Search found 11 matches

by happytown
Sun Jun 20, 2010 8:15 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Symptoms
Replies: 2
Views: 4673

That is awesome you all are going to get HiCy. I have talked to Mayo Clinic about it and am supposed to call them back in July to schedule for sometime in October. I have researched alot on it and I wish I could go get it today it sounds so good. I would love to hear all about your experiences.
by happytown
Thu Jun 17, 2010 3:42 pm
Forum: Low Dose Naltrexone
Topic: LDN & Rebif
Replies: 6
Views: 2867

I noticed changes by the next day. Today is the first day since April 14th that I have had to take a muscle relaxer. I stopped taking LDN because I take Rebif so was worried about my liver. Now I am having another MS attack. I wonder if it is because I stopped the LDN. Has anyone else stopped taking...
by happytown
Mon Jun 14, 2010 11:34 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: My 9 month HiCy follow-up
Replies: 23
Views: 11854

I have decided to get this treatment also. I am so excited I can hardly wait!
by happytown
Wed Jun 09, 2010 8:55 pm
Forum: General Discussion
Topic: Exercise - do you think it helps?
Replies: 16
Views: 3975

Exercise helps alot. If I go 2-3 days without it, I dont walk right. And it hurts like crazy when I start back up. My motivation is seeing patients bedbound with MS. And Im motivated right now because I want to drop a size.
by happytown
Sun May 30, 2010 5:53 pm
Forum: Daily Life
Topic: life with ms question
Replies: 11
Views: 3372

Im a little late posting but I deal with my MS in several ways. I can tell you that prayer has helped so much. I can honestly tell you God has been with me the whole time. I accepted it from the moment I got it. Life takes you places you didnt plan to be. Accepting it does not mean giving up. For me...
by happytown
Sun May 30, 2010 5:29 pm
Forum: Daily Life
Topic: I hate this diesase...
Replies: 5
Views: 2173

Baylor I totally understand.
by happytown
Sun May 30, 2010 5:27 pm
Forum: Daily Life
Topic: Weight training - potiential problem with MS?
Replies: 12
Views: 6850

I do weight training and feel like it helps. When I miss a workout, I can feel it. I am afraid not to work out as hard as I do because I want to have muscles just in case at some point I can't walk. While I can, Im doing everything I can. Its good to know of other people with MS that work out. It is...
by happytown
Sat May 29, 2010 1:38 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: My 9 month HiCy follow-up
Replies: 23
Views: 11854

I have thought about it and done further research. If this is what works to help people, I am all for it. Different things work for different people. Just was really scared of the thought of losing them or them getting sicker. Im still going to be anxious of course, when you love someone you worry, ...
by happytown
Tue May 25, 2010 8:23 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: My 9 month HiCy follow-up
Replies: 23
Views: 11854

This is an awful disease.
by happytown
Mon May 24, 2010 3:19 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: My 9 month HiCy follow-up
Replies: 23
Views: 11854

There has to be a cure for this somewhere in the world.
by happytown
Mon May 24, 2010 2:53 pm
Forum: Friends and Family
Topic: I don't know what to do...
Replies: 5
Views: 5007

How do you handle MS?