Search found 15 matches

by RedfernTO
Fri Jan 28, 2011 1:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

Got my date too

My original call was June 28th. They called yesterday. March 11 w Dr Siskin. They could not reach me right away - I was at a client's and the cell reception sucked. I saw the area code on the call and went OMG, I think it's them. I ran (ha ha) out to reception and checked the message. Took me a few ...
by RedfernTO
Fri Nov 12, 2010 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

Hi Bobbi
My date into the list was June 28th. My last email from Dr S said approx date is mid 2011.
by RedfernTO
Thu Nov 11, 2010 4:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

Javabean
My friend who is booked in Dec, says its a doppler both before and after.
No MRV is done.
by RedfernTO
Wed Nov 10, 2010 5:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

Thanks for the info Cece.
by RedfernTO
Wed Nov 10, 2010 9:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

To clarify, my friend who called in July and got a date in December is both Canadian and going to the clinic. Was this an error (a happy one for her) or is there is something else affecting the queue?
by RedfernTO
Tue Nov 09, 2010 6:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

Bruce
Defne just posted - on the list July 15th, appointment Dec 29th.
Perhaps Defne's appointment is for the hospital....
by RedfernTO
Tue Nov 09, 2010 12:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

Katta
I was 5/5 at Barrie. I have no problem waiting my turn, however I an getting increasingly concerned because I don't know how the queue is being managed. Is some kind of triage being done? Am I a low priority because I can still walk and work full time?
by RedfernTO
Tue Nov 09, 2010 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointment dates for Albany Community Care
Replies: 263
Views: 49749

I am puzzled about how the wait list is working. The web site says first come, first served. I went on the list in June and people who went on the list after me are getting procedures dates. I contacted them last month and was told middle of next year. Last week one of my close friends was given a d...
by RedfernTO
Wed Jul 28, 2010 3:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616131

Stents

Greetings all! Congrats on the fabulous article and the success of the symposium Dr S. This a repeat of a question submitted last week... Some questions I have found answers for in the last few days. To stent, or not to stent, that is the question. Some friends and I pooled our question lists: - is ...
by RedfernTO
Sun Jul 25, 2010 3:15 pm
Forum: Diet
Topic: Best Bet Diet discussion
Replies: 161
Views: 46541

Misc things I do. I'm a single parent with SP MS who is still working full time. Energy saving is a must. - I found a store that has good gluten free bread (rice, buckwheat, quinoa). I wrap slices in wax paper and freeze most of the loaf. - I have coconut milk ice cream if I want something cold. - I...
by RedfernTO
Sun Jul 25, 2010 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616131

AVMS, PRegnecy and MS

One one the things that is notably different with MS (as opposed to AVMs) is that many, many women report that they felt better during their pregnancies. In my case, I had my first MS symptoms before I was pregnant and was diagnosed after. I have rarely felt better than when I was pregnant.
by RedfernTO
Sat Jul 24, 2010 2:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616131

HockeyDad

I heard a rumour there will be a treatment trial in Barrie sometime soon. Who knows if it is true. Since there are hundreds of people ahead of me in line I am not holding my breath...
by RedfernTO
Sat Jul 24, 2010 12:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616131

To stent, or not to stent, that is the question.

Greetings all! Congrats on the fabulous article Dr S. To stent, or not to stent, that is the question. Some friends and I pooled our question lists: - is there a certain type and location of stenosis that tends to predict the need for a stent? - need for blood thinners after a stent – how long for? ...
by RedfernTO
Mon May 17, 2010 9:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616131

Thanks all for your responses re contra-indications.
by RedfernTO
Mon May 17, 2010 4:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1616131

I apologize if this has come up before. Wading through this entire thread is a bit overwhelming! Has anyone heard/read anything re any contra-indications for CCSVI treatment? Are there any medical conditions that make either venograms or angioplasty high-risk or not possible? E.g. asthma, problems w...