Search found 263 matches

by TMrox
Sat Apr 09, 2011 1:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vit D3>125nmol/L (50ng/ml) in blood. Goal for pwMS
Replies: 821
Views: 96888

Differences in how vit D is processed in humans and mice are one of the many reasons why I think one should not read too much into mice studies. I saw this comment from Professor Young, a clinical neuroscientist, a while ago regarding a study that found UVB light suppresed EAE but did not increase 2...
by TMrox
Wed Mar 09, 2011 10:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Concerns raised about controversial MS treatment
Replies: 37
Views: 6881

Thanks EJC for providing the link of compalins to the bbc http://www.bbc.co.uk/complaints/

Here another link where one can express the views especifically on the 'Inside Out West' programme on CCSVI. There are 33 comments so far...

http://www.bbc.co.uk/dna/mbpointsofview ... ad=8108628
by TMrox
Tue Mar 08, 2011 12:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Concerns raised about controversial MS treatment
Replies: 37
Views: 6881

Just watched the whole programme (now available in youtube): http://www.youtube.com/user/CCSVI2MS#p/a/u/0/6BxbQd4FrZ8 Even Dr Colin Rose got interviewed, but none of the doctors doing clinical trials in north america or italy. hmmm According to Inside Out BBC progamme: If you have been affected by a...
by TMrox
Mon Mar 07, 2011 4:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS experts in Britain have to open their minds - Telegraph
Replies: 16
Views: 3771

Mark congrats for your improvements post-angio and for achieving a balanced news coverage on CCSVI. Today's CCSVI coverage in the BBC is on the other side of the spectrum...One must wait to see the full local TV programme, but doubt it will be any better than what has been reported in the BBC news b...
by TMrox
Mon Feb 14, 2011 3:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Kamikaze Could Use Your Vote
Replies: 14
Views: 2798

Congrats Marc

Looking forward to hear further from your decree that henceforth all underwear must be worn on the outside, he he...

Rox
by TMrox
Sun Feb 13, 2011 3:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118691

Cece, awesome that you had treatment. You have a fantastic doctor so probably he has already given you all the post-recommendations one can need. As others have said, rest is basic, drinking plenty of water, also not to forget to take the blood thinners. I had a sore neck for about two weeks but the...
by TMrox
Fri Feb 11, 2011 3:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118691

Cece, best of luck :D !!!!

Rox
by TMrox
Mon Jan 03, 2011 5:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: anyone been treated at x-cell germany? angioplasty/stem cell
Replies: 6
Views: 2325

Watch this video of an undercover journalist who has MS and who went to that German stem cell center. There are various links there detailing about the reported deaths in the center following the stem-cell treatment http://www.telegraph.co.uk/news/newsvideo/8082001/Hope-of-a-cure-at-Europes-largest-...
by TMrox
Sun Dec 12, 2010 8:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blocked veins aren't good for us (stroke research)
Replies: 1
Views: 1300

I agree! Here is more info of vascular involvement and demyelination of the spinal cord: Transverse Myelitis: A neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. The term myelitis refers to inflammation of the spinal cord; transverse simply de...
by TMrox
Thu Dec 09, 2010 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CBC: More Research Needed in MS Battle.
Replies: 17
Views: 2976

Docs can learn from the IRB approved observational study that the Hubbard foundation is doing (ClinicalTrials.gov Identifier: NCT01205633) . Safety of procedure and rate of restenosis is a main concern for any patient considering CCSVI treatment. This study might give some insight into this. Also th...
by TMrox
Thu Dec 09, 2010 6:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CBC: More Research Needed in MS Battle.
Replies: 17
Views: 2976

Talking about more research needed:

Hubbard foundation: Between IRB approval in June and mid-December 125 patients have been treated for CCSVI.

79% report improvements.
1% report are worse and 17% report are unchanged.

6% have been retreated for restenosis.

http://tinyurl.com/3xr7kjv
by TMrox
Thu Dec 09, 2010 5:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: An Open Letter to Mark Freedman
Replies: 27
Views: 4411

scorpion, I'm not familiar with Dr Embry's suggested diet so I cannot comment on any recommendations he might have made with regards grape seeds extract. I do follow Dr Sears anti-inflammatory diet and adapt it to eat the superfoods that Dr Terry Wahls suggests. I find both diets quite useful and bo...
by TMrox
Wed Dec 08, 2010 12:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why does treatment help so fast ?
Replies: 52
Views: 8487

Here an extract of Dr Dake's commenting piece on CCSVI: "Some of the symptoms of MS mimic those observed in patients with superior vena cava syndrome. Relief of superior vena cava obstruction with venous angioplasty and stent placement, if required, provides swift and dramatic resolution of the symp...
by TMrox
Wed Dec 08, 2010 12:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question: Plaques in Spine
Replies: 6
Views: 1690

I found this in one of Zamboni's paper "Although investigations into the role of iron in MS are still few, many high-resolution MR techniques have shown stored iron regions inside the brain and spinal cord ... Blocked extracranial venous blood outflow causes a high rate of cerebral venous reflux in ...
by TMrox
Wed Dec 08, 2010 2:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Freedman: CCSVI no less than a cult
Replies: 53
Views: 8268

Dr Embry has written an open letter to Freedman see thread: http://www.thisisms.com/ftopict-14886.html Here an extract of that letter: December 7, 2010 Dear Mark, I was recently forwarded a copy of an email which you had sent to one of your patients regarding the CCSVI issue. I was not surprised by ...