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This is what I was doing in terms of time on the bike during the time before I got sick. Time/mileage does not include rides done in indoors which I believe there was 3 in there and also whatever cross training I did. This will give you an idea of how my 2 years of no copaxone and no relapses was li...

I take 20mg daily and exercise vigorously on an almost daily basis BUT wear a cooling vest during such exercises. As every person responds differently, you will need to see for yourself what you can do and handle and how your body responds. I do think that preventing getting hot is paramount but th...

Hi Wendy, I am also from Miami just curious because I rarely speak with people with MS. Do you know of any active support groups here or therapists with MS experience? I've had a rough year after being with my fiance for 3 symptom free great years. The last year has been rough and I was wondering wh...

Not sure why I found this so funny. Had to call Shared Solutions today went to their website and their webchat isn't working. I was like "poor Claire maybe she has a relapse" lol

Hello been a long while since I posted on this site. I started taking 20mg Copaxone around 2010. I used it everyday for 3 years but eventually had to stop. I ran out of injection sites my tissue became really hard. I am skinny so not much fat on me so I repeated a lot of the injection sites. Before ...

anyone know if you could just take a regimen of Leflunomide? Leflunomide is pretty cheap. I found this interesting in the wikipedia for Leflunomide "Teriflunomide can be found as late as 2 years after termination of therapy in human plasma in sufficient levels to cause severe harm to pregnant w...

Same started in my early 20's. Got brain washed into thinking I was depressed since that's all you see on TV. Went to a psychologist. Are you tired? Does that make you sad that you are tired? Were you active before? OMG U BIPOLAR!!! what a racket that is... Tired various drugs none work. One almost...

paul2008 wrote:that is so true......i gave up 2 jobs because i was so tired and totally exhausted all day and didn't know what was causing it. MS was diagnosed 4 years later and i still have the same severe fatigue.

have you tried Modafinil (Provigil) It has worked wonders for me.

Same started in my early 20's. Got brain washed into thinking I was depressed since that's all you see on TV. Went to a psychologist. Are you tired? Does that make you sad that you are tired? Were you active before? OMG U BIPOLAR!!! what a racket that is... Tired various drugs none work. One almost ...

Get a copy of your MRI images, make a Neurologist appointment and have him go over the images with you. Most MRI facilities will give you a CD with a program that will load up the images. Radiologists can screw up reports. I had one completely miss 4 clearly lesions in my brain in 2007 and I was 27 ...

I have an MRI of my brain from 2007 and 2010. In those two MRI you can clearly see about 4 lesions. There was barely any change between 2007 and 2010. I got an MRI last week after 1 year of getting treatment. I did not start treatment in 2007 because I was misdiagnosed. I can spot just 1 lesions and...

I've been taking Lion's Mane which is known to increase levels of NGF. Might want to also give that a try. Thanks for this, I've picked some up and added it in. I did not know about it before your post, but like what I've read so far. --Tracy This is a good article about it http://www.longecity.org...

Eating a bunch of fish oil helps me. I guess it lubes the stuff up lol. Not sure if that is safe while pregnant. If not try olive oil capsules?

30 year old Male Daily Copaxone Injection around 10pm Morning: As needed 100mg Modafinil (Modapro, or Modalert) With Food: 81mg Bayer low dose Aspirin 600mg NAC (N-Acetyl-L-Cysteine) 400mg COQ10 1000mg Fish Oil Lion's Mane Capsule 750mg Aniracetam (depending on how I feel) 130mg DMAE Lunch: 750mg An...

I've been taking Lion's Mane which is known to increase levels of NGF. Might want to also give that a try.