Search found 15 matches
- Mon Jun 07, 2010 7:36 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Heat intolerance and angioplasty
- Replies: 26
- Views: 6884
I had the procedure about a month ago and was hoping that heat tolerance would be one of the bonus side effects, but it seems that is not so for me. It was +20 here yeaterday and I was doing a little work in the garden. Within a few minutes I was totally drained and needed to sit inside for about a ...
- Mon Jun 07, 2010 7:33 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Transient headaches after procedure
- Replies: 7
- Views: 4279
I noticed headaches like you describe for about 1 - 1.5 weeks after the procedure. Teated them with Tylenol/Panadol (OTC analgesic). The headaches have since stopped. I was ballooned about a month ago. As a side note, I suffered from migranes - especially brought on by weather changes. I have not ha...
- Fri Jun 04, 2010 2:04 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NDwannabe is IN Poland!
- Replies: 61
- Views: 12849
- Wed Jun 02, 2010 1:52 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: My strange journey with MS and CCSVI !!!
- Replies: 25
- Views: 5606
Ozark - this might be something to look at before you go to the second neurologist. I found it really interesting because I have some funky artery thing happing in my neck - over and above the CCSVI http://www.thisisms.com/ftopic-10680-days0-orderdesc-30.html Check out Nunzio's post from Mon May 31,...
- Tue Jun 01, 2010 10:52 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Patience everyone, CCSVI is real.
- Replies: 13
- Views: 3176
- Mon May 31, 2010 2:34 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: blocked stent question - w a r n i n g !
- Replies: 54
- Views: 18111
I'm very curious how long the people with blocked stents were on anticoagulants (Plavix, Warfarin , Heparin etc). Dr. Kostecki prescribed 14 days of 60mg of Clexane once a day for 14 days, 75mg of Plavix once a day for a year and 150 mg ASA once a day for life. I've been reading other posts in the ...
- Fri May 28, 2010 12:50 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Faulty valve vs stenosis
- Replies: 10
- Views: 2970
- Fri May 28, 2010 12:32 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Known Risks/Complications of Angioplasty and Venous Stenting
- Replies: 129
- Views: 133851
lightheadedness and headaches
I was stented on May 15 2010, and have on occasion experienced extreme lightheadedness a feeling like I might faint, (not dizzyiness) and headaches since then.
Has anyone else had this expreience?
Has anyone else had this expreience?
- Fri May 28, 2010 10:17 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: fiddler finally flying... to Poland
- Replies: 118
- Views: 25197
Glad to hear of your progress Fiddler. I'm hoping you'll agree when I say the most critical thing is to go in with realistic expectations. I recently had the Liberation treatment in Poland with Dr. Kostecki. It exceeded my expectations - but then I went into it with realistic expectations. When you ...
- Thu May 27, 2010 2:36 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Jacek Kosteki
- Replies: 377
- Views: 77298
Re: the polish phrases
Katherine of EuropaNostra travel gave us a card with translations for use in the hospital. The 2 other woman I was in the room at the hospital with and I had absolutely no trouble in getting our messages across with these card and hand signals - the nurses didn't have any problems getting their mess...
- Thu May 27, 2010 2:28 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
- Replies: 163
- Views: 346923
MS history Name: Kate (Female) Age: 51 RRMS - diagnosed in 1979 Lesions primarily in brain (limbic and basal ganglia) and cervical spine. Testing: Mylogram spinal tap 1979 CT scan 1979 MRI 1999, 2003, 2010 VEP 1999 Poland 2010 Doppler Ultrasound, MRI, Venogram Meds: ATCH in 1979 and 1980 Copaxone 1...
- Tue May 25, 2010 10:53 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Faulty valve vs stenosis
- Replies: 10
- Views: 2970
I had no significant stenosis in any of the veins, but in the lower portion of the pathologic valve on the left side, I experienced significant decrease in flow. I had a increase in flow on the right side when supine and the collateral circulation via the thyroid gland and anteior veins of the neck ...
- Thu May 20, 2010 12:54 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Jacek Kosteki
- Replies: 377
- Views: 77298
Pre-testing
maureen196113 I also did not have any pretesting done. It would have cost airfare to and from and $2350.00 in Vancouver to have it done - without any guarantees that they knew what they were doing (at the time - this was before Simka's visit) I contacted Dr. K. and he said they'd have to do it all a...
- Thu May 20, 2010 12:23 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Jacek Kostecki - may 10-15 / a bit of added info
- Replies: 2
- Views: 2557
Jacek Kostecki - may 10-15 / a bit of added info
Just got back yesterday - had the procedure May 15. Here's a bit of added info. It is important when talking to airlines, and other officals that you do not state that you are going for SURGERY - if necessary mention "procedure", but it's best to say you're going for pleasure. They get qui...
- Thu May 20, 2010 6:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Just back from Poland with Dr Kosteki
- Replies: 63
- Views: 15792
Here's some more -
I am the Canadian Kate of Kate and Randall that Alan speaks of. We want to add a bit more info First I agree with what Alan said about the Polish teams - the Doctor's and nurses were excellent (except for one - Nurse Ratchet, we called her ... she was a little rough) and Katherine and her team of dr...