This Is MS Multiple Sclerosis Knowledge & Support Community

Is it easy for a IR or other doctor to see if your valves are an issue? What is the process to make that determination? I am interested in the idea that the valves may be causing, or at least significantly contributing to, CCSVI. My question is, what determines if the valve is causing a problem. I a...

A name to watch and see if it becomes a player in stem cell treatment with MS is Cytori Therapeutics

The goal is to stop the hole from being punched in the boat, but how long is that going to take you? I am all for bailing out the water while repairing the hole in the boat at the same time. I think we have gotten pretty good at multi-tasking. At least that way we may stay afloat long enough to see ...

Thats great to hear that you all have seen improvements. Hey, thats great to hear about the other dr S being all in. Like I said, better but not cured. I have not taken DMDs since just before the first procedure, no more prednesone, and my provigal has been cut in half. And yes, if you throw me in 9...

10 months post op. So I realize that there are people that want this to be the answer and those that dont. I also realize that for some it has been the answer and others it has not. I am doing better 10 months post op then when I went in. Am I cured?...No. I am still a Bad Copy of the original but b...

I stopped Betaseron April 2010, first CCSVI procedure late August. I stopped not because I thought that I would be cured but because with or without DMDs I had continued to slowly progress for the last 10 years.

I am not in favor of or opposed to that IRB. I know he is aware of it and I believe he actually contacted them at one point. Seeing as how I am not that familiar of the requirments of participating doctors I am not going to comment on it.

I sent him the link to this forum. Maybe he will join us here

Good morning I just came from society of interventional radiology. I spent some time at the conference regarding ccsvi. I think it is very promising and would be willing to provide this service to you or anyone else. let me know if you wish to see me, and also if you want to let other patients know ...

When are you going in for round three? I think I read that you have retained most of your benefits from the first two, is that correct? In any case let us know how it goes and good luck.

Countdown: 16 days away :D Most of my insurance issues have been worked out. Still waiting on the preauth now and a few details but it looks like it's a go. I called my GP this afternoon to get an appointment to get an Arixtra prescription and a blood test per American Access Care's instructions. I...

very nice to see!

Good Luck!


Trully wish you the best!

And if your anxious dont worry. They keep you on the happy juice.

DR Vali Orandi


2 nurses names are Lonee and Kristina. Phone # is 218-736-8263

He is by Alexandria MN. He is open to helping MS patients. It is best to speak with him or his staff regarding CCSVI (I dont want to put words in his mouth)

VERY experienced IR

bump