This Is MS Multiple Sclerosis Knowledge & Support Community

Differences in how vit D is processed in humans and mice are one of the many reasons why I think one should not read too much into mice studies. I saw this comment from Professor Young, a clinical neuroscientist, a while ago regarding a study that found UVB light suppresed EAE but did not increase 2...

Thanks EJC for providing the link of compalins to the bbc http://www.bbc.co.uk/complaints/

Here another link where one can express the views especifically on the 'Inside Out West' programme on CCSVI. There are 33 comments so far...

http://www.bbc.co.uk/dna/mbpointsofview ... ad=8108628

Just watched the whole programme (now available in youtube): http://www.youtube.com/user/CCSVI2MS#p/a/u/0/6BxbQd4FrZ8 Even Dr Colin Rose got interviewed, but none of the doctors doing clinical trials in north america or italy. hmmm According to Inside Out BBC progamme: If you have been affected by a...

Mark congrats for your improvements post-angio and for achieving a balanced news coverage on CCSVI. Today's CCSVI coverage in the BBC is on the other side of the spectrum...One must wait to see the full local TV programme, but doubt it will be any better than what has been reported in the BBC news b...

Congrats Marc

Looking forward to hear further from your decree that henceforth all underwear must be worn on the outside, he he...

Rox

Cece, awesome that you had treatment. You have a fantastic doctor so probably he has already given you all the post-recommendations one can need. As others have said, rest is basic, drinking plenty of water, also not to forget to take the blood thinners. I had a sore neck for about two weeks but the...

Cece, best of luck !!!!

Rox

Watch this video of an undercover journalist who has MS and who went to that German stem cell center. There are various links there detailing about the reported deaths in the center following the stem-cell treatment http://www.telegraph.co.uk/news/newsvideo/8082001/Hope-of-a-cure-at-Europes-largest-...

I agree! Here is more info of vascular involvement and demyelination of the spinal cord: Transverse Myelitis: A neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. The term myelitis refers to inflammation of the spinal cord; transverse simply de...

Docs can learn from the IRB approved observational study that the Hubbard foundation is doing (ClinicalTrials.gov Identifier: NCT01205633) . Safety of procedure and rate of restenosis is a main concern for any patient considering CCSVI treatment. This study might give some insight into this. Also th...

Talking about more research needed:

Hubbard foundation: Between IRB approval in June and mid-December 125 patients have been treated for CCSVI.

79% report improvements.
1% report are worse and 17% report are unchanged.

6% have been retreated for restenosis.

http://tinyurl.com/3xr7kjv

scorpion, I'm not familiar with Dr Embry's suggested diet so I cannot comment on any recommendations he might have made with regards grape seeds extract. I do follow Dr Sears anti-inflammatory diet and adapt it to eat the superfoods that Dr Terry Wahls suggests. I find both diets quite useful and bo...

Here an extract of Dr Dake's commenting piece on CCSVI: "Some of the symptoms of MS mimic those observed in patients with superior vena cava syndrome. Relief of superior vena cava obstruction with venous angioplasty and stent placement, if required, provides swift and dramatic resolution of the...

I found this in one of Zamboni's paper "Although investigations into the role of iron in MS are still few, many high-resolution MR techniques have shown stored iron regions inside the brain and spinal cord ... Blocked extracranial venous blood outflow causes a high rate of cerebral venous reflu...

Dr Embry has written an open letter to Freedman see thread: http://www.thisisms.com/ftopict-14886.html Here an extract of that letter: December 7, 2010 Dear Mark, I was recently forwarded a copy of an email which you had sent to one of your patients regarding the CCSVI issue. I was not surprised by ...