This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks for posting! Clearly diet and lifestyle need to be addressed in people with MS, and these are ignored or understated by most neurologists, to whom many patients look for advice in dealing with their MS. Would be more helpful for the researchers to have included a healthy control group. Unfort...

Are the nitrates in beetroot juice different from those in processed foods like hot dogs, which some say have bad health effects?

Thanks for the mini-education, MegansMom. It's posts like yours that keep me coming back to TIMS. Much appreciated. Gordon, from what I understand, we don't want to necessarily reduce our intake of iron, which the body needs (as pointed out by MM). The problem is that it's getting where it shouldn't...

1eye, I don't know if Hubbard Foundation will mail the survey out of the country; why don't you email them and ask? I am with you in saying that Dr. Sclafani is the best :) particularly through his use of ivus, examination of the iliac and ascending lumbar veins, thoroughness with the azygous, and g...

Any patient who wants their data to be collected should remember to send an email to Dr. Hubbard's group requesting the packet for the patient-centric registry! These forms can be brought to whatever doctor does your procedure. Good point, Cece. Hubbard Foundation may be reached at hubbardfoundatio...

My daughter had success with Vick's Vapo Rub, but it must completely cover the nails and be used faithfully every day (and night?), for months, until the infected nail grows out. But no worries about liver effects. I don't know if a generic would also work. My sister-in-law, who used the prescribed ...

, Cece and CurIous.

Hope the neuros are reading this thread....

MarkW, I see your point, as well as the others'. How about a thread specifically dedicated to long-term changes (or lack thereof) after venoplasty? Any neurologists reading would be well-served, in my opinion, by taking a look at the data being collected on www.ccsvi-tracking.com. Not without its sh...

Cece, love your posts of continuing improvements, and reactions of your kids. So heartwarming and hope-inspiring. Keep 'em coming!

Welcome to TIMS, Liz. I'm also from NC, and there are others on this site as well. Hope you find it as helpful as I have, especially all the info and discussions on CCSVI (Chronic Cerebrospinal Venous Insufficiency) in MS. Best of luck to you.

I was treated a few weeks ago by James McGuckin, MD at Vascular Access Centers in Durham, NC. Total cost of $8000 included, in my case, a one-hour phone consultation with VAC's Patient Medical Advocate Kate Fitzgerald, a twenty-minute phone conversation with Dr. McGuckin, a procedure which included ...

I'm sorry you did not have immediate results. Remember the rule of thirds. You may be in the middle group. I had immediate results that were apparent to everyone but me. I was kind of hoping for major things, so I didn't notice the minor. However, I take them being there (clearer speech, mood impro...

Did you get treated locally, MS_HOPE? There is an American Access Care in North Carolina, when I was at the Brooklyn AAC there was a tech being trained in CCSVI ultrasounds because she was being transferred to the North Carolina branch. I ask because I am reminded of pklittle's case, who had no imp...

Thanks very much for this post, Cece, which can be a very helpful paper to bring to the attention of fearful neurologists.

If you experienced no improvements for at least the first week or so after CCSVI angioplasty, but then had later significant improvement(s), will you kindly post here? You will be helping those of us who don’t know whether to accept our new place in the ranks of the unimproved and move on, or to mai...