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I have experienced a reoccurance of many symptoms but not all. I suppose the improvements i have experienced were more than i expected, so in that regard my procedure had a limited success. My biggest regret is that bladder improvements did'nt last. I cant run to the loo so i have to stay in close p...

I suspect that after treatment to relieve stenosis in my jugular veins in February that my veins have re-stenosed. The doctor that carried out the procedure said that it was pointless to carry out a 2nd procedure. I was reading somewhere that in most cases a 2nd op was necessary in the long term. An...

I wonder how much research has been done on the trigger for an ms attack? I was sitting on a bus the other day which had a very nasty exhaust leak. It was so bad that it actually made me feel ill. I am still feeling the effects now, three days later. I am having trouble with my concentration and coo...

Its a no from me although I feel i was past the point of no return when i started on Rebif. I was told I would feel lousy initally but after a day or two I would feel better. I felt sickly for a whole year and told them to stop prescribing me it after I felt I could'nt go on with it. I was then diag...

We had a representative from the Scottish MS Society at our latest meeting and he seemed to ignore discussions about CCSVI and the Liberation Treatment and talked about Stem Cell research. I was very disappointed as i feel stem cell treatment is treating the symptoms and not the cause. Stem Cells wo...

Does anyone else get burning pains in their feet when they drink alchohol? It has put an end to my love affair with beer. Everyone thinks i'm mad. One good thing about not drinking is i dont suffer the really bad hangovers anymore. In this respect CCSVI makes sense,as the booze cant exit the blood s...

I was told over a year ago that as i was now considered to be secondary progressive that their were no drug treatments available to me. I have been encouraged by developements by Dr Zamboni. Liberation is an option but is too expensive. My Neuro, who is not very helpful, seems to have the attitude t...

I hope to get scanned for CCSVI soon and will make up my mind as to whether I go for the liberation treatment. Hopefully the procedure will be fine tuned by then. In all the research i'v done, as long as stents ain't involved its relatively safe but restenosis is the main worry.

Why does my GP seem to dismiss CCSVI and the Liberation Treatment as some kind of witchcraft? Tysabri has far more horror stories attached to it.