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NotFound: My brother got tested for Lyme while we were in Tychy (Dr. Kostecki) at the end of June, and it came back positive. You must be carrefull because there are a lot of false positives and false negatives with Lyme. If you want to be sure, get tested again at home with the Western Blot test. M...

Just an update (and bump for the new members). My brother has just started his treatment for Lyme! He is feeling better after the CCSVI procedure, with more energy and less brain fog than before. He is able to drop some of his meds for energy and is doing great. I'll update when we know more about h...

Saskatchewan premier calls for clinical trials of controversial ms treatment.

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This is great news!

I got an e-mail from Milva a few days ago, and she mentioned that Sharrukin is slowly progressing, but doing well. You can find their contact info on the website they are setting up here: www.ccsvipoland.info

- Dave

I'm so glad to hear from you all! I've been away on vacation at a music festival for the past week and have been itching to see if there were any updates! So glad to hear you are all doing well (apart from the colds, etc.). Well, Jeff's doing very well these days. He says his fatigue is getting bett...

My brother's voice has improved as well. I didn;t notice it while we were there, but my parents did right away. They say he's not as "monotone" and has more power in his voice. I noticed it today, after going away for the weekend. I'm not sure if it's an emotional/state of mind thing, or a...

It's entirely possible that it could be Lyme + something else. As I said, my brother was treated for CCSVI, and they found some stenosis. We'll never know if it was truly only MS, Lyme, or a combination of both. Hell, for all we know, MS/CCSVI could be triggered from Lyme, or perhaps with lack of fe...

If you tested positive for Lyme Disease, then you should first get treated for lyme before you go any further with CCSVI. Almost all of the symptoms are the same as with MS, so it's possible that you don't even have MS. The treatment is a few months of antibiotics. If you don't get better, then you ...

Hey Martin! Hope everything went great for your and everybody else's procedures! I really hope that you're doing well and you see many positive results!

It was so nice meeting you, please keep us updated on your and others status tomorrow or whenever you have the energy. I miss you all!

- Dave White

My brother was treated for CCSVI here in Tychy, Poland on Sunday. They didn't find very much on the doppler or MRI but were able to find blockages during the venography, and he received balloon angioplasty. When we got back to the hotel, he was informed that the blood test results showed a positive ...

I would make sure your tests for Lyme's Disease are accurate.

You must have the "Western Blot" test done (the most accurate one) to be sure. I would even suggest traveling if you cannot get this done at home.

Great to hear!

Did you receive any stents, or just balloon angioplasty?

5 people were liberated yesterday, with pretty good results. Mostly return of feeling, and one woman's eyes "came to life". There was one woman from Hungary who did not see any results, and was apparently pretty depressed this morning about lack of results... that is, until she found out t...

We need to be tested for Lyme Disease? How do we do that (Canadians)? I will check with my GP about the records. There is no way the neuro would provide them :roll: Just go to your GP and ask to be tested. They will test in Canada, the only question is what method they use. There are two methods if...

I should add about the things they are going to need from you. You'll need to let them know your basic info (name, date of birth, etc). You'll also need to let them know if you have any implants in your body and about previous surgeries. Kate will send you a form to fill out and return. If you've ha...