This Is MS Multiple Sclerosis Knowledge & Support Community

It would be difficult to explain manipulation of the dura mater and mobilization of blood and CSF in an email. I would first have to explain the design of the skull and layout of the brain, as well as the blood and CSF circulatory routes. The dura mater, however, connects to the upper cervical spin...

Seeva (or friend of), American Access Care told me today that Dr. Sclafani will reply to your e-mail request and will contact you for a few pieces of information and forward on to American Access Care. Appointment will be scheduled with them but he only does one procedure per month so it will be in ...

Hello Lady Gazelle, Strabisimus surgery is certainly an option and much safer than brain surgery such as clearing the sigmoid sinus. If NUCCA didn't alleviate the diplopia then it is unlikely that an upright MRI and Dr. Rosa will help. In cases like yours, in addition to working on the craniocervic...

I wrote to the CCSVILiberation@gmail.com address to explain why I am seeking a procedure. I spoke with someone who has the phone number for his assistant Holly Barr (717) 818-7526 . I also received the phone number for American Access Care (718) 369-1444 . I contacted Dr. Gary Siskin in Albany and t...

Hello Lady Gazelle, Thanks for the update. Diplopia is often associated with hydrocephalic-like conditions that affect the midbrain. The midbrain is penetrated by the cerebral aqueduct and surrounded by the interpeduncular and superior cerebellar (quadrigeminal) cisterns, which makes it susceptible...

:-D I have been following your conversations with Dr. Flanagan and I find comfort in your self-advocacy. I have spoken with two neurologists, two neuro-surgeons, two vascular surgeons, interventional radiologist, neuro-opthalmologist, an orthopedic surgeon, and tomorrow another vascular surgeon. Hop...

Thank you 1eye. Today I talked with a spine surgeon's Physician's Assistant and she understood talking about CCSVI after I explained how nobody wants to help me. I got the standard initial X-ray of my neck, but she told me it's not the right test to find vertebral compression of the IJV because it i...

Can someone give me Dr. Sclafani's contact information? I am having Dr. Siskin's offIce send my records to my GP to see exactly why he thinks the internal jugular vein could not be accessed 11/8/10. Dr. Sclafani told me at the time, he thinks I was "under-treated" and he would like to do a...

I need to get the "gold standard" catheter venogram just to find out what the blockage is in my left IJV. That has to be taken care of with a bypass or something. I can't just tell a doctor what I need based on an opinion. Can a catheter venogram be done to just assess that area? I am most...

Dr. Siskin who did my CCSVI procedure in 2010 ballooned 5 areas but could not open the top of the left IJV due to "possible vertebral compression". I have been treated by upper cervical chiropractor as UprightDoc recommended for the past five years. A contact with someone who was in a 5-ye...

I know it sure does make me "taller" when driving because I have to adjust the rear view mirror! lol

I recently purchased a decompression belt from Dr. Ho (saw on TV) and my NUCCA Dr. Adamszuk said it is fine to use but only when standing for a long time or possibly lifting because she doesn't want me to lose muscle. Definitely don't sleep with it - although some do. You can find Dr. Ho's belt onli...

Doctor Sclafani, Can you help an "old lady" (60) with getting some answers after having MS symptoms since 1972? It started off as RRMS but went to SPMS in 1998. I had an ultrasound at Rochester General Hospital (RGH) in NY July 2010. Dr. Siskin performed CCSVI procedure at the Albany Hospi...

How can a vertebra compress the internal juggular vein? I had the procedure and that is what Dr. Siskin suspected, and said it could not be opened with a balloon or a stent. He would not order an MRV; "not necessary." How does he know for sure, just because they find it a lot at the upper ...

I called Dr. Adamczuk's office and asked how soon I could see her assistant as opposed to waiting until May to see her, and I got two appointments next week! The appointments will be 1-1/2 hours long. Tuesday 1/18 I will consult with Doctor Weidman and discuss my history. Then X-rays will be taken f...