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I take 1000 mg of lion's mane daily, plus a little powder in my coffee. It has only been a few weeks, but I have noticed that I am stronger and more confident in some actions. I'm hoping to continue on this track!

PPMS
dx 2001
wheelchair

I always take 1 pill (100 mg) of the ubiquinol in the morning, and another 1 in the late afternoon/early eve. I take the other pills when I think about it, usually 1 around noon and 1 at bedtime. Some with food, some without--my body doesn't seem to care. One thing to note: mail order ubiquinol pill...

I take 300-400 mg of ubiquinol (Co-Q10) per day and it has helped TREMENDOUSLY with getting up out of my wheelchair and confidently transferring to the car, shower, etc. It took a few months to take effect, but now if I miss a couple of days, I really notice the increased weakness. The other thing t...

maynaka,

Oh no, not offended! I just wanted to keep the discussion on track.

V

maynaka, I'm ambivalent about public figures, such as Michelle Obama and JK Rowling (another of my heroes), taking up support for MS research. Why? Because they so often throw their powerful voices behind the national societies, which are of questionable value to many of us MSers. (I'm PPMS and so p...

How strange is it that two of the front runners for the Republican nomination have wives (or ex-wife, in one case) with MS? I'm just wondering how Romney & Gingrich's responses to their wives' MS (one stayed, one left) are influencing the decisions of Republican primary voters who either have MS...

Dr Diana,

I don't know if I technically had CCSVI, but I had jugular blockage and was liberated twice. Unfortunately, having PPMS, I only got a few minor improvements, some of which have faded over time. But my deterioration may have slowed--hard to tell. Thanks for asking.

Dr. Diana,

That is the first time anyone has ever had ANY explanation to offer me.

Not that I can do anything more with the information--I already have my optic nerve checked regularly (stable & fine)--but it's good to KNOW something (at least have a viable theory).

THANKS SO MUCH!
Val57gal

About the time I was DX in 2001, I had a lot of trouble adjusting to light changes. I'd come in from the sunshine & have trouble focusing for about 10 minutes. Eventually I realized that my left eye dilates and contracts at a different pace than my right eye. It still happens, tho much less seve...

There's an article in the NY Times (subscription) http://www.nytimes.com/2011/04/21/science/21gut.html?_r=1&ref=health that describes how people can be divided into three groups or enterotypes by their gut bacteria, and how the main differentiator is how B vitamins are absorbed/produced: "D...

lyndacarol--

And wouldn't it be nice to avoid all those darn shots? I understand sublingual and transdermal absorption isn't as high as for injections, but they're higher than digestive absorption.

V

Jimmylegs, I was doing the full Klenner for B vitamins with daily injections, B complex pills, Niacin 2x week. Now I'm doing everything but the Niacin sublingual (plus regular magnesium & zinc pills, thanks to you). (And D3 of course.) As far as singing goes, I think it was lack of energy plus m...

I followed the Klenner protocol for about 4 years, off and on, with no real improvement. (It may have slowed deterioration, but that's hard to measure.) Since my hands won't do injections anymore, I tried B1 pills, but they don't sit well in my stomach. What I've found is that I need B1 and the OTHE...

OK, Cece, I'll answer the poll with my 2nd results. NotFound, I'm going in for a follow-up visit at 6 mos. I don't know if Dr Arata will do MRV, US, or just a consult. That's why I was wondering how the "no restenosis" claim was being made. If it's just based on maintenance of improvements...

It's hard for me to answer this poll. I was the first CCSVI patient at PI and had restenosis of the IJVs after my first procedure in June. However, I had a second procedure in August with much bigger balloons (up to 20 mm) and don't seem to have any restenosis after almost 4 months. When and how are...