Search found 15 matches

by StentorKate
Mon Jun 07, 2010 7:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat intolerance and angioplasty
Replies: 26
Views: 5225

I had the procedure about a month ago and was hoping that heat tolerance would be one of the bonus side effects, but it seems that is not so for me. It was +20 here yeaterday and I was doing a little work in the garden. Within a few minutes I was totally drained and needed to sit inside for about a ...
by StentorKate
Mon Jun 07, 2010 7:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Transient headaches after procedure
Replies: 7
Views: 3799

I noticed headaches like you describe for about 1 - 1.5 weeks after the procedure. Teated them with Tylenol/Panadol (OTC analgesic). The headaches have since stopped. I was ballooned about a month ago. As a side note, I suffered from migranes - especially brought on by weather changes. I have not ha...
by StentorKate
Fri Jun 04, 2010 2:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NDwannabe is IN Poland!
Replies: 61
Views: 8989

I was also with Dr. Kostecki and experienced no problems. I think it depends entirely on the person. Of the 6 of us who Dr. Kostecki in mid May, the only one who suffered any "pain" was a Bulgerian lady, who seemed to have more issues with fear than pain. She spoke NO English, no one else spoke Bulg...
by StentorKate
Wed Jun 02, 2010 1:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My strange journey with MS and CCSVI !!!
Replies: 25
Views: 4208

Ozark - this might be something to look at before you go to the second neurologist. I found it really interesting because I have some funky artery thing happing in my neck - over and above the CCSVI http://www.thisisms.com/ftopic-10680-days0-orderdesc-30.html Check out Nunzio's post from Mon May 31,...
by StentorKate
Tue Jun 01, 2010 10:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Patience everyone, CCSVI is real.
Replies: 13
Views: 2370

Very well said.
I think unrealistic expectations can be our worst enemy.
What I've found and marvelled in are the things I didn't even know were problems untill they went away!
by StentorKate
Mon May 31, 2010 2:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blocked stent question - w a r n i n g !
Replies: 54
Views: 14450

I'm very curious how long the people with blocked stents were on anticoagulants (Plavix, Warfarin , Heparin etc). Dr. Kostecki prescribed 14 days of 60mg of Clexane once a day for 14 days, 75mg of Plavix once a day for a year and 150 mg ASA once a day for life. I've been reading other posts in the ...
by StentorKate
Fri May 28, 2010 12:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Faulty valve vs stenosis
Replies: 10
Views: 2358

grammastang - (Lynda) actually gave me the name - we were in Poland along with Alanbrowne and 3 others. After we got back she sent an email to the other "stentors" so I decided it was a good nickname.

:D Kate
by StentorKate
Fri May 28, 2010 12:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Known Risks/Complications of Angioplasty and Venous Stenting
Replies: 129
Views: 101124

lightheadedness and headaches

I was stented on May 15 2010, and have on occasion experienced extreme lightheadedness a feeling like I might faint, (not dizzyiness) and headaches since then.
Has anyone else had this expreience?
by StentorKate
Fri May 28, 2010 10:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 19291

Glad to hear of your progress Fiddler. I'm hoping you'll agree when I say the most critical thing is to go in with realistic expectations. I recently had the Liberation treatment in Poland with Dr. Kostecki. It exceeded my expectations - but then I went into it with realistic expectations. When you ...
by StentorKate
Thu May 27, 2010 2:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 57870

Re: the polish phrases

Katherine of EuropaNostra travel gave us a card with translations for use in the hospital. The 2 other woman I was in the room at the hospital with and I had absolutely no trouble in getting our messages across with these card and hand signals - the nurses didn't have any problems getting their mess...
by StentorKate
Thu May 27, 2010 2:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 285794

MS history Name: Kate (Female) Age: 51 RRMS - diagnosed in 1979 Lesions primarily in brain (limbic and basal ganglia) and cervical spine. Testing: Mylogram spinal tap 1979 CT scan 1979 MRI 1999, 2003, 2010 VEP 1999 Poland 2010 Doppler Ultrasound, MRI, Venogram Meds: ATCH in 1979 and 1980 Copaxone 1...
by StentorKate
Tue May 25, 2010 10:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Faulty valve vs stenosis
Replies: 10
Views: 2358

I had no significant stenosis in any of the veins, but in the lower portion of the pathologic valve on the left side, I experienced significant decrease in flow. I had a increase in flow on the right side when supine and the collateral circulation via the thyroid gland and anteior veins of the neck ...
by StentorKate
Thu May 20, 2010 12:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kosteki
Replies: 377
Views: 57870

Pre-testing

maureen196113 I also did not have any pretesting done. It would have cost airfare to and from and $2350.00 in Vancouver to have it done - without any guarantees that they knew what they were doing (at the time - this was before Simka's visit) I contacted Dr. K. and he said they'd have to do it all a...
by StentorKate
Thu May 20, 2010 12:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Jacek Kostecki - may 10-15 / a bit of added info
Replies: 2
Views: 2042

Jacek Kostecki - may 10-15 / a bit of added info

Just got back yesterday - had the procedure May 15. Here's a bit of added info. It is important when talking to airlines, and other officals that you do not state that you are going for SURGERY - if necessary mention "procedure", but it's best to say you're going for pleasure. They get quite nervous...
by StentorKate
Thu May 20, 2010 6:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Just back from Poland with Dr Kosteki
Replies: 63
Views: 11694

Here's some more -

I am the Canadian Kate of Kate and Randall that Alan speaks of. We want to add a bit more info First I agree with what Alan said about the Polish teams - the Doctor's and nurses were excellent (except for one - Nurse Ratchet, we called her ... she was a little rough) and Katherine and her team of dr...