also be helpful to learn if there's a correlation between where a problem (stenosis, etc.) is located and symptoms. Then it might be possible to see if/how treatment affects those symptoms. I agree. Is it possible to start putting things together so a person might have some idea...

Dr. S. I first became aware of CCSVI in early December, 2009. I had gone on disability from my job for the last time 6 months earlier. I was trying to accept the fact that this is the way I would be - and worse - for the rest of my life. So far drugs had done nothing for me and I couldn't imagine a ...

I called Albany Medical Center and left my name and phone number on the "CCSVI voice mail" line. Then I called again and talked to someone LIVE... who said they only use MRV to diagnose. If I had a TCD done in Rochester, it wouldn't be of any use to them. She said they only use balloons a...

Quote: Here we go with the insurance companies in the US..... Blue Cross is denying my MRV. The IR used the correct codes for venous compression- not MS- but it is obvious why they are denying it. The IR is going to call to appeal- let's see what happens. Harbinger of denials to come? This scares m...

I am glad for all who have shown improvements. Wonderful. But going on with your life should include surveillance to assure that restenosis does not result in recurrence. So can you tell me, how you are being tested for this doppler? MRV? clinical examinations? how often? Who is following your prog...

Wow - costs are all over the board! My local hospital infusion center bills my insurance for $8528 and my insurance pays $6268 with no cost passed on to me.

I have had 47 Tysabri infusions. After about 6 infusions I started to feel much better and it really took care of a lot of the fatigue issues I was having. At that time I was walking pretty good and could walk for about 1 - 1 1/2 miles. My walking never improved and I am now using a cane and can onl...

drsclafani wrote: a treatment clinic could be built for a six figure sum using good used equipment and could actually be profitable as long as insurers choose to pay for procedures. and i will bet we find that sleeping giant waking up soon. Cece replied: Worrisome! Hi Cece, I thought doctor Sclafan...

Dr. Sclafani - This is the first time I have posted. I have been following your thread since early April when I also contacted Holly to be put on your waiting list. Because my disability score has moved approximately 2 - 3 points (that would be upward) in the last 2 years and I am nearing or at a 6,...