Search found 62 matches

by KDGO
Tue May 27, 2014 2:22 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: FIRST MRI AFTER BEING ON TECFIDERA
Replies: 16
Views: 19922

Re: FIRST MRI AFTER BEING ON TECFIDERA

Ladymac
What was your WBC before starting? Mine was already on the low side at 4, neuro said to monthly test to make sure it doesn't go below 2.5
Thanks
by KDGO
Tue May 27, 2014 2:18 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Tecfidera and glutathione
Replies: 4
Views: 3523

Re: Tecfidera and glutathione

Laine
Are you on Tecfidera and supplements now?
by KDGO
Fri Oct 11, 2013 2:42 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Have you switched to Tecfidera? Are you glad you did?
Replies: 31
Views: 15087

Re: Have you switched to Tecfidera? Are you glad you did?

This is hopeful...sort of. My gut is one of the things I am so comfortable with ...compared to my neuropathic blue feet! Of course when I go to the neuro there is a big push for some DMD even though I am on LDN (prescribed by an alternative doc). After 2 yrs on a strict diet and LDN my February MRI ...
by KDGO
Fri Oct 11, 2013 2:07 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Have you switched to Tecfidera? Are you glad you did?
Replies: 31
Views: 15087

Re: Have you switched to Tecfidera? Are you glad you did?

Dorkkbrain All that sounds like good news. I am weighing Tecfidera. I am currently taking NrF2 which is an active ingredient of Tecfidera without any issues at all. I know "everyone is different" but curious about spine lesions which seem to now effect my mobility significantly. So therefo...
by KDGO
Thu Oct 10, 2013 1:13 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Have you switched to Tecfidera? Are you glad you did?
Replies: 31
Views: 15087

Re: Have you switched to Tecfidera? Are you glad you did?

Are any on you here that take Tecfidera JC positive? Did you get your lymphocyte count before starting?
Thank you.
by KDGO
Thu Oct 10, 2013 12:56 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 107251

Re: Side effects

Fifer44 where are you located that your MS center is not offering this as a 1st line med? I am in Boston ....home of Biogen and am curious if your center is farther away.
by KDGO
Thu Jun 13, 2013 10:10 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Tecfidera - a mistake to make it oral?
Replies: 24
Views: 15145

Re: Tecfidera - a mistake to make it oral?

Thank you for letting us know how you are doing. By any chance were you ever tested for the JC virus? The ingredients are different than those that cause infection but just curious if it a norm for MSers to be tested for that virus.
by KDGO
Sun May 26, 2013 6:44 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 107251

Re: Side effects

Yikes..there was an equally disturbing story as Kim's on Wheelchair Kamikaze's Tecifidera blog. I don't know if it was the same person or another person with a hospital trip because of the drug's reaction. Thank you to all who have advise their experiences.
by KDGO
Thu May 23, 2013 8:20 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 107251

Re: Side effects

Thanks for the info. Are you still on 120 or up to 240?
by KDGO
Fri May 10, 2013 10:05 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Tecfidera - a mistake to make it oral?
Replies: 24
Views: 15145

Re: Tecfidera - a mistake to make it oral?

I've been on BG12 for over 5 years and at the correct dosage. I still occassionally get a little flushing. I never vomited but did get lower digestive upset for about a month. It was quite bad but didn't last more than a couple of months. Hope this helps! MB If you have been on this for 5 years does...
by KDGO
Fri May 10, 2013 9:08 am
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 107251

Re: Side effects

Thanks everyone for posting your experience with Tecfidera. I am also most interested in how this drug will help with MS progression and symptoms.
by KDGO
Wed Apr 03, 2013 7:24 am
Forum: Antibiotics
Topic: Stiff legs Minocycline?
Replies: 2
Views: 2523

Re: Stiff legs Minocycline?

1.More neuropathy pain in my feet now up to my knee.
2. Feel somewhat weaker in general.

Almost like there is a battle going on inside my body.
I'm supposed to take this for 6 weeks....I'll see what happens after 1 week if I still feel this way.
Thanks for your info.
by KDGO
Mon Apr 01, 2013 5:35 pm
Forum: Antibiotics
Topic: Stiff legs Minocycline?
Replies: 2
Views: 2523

Stiff legs Minocycline?

Has anyone experienced stiff (stiffer than usual) legs when starting minocycline? Thanks for your advise.
by KDGO
Tue Apr 24, 2012 9:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI without MS diagnosis?
Replies: 30
Views: 5468

Re: CCSVI without MS diagnosis?

Best of luck Sealey.
by KDGO
Mon Apr 16, 2012 9:38 am
Forum: Daily Life
Topic: Cooling Vest
Replies: 7
Views: 4575

Re: Cooling Vest

I'm wondering if anyone can give me their review on their ice vest. There appears to be different kinds and not sure which way to go. Thank you for your help.

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