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thanks for your views DrS

technically Dr Beelen could re open the jug again for the 3rd time but the effect would be less and the intimal hyperplasia would destroy it again.

covered stent within the Polish stent was not enough in my case.

waiting for new developments

had a doppler test earlier this week and closure of stent in rh jug confirmed.

left jug still perfectly ok. mind you the lh jug could not be opened in katowiche but was performed by dr beelen from belgium without stenting.

every time the rh jug was open I had a better life without pain and much less spasm

closure not confirmed yet but will have check up soon

to me the polish stent is definately a no no which has now after several reopenings and a stent in stent ruined mt right jugular making it no longer serviceable. it ruined my life the sad fact is that I experienced that in a proper open situation of that vein my life could be different. my advice: f...

hi Rici,

I am still very interested to hear from you if they only fixed the vein in your neck or if the also worked on your vein further down inside the cavaty of your chest ?

hi Rici,

I just wonder if the scar in your neck was the only place of action or did they also have to open your chest ??

rgds, Bas

here we go again: my Polish stent (fitted march) which was blocked this summer and succesfully opened up early july is blocked again. and this while on a well controlled regime to prevent blood clotting. advice to everybody: like Zamboni says: DO NOT USE STENTS I repeate: DO NOT USE STENTS !!!!!!!!!...

hallo MSliberation,

stent was unblocked after approx 2 month after the symptoms re appeared
Dr just worked his way through it with some tool but all debri was sucked away instantly with some sort of vacuum cleaner through my groin
took about one hour for the one stent of 10 cm long

I had a Katowice stent trombosed despite Plavix and Aspirine. All what I had gained was lost. Stent opened up by Belgium doc and now on "rat poison" and under tight control with twice weekly blood tests. Benefits of open veines have returned. :) see also http://www.thisisms.com/ftopict-119...

OK I am now on Acenocoumarol to keep the stent open.

INR value checked twice weekly trying to stick around 2,5.

Stent check at the end of September.

Still going strong after another bladder infection.

anybody around who had a significant better hand function after CCSVI treatment ?

thnx Bas

Condition improved straight after treatment in that way that the nasty pain the olde MS Hug is giving me has dissapeared again. The Hug is still there but much more comfortable. My legs are MUCH less spastic so they can be moved again. A giant bonus. Getting dressed (by somebody else) is easier. I c...

Ok here we go. Just a short history rehearsel first: was checked for ccsvi in Katowice late March where both jugular veins turned out to be almost non existent. Zero flow in the far too narrow jugs. Righthand jug could be opened up but collapsed almost immediately so was stented with a 10 X 1 cm Med...

thanks for all your input.

i will keep the zinc and other stories in mind but will sort out the vein situation first.

Reyton thx for your story on your blocked stent and the good results.

we are all together in this.

to complete the picture i am a 57 year old male ms since 1992 and wheelchair bound since 2008 did never take any of the crabdrugs and did not consume any meat sine 1980 had treatment poland end of march, azy ok both jugs fully blocked. one succesfully opened/stented other jug failed due for some rep...