Search found 41 matches

by prauly
Wed Aug 07, 2013 10:02 am
Forum: Diet
Topic: Wahls diet discussion
Replies: 372
Views: 100042

Re: Wahls diet discussion

I would like to hear from those of you that follow the Wahls protocol. First, are you taking any of the MS meds in addition to following Wahls? How long have you been following and have you found that your symptoms and progression has been minimized? I'm seriously considering scrapping all western m...
by prauly
Wed Aug 07, 2013 2:59 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Have you switched to Tecfidera? Are you glad you did?
Replies: 31
Views: 12315

Re: Have you switched to Tecfidera? Are you glad you did?

I have always had mixed emotions/thoughts about taking any medication. I switched from Copaxone to Tecfidera a couple of weeks ago, and have had minimal specific side effects. I have, however, had extreme fatigue and the constant feeling as if I am coming down with something. If anything, my symptom...
by prauly
Tue Aug 06, 2013 5:31 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fatigue?
Replies: 27
Views: 13115

Re: Fatigue?

Hi everyone. So, I finally called the Tecfidera and called the 'Useless Nurses' line. Oh, sorry, I got that wrong -- 'Active Nurses' Line. :-) I explained to the nurse that I have had very minimal side effects, overall, but have EXTREME fatigue as I can barely make it through the day without laying ...
by prauly
Mon Aug 05, 2013 3:26 pm
Forum: Diet
Topic: Wahls diet discussion
Replies: 372
Views: 100042

Re: Wahls diet discussion

I follow the Paleo way of eating, with a focus on some of the Wahls approach that I am familiar with. I see that there is both a Paleo AND a Wahls topic on this Diet board. I'm wondering what I am missing about Dr. Wahls approach. I do believe that her diet is Paleo -- correct? Granted, I do not hav...
by prauly
Sat Aug 03, 2013 6:51 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Fatigue?
Replies: 27
Views: 13115

Re: Fatigue?

I have only been taking Tecfidera for a week, and I noticed increased fatigue on day 3. I would categorize it as significant as I fell asleep drinking my morning green drink. That was a first! Can anyone who has been taking this for a while also experienced increased fatigue, and did it get better o...
by prauly
Thu Jul 18, 2013 2:50 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Anybody get chills as a side effect?
Replies: 11
Views: 4059

Re: Anybody get chills as a side effect?

I am going to be starting this medication over the weekend and have been looking through this forum for information when I spotted your post. Obviously, I have no personal experience with this symptom. However, my Neuo has MS and recently started taking this med and had commented to me on a recent v...
by prauly
Mon Jul 15, 2013 3:51 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera How to minimize or Eliminate Side Effects
Replies: 65
Views: 52633

Re: Tecfidera How to minimize or Eliminate Side Effects

Thank you for taking the time to post this information. I received the medication today and plan to start it this weekend. I plan to follow your recommendations from the first day. I have one question for you. I see that you take Prevacid each day. Is this recommended to take with the medication, ev...
by prauly
Thu Aug 02, 2012 5:50 am
Forum: Natural Approach
Topic: Calcium EAP
Replies: 1
Views: 1834

Calcium EAP

I just visited my naturopath last night and feels that I am doing well on the B12 and B-Complex injections, as well as all of the other recommended supplements. However, he strongly recommended that I look for Calcium EAP and start taking that; unfortunately, his office does not carry the product. H...
by prauly
Mon Apr 30, 2012 9:54 am
Forum: Copaxone
Topic: Copaxone Side Effects
Replies: 4
Views: 3893

Re: Copaxone Side Effects

I know that if I call my Neuro, he will think that I stopped because of the hair loss itself. What concerns me is that I have always felt that a person's hair is a window into the stresses that the body is under. For example, years back, I had a healthy head of hair and then went into premature labo...
by prauly
Mon Apr 30, 2012 4:29 am
Forum: Copaxone
Topic: Copaxone Side Effects
Replies: 4
Views: 3893

Copaxone Side Effects

I have been taking Copaxone injections since my diagnosis, just a little under 2 years ago. The first year seemed to go fine. About a year ago, I started noticing consistent hair loss and attributed it to 'age' (46). Then about 6 months back, I realized that my fatigue and leg heaviness was getting ...
by prauly
Sun Sep 25, 2011 2:49 pm
Forum: Low Dose Naltrexone
Topic: Doctors that Prescribe LDN
Replies: 103
Views: 132837

Re: Doctors that Prescribe LDN

One of the earlier posts asked about doctors in Mass that will prescribe LDN. I just made an appointment with Dr. Elson in Northampton, MA. He is an MD as well as a Naturopath. I had seen him about 20 years ago and he told me then that I would be diagnosed with an autoimmune disease at some point. U...
by prauly
Sat Nov 06, 2010 1:11 pm
Forum: General Discussion
Topic: What was your first MS symptom?
Replies: 47
Views: 37160

First Symptom

Very difficult to say because I have had vertigo on and off for years, but it was always attributed to chronic ear problems. The first symptom that I found to be 'odd' and got me to see a physician was the fact that I could not feel the razor against my legs when I was shaving. I knew that I was sha...
by prauly
Wed Oct 06, 2010 5:39 pm
Forum: General Discussion
Topic: A Rant !
Replies: 19
Views: 3224

Well, WifehasMS, your type of story is what has instilled fear in my since my diagnosis. I, too, worked hard all of my life and seem to have little to show for it other than the exacerbations caused by stress (mostly, from work). I have a wonderful family, but fear the potential financial hardship t...
by prauly
Wed Oct 06, 2010 5:25 pm
Forum: General Discussion
Topic: Tightness around knees
Replies: 10
Views: 2563

That is one of my common/regular symptoms. I definitely see a major flare up when I am under stress. Under normal circumstances, I have found relief with a product called 'Formula 303' (http://www.formula303.com/). Which, is an all natural muscle relaxer. When the stiffness is at its worst, I tend t...
by prauly
Sun Sep 19, 2010 6:09 pm
Forum: General Discussion
Topic: Who to tell...and when? any ideas?
Replies: 19
Views: 3938

Not sure that this will help.

I'm not sure that this will help your decision. I was recently diagnoses (June), and have been struggling with the same decision. Close family and friends new that I was struggling with symptoms that were being followed by a Neurologist, so that made it less of a challenge to tell those people. My m...