Search found 6 matches

by librajen
Mon Jun 28, 2010 5:44 pm
Forum: Drug Pipeline
Topic: Cladribine?
Replies: 0
Views: 2296

Cladribine?

Is anyone on this? How is it working for you? My neuro mentioned having me on it after the CCSVI treatment (on July 20 Yayyyyyyyyyy!!!!!!!!!!!!) He said he might be able to get it for me on "compassionate grounds" because I have developed antibodies/become allegic to/ saw no positive resul...
by librajen
Mon Jun 28, 2010 5:03 pm
Forum: Mavenclad (Cladribine)
Topic: Cladribine?
Replies: 0
Views: 2593

Cladribine?

Is anyone on this? How is it working for you? My neuro mentioned having me on it after the CCSVI treatment (on July 20 Yayyyyyyyyyy!!!!!!!!!!!!) He said he might be able to get it for me on "compassionate grounds" because I have developed antibodies/become allegic to/ saw no positive resul...
by librajen
Tue May 25, 2010 12:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Costa Rica
Replies: 5
Views: 3441

Jenny- we're staying at Casa Conde, where Passport Medical is recommending- but I booked it on my own through expedia.ca--it looks like a very nice place! Blindfury- this is through passportmedical.ca They expect that you will have the test and confirm you do have CCSVI before you accet the dates th...
by librajen
Sun May 23, 2010 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Costa Rica
Replies: 5
Views: 3441

CCSVI in Costa Rica

Anyone else going there? I am on July 19! I'm very excited, and would like to talk with someone who has been/ is going there!
Jennifer
by librajen
Sat May 22, 2010 9:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366606

Thank you, Dr Scalfani, for caring so much to answer our questions. I have spent a lonely Saturday night reading all 99 pagers of this forum, and have learned so much. (((hugs))) to you...blushing... I have been tested in Buffalo, NY, and my right jugular vein was found to be narrowed (moderate to s...
by librajen
Tue May 11, 2010 9:53 am
Forum: Introductions
Topic: Hello :) I'm new here!
Replies: 2
Views: 1410

Hello :) I'm new here!

Hi! I'm Jennifer, I'm from Alberta, Canada, I'm 38, and I've had RRMS since Jan 2000. I have 2 boys, 10 and 6, and am divorced, we live with my common-law husband, Guy. On Monday morning, I'm going to Albany, New York, for CCSVI testing, then to Warsaw, Poland for the Liberation procedure. I'm excit...

Go to advanced search