Search found 42 matches
- Tue Apr 20, 2021 11:42 am
- Forum: Aubagio (Teriflunomide)
- Topic: Aubagio and Hair Loss side effect
- Replies: 46
- Views: 114879
Re: Aubagio and Hair Loss side effect
Hi everyone - My neurologist is suggesting that I try Aubagio, but I'm worried about the hair loss because I'm post menopausal and already struggling with a little 'shedding'. Looking for information from those who have been on it for a while. How bad is the shedding, how quickly does it seem to sto...
- Wed Aug 07, 2013 10:02 am
- Forum: Diet
- Topic: Wahls diet discussion
- Replies: 372
- Views: 205662
Re: Wahls diet discussion
I would like to hear from those of you that follow the Wahls protocol. First, are you taking any of the MS meds in addition to following Wahls? How long have you been following and have you found that your symptoms and progression has been minimized? I'm seriously considering scrapping all western m...
- Wed Aug 07, 2013 2:59 am
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Have you switched to Tecfidera? Are you glad you did?
- Replies: 31
- Views: 16788
Re: Have you switched to Tecfidera? Are you glad you did?
I have always had mixed emotions/thoughts about taking any medication. I switched from Copaxone to Tecfidera a couple of weeks ago, and have had minimal specific side effects. I have, however, had extreme fatigue and the constant feeling as if I am coming down with something. If anything, my symptom...
- Tue Aug 06, 2013 5:31 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Fatigue?
- Replies: 27
- Views: 29198
Re: Fatigue?
Hi everyone. So, I finally called the Tecfidera and called the 'Useless Nurses' line. Oh, sorry, I got that wrong -- 'Active Nurses' Line. :-) I explained to the nurse that I have had very minimal side effects, overall, but have EXTREME fatigue as I can barely make it through the day without laying ...
- Mon Aug 05, 2013 3:26 pm
- Forum: Diet
- Topic: Wahls diet discussion
- Replies: 372
- Views: 205662
Re: Wahls diet discussion
I follow the Paleo way of eating, with a focus on some of the Wahls approach that I am familiar with. I see that there is both a Paleo AND a Wahls topic on this Diet board. I'm wondering what I am missing about Dr. Wahls approach. I do believe that her diet is Paleo -- correct? Granted, I do not hav...
- Sat Aug 03, 2013 6:51 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Fatigue?
- Replies: 27
- Views: 29198
Re: Fatigue?
I have only been taking Tecfidera for a week, and I noticed increased fatigue on day 3. I would categorize it as significant as I fell asleep drinking my morning green drink. That was a first! Can anyone who has been taking this for a while also experienced increased fatigue, and did it get better o...
- Thu Jul 18, 2013 2:50 am
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Anybody get chills as a side effect?
- Replies: 11
- Views: 6141
Re: Anybody get chills as a side effect?
I am going to be starting this medication over the weekend and have been looking through this forum for information when I spotted your post. Obviously, I have no personal experience with this symptom. However, my Neuo has MS and recently started taking this med and had commented to me on a recent v...
- Mon Jul 15, 2013 3:51 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Tecfidera How to minimize or Eliminate Side Effects
- Replies: 65
- Views: 64925
Re: Tecfidera How to minimize or Eliminate Side Effects
Thank you for taking the time to post this information. I received the medication today and plan to start it this weekend. I plan to follow your recommendations from the first day. I have one question for you. I see that you take Prevacid each day. Is this recommended to take with the medication, ev...
- Thu Aug 02, 2012 5:50 am
- Forum: Natural Approach
- Topic: Calcium EAP
- Replies: 1
- Views: 2455
Calcium EAP
I just visited my naturopath last night and feels that I am doing well on the B12 and B-Complex injections, as well as all of the other recommended supplements. However, he strongly recommended that I look for Calcium EAP and start taking that; unfortunately, his office does not carry the product. H...
- Mon Apr 30, 2012 9:54 am
- Forum: Copaxone
- Topic: Copaxone Side Effects
- Replies: 4
- Views: 4992
Re: Copaxone Side Effects
I know that if I call my Neuro, he will think that I stopped because of the hair loss itself. What concerns me is that I have always felt that a person's hair is a window into the stresses that the body is under. For example, years back, I had a healthy head of hair and then went into premature labo...
- Mon Apr 30, 2012 4:29 am
- Forum: Copaxone
- Topic: Copaxone Side Effects
- Replies: 4
- Views: 4992
Copaxone Side Effects
I have been taking Copaxone injections since my diagnosis, just a little under 2 years ago. The first year seemed to go fine. About a year ago, I started noticing consistent hair loss and attributed it to 'age' (46). Then about 6 months back, I realized that my fatigue and leg heaviness was getting ...
- Sun Sep 25, 2011 2:49 pm
- Forum: Low Dose Naltrexone
- Topic: Doctors that Prescribe LDN
- Replies: 103
- Views: 193608
Re: Doctors that Prescribe LDN
One of the earlier posts asked about doctors in Mass that will prescribe LDN. I just made an appointment with Dr. Elson in Northampton, MA. He is an MD as well as a Naturopath. I had seen him about 20 years ago and he told me then that I would be diagnosed with an autoimmune disease at some point. U...
- Sat Nov 06, 2010 1:11 pm
- Forum: General Discussion
- Topic: What was your first MS symptom?
- Replies: 47
- Views: 43564
First Symptom
Very difficult to say because I have had vertigo on and off for years, but it was always attributed to chronic ear problems. The first symptom that I found to be 'odd' and got me to see a physician was the fact that I could not feel the razor against my legs when I was shaving. I knew that I was sha...
- Wed Oct 06, 2010 5:39 pm
- Forum: General Discussion
- Topic: A Rant !
- Replies: 19
- Views: 5536
Well, WifehasMS, your type of story is what has instilled fear in my since my diagnosis. I, too, worked hard all of my life and seem to have little to show for it other than the exacerbations caused by stress (mostly, from work). I have a wonderful family, but fear the potential financial hardship t...
- Wed Oct 06, 2010 5:25 pm
- Forum: General Discussion
- Topic: Tightness around knees
- Replies: 10
- Views: 3622
That is one of my common/regular symptoms. I definitely see a major flare up when I am under stress. Under normal circumstances, I have found relief with a product called 'Formula 303' (http://www.formula303.com/). Which, is an all natural muscle relaxer. When the stiffness is at its worst, I tend t...