Search found 37 matches

by rasnet6
Mon Sep 07, 2009 6:46 am
Forum: General Discussion
Topic: Relapse !
Replies: 2
Views: 2256

I was always told that the steroids can take upto six weeks to have their effect, in my experience i normally start to see some improvement albeit slowly within a couple of weeks, and unfortunatley it can take months to recover from a relaspe, but hopefully the steroids should take away the worst of...
by rasnet6
Fri Jun 19, 2009 2:54 am
Forum: General Discussion
Topic: Non-typical symptoms?
Replies: 10
Views: 5889

you know the best piece of advice I was ever given by my neurologist is to never assume a symptom is a result of MS... always get symptoms checked out, as otherwise you run the risk of ignoring a serious underlying problem, or suffering long term from something you neednt. So my advice for non typic...
by rasnet6
Tue May 12, 2009 7:24 am
Forum: General Discussion
Topic: stronger inflamatory response in women
Replies: 1
Views: 1706

I wonder whether this is the reason behind man flu??

(he he he sorry boys I couldnt help myself)
by rasnet6
Fri May 08, 2009 2:13 am
Forum: Revimmune (Cyclophosphamide, Cytoxan)
Topic: Depression from Copaxone
Replies: 2
Views: 2989

Copaxone is not supposed to make you feel unwell when you start treatment however when i started copaxone i had some strange side effects, and the MS nurses agreed they were strange but to hang on in there to see if they diminished. Thankfully 3-4 weeks later they slowly dissapeared and I continued ...
by rasnet6
Mon Dec 01, 2008 2:08 am
Forum: General Discussion
Topic: Pre-relapse signs....put our heads together?
Replies: 16
Views: 5247

I also get an idea that I am about to relapse. Normally in the two weeks before i get a relapse i start to get tired, pins and needles, patches of excema (sp?) show up on my arms and legs, and i also get a very strange tummy ache. If i get the tiredness and excema then if i get lots of sleep and gen...
by rasnet6
Fri Nov 21, 2008 8:43 am
Forum: General Discussion
Topic: Depression and MS
Replies: 7
Views: 2796

well winter is fast appproaching, and that means all i want to do is go to sleep in my lovely comfy bed... my hubby drags me out by my feet most morning to me wailing 'i dont wanna get up'- btw im not a teenager anymore either (he he) im sure this is a form of dark night depression ... perhaps one o...
by rasnet6
Fri Nov 21, 2008 8:28 am
Forum: Daily Life
Topic: Insomnia with Copaxone?
Replies: 2
Views: 3178

Hi, I cant say the copaxone ever caused me sleep problems but it did make me feel very nauseous for about 3-4 weeks when i started taking it... so much so i adjusted to take the injections at night so i would sleep through the worst of it. However these symptoms got slightly less over the 4 weeks un...
by rasnet6
Thu May 15, 2008 3:01 am
Forum: Copaxone
Topic: Lipoatrophy Survey
Replies: 19
Views: 9114

female aged 29, was on copaxone for 3 years, lipo started at 6 months and got progressively worse, so much that I ruined my leg and bottom sites... so was reccomended only to inject into stomach area Stopped the copaxone a year ago (trying for a family) lipo improved slightly, but still large areas ...
by rasnet6
Thu Feb 14, 2008 3:33 am
Forum: Rebif
Topic: rebif and emotional disturbance
Replies: 12
Views: 8722

I was on avonex and felt unwell as a result. I didnt get uptight or stressed, i just slipped away into a world where nothing bothered me. People talked to me and I just couldnt be bothered, it was just noise. I managed to work, but when I came home I had no energy for anything and would sit on the s...
by rasnet6
Thu Feb 07, 2008 8:26 am
Forum: General Discussion
Topic: Difficult decisions
Replies: 26
Views: 6861

I understand what you are going through - its tough making the right decisions. Me and my husband are trying for a family and we stopped copaxone for a month before we started trying. We got pregnant immediatley, but miscarried soon after. Since then we have continued trying and it has been a huge d...
by rasnet6
Fri Jun 22, 2007 1:30 am
Forum: General Discussion
Topic: The Scientist
Replies: 4
Views: 2460

by rasnet6
Thu Jun 14, 2007 12:04 am
Forum: Introductions
Topic: Hi everyone - just an intro & quick quuestion
Replies: 7
Views: 3204

I can only answer with my personal experience with MS. Like yourself I do normally completely recover in between times but when I have had a particulaly bad relapse it can take a while. My last bad relapse left me with numb fingers for about 1 year after the major relapse had died down (this involve...
by rasnet6
Tue Jun 05, 2007 12:20 am
Forum: Copaxone
Topic: does copaxone really work???
Replies: 14
Views: 19566

Honestly I cant fault copaxone. I have been on it 4 years now and havent had a relapse since I started on it, previously I was on avonex and was having 2 relapses per year, with lots of symptoms in between relapses, and the side effects from the avonex. With the copaxone I have much more energy, I h...
by rasnet6
Tue Feb 27, 2007 7:41 am
Forum: General Discussion
Topic: Solumedrol
Replies: 15
Views: 6585

Everytime I have had a bad relapse I have had steroid treatment. It has worked for me everytime. Vision problems were gone within the week. I had a very bad relapse where my co-ordination of everything below my neck went so i couldnt walk - this time the steroids tok a bit longer to work (4 weeks -i...
by rasnet6
Wed Jul 05, 2006 2:32 am
Forum: Avonex
Topic: more depressed during 48 hours after injection?
Replies: 5
Views: 4610

Hi, I had the same thing happen to me whilst on avonex, however my depressive periods lasted for 5 days. It was a form of depression where I felt spaced out and far too tired to consider anything including speaking to my better half.. I was locked into a world of my own, and didnt know what was happ...

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