Search found 147 matches

by Thekla
Tue Jun 16, 2015 11:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI to Dr Amir - a step in the right direction
Replies: 18
Views: 4594

Re: CCSVI to Dr Amir - a step in the right direction

Yes, fb decided to suddenly block him, so he developed his own site, dramir.com which is for his practice and also includes a blog and testamonials. He also pops on here occasionally.
by Thekla
Tue Jun 16, 2015 3:01 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: The biotin trial results are out
Replies: 121
Views: 27092

Re: The biotin trial results are out

I have been taking approx 100mg otc since early April. I was leery of the fillers, so I opted for a lower dose. I have received 30g pure powder (I ordered from bulksupplements) and a scale, so jumping up to 300mg. I can say that my balance is better and so is my bladder. I cannot say the biotin is t...
by Thekla
Mon Dec 15, 2014 4:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568349

Re: DrSclafani answers some questions

Do the instances of fading improvements possibly indicate a case for more stenting? I have heard a few rumblings about new venous stents or non-metallic stents. Are there cases of single treatment that have maintained improvements without stenting? Is it better to simply retreat than stent? Is it di...
by Thekla
Sat Dec 13, 2014 4:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can IJV's and Azygous veins remain dilated after 3 balloon a
Replies: 3
Views: 972

Re: Can IJV's and Azygous veins remain dilated after 3 ballo

I have restenosed significantly in my LIJV---I was treated twice in 2010-11. I am interested in the answer to this too.
by Thekla
Fri Nov 21, 2014 6:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568349

Re: DrSclafani answers some questions

The article by Schelling mentions the sigmoid sinus veins. What do you think of them? Are they routinely checked? I haven't heard as much discussion about them as IJV/azygous and even renal. I do know of a patient who had a stent placed there in 2010 and is now asymptomatic and living a normal life.
by Thekla
Thu Oct 09, 2014 7:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568349

Re: DrSclafani answers some questions

I've recently noticed that after sleeping on my side for a few hours, if I roll on my back with my legs straight, within a couple minutes, my feet and both lower legs flush and become uncomfortably hot, both perceived temperature and externally verified. Would this indicate some blood flow disturban...
by Thekla
Sun Sep 21, 2014 11:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1568349

Re: DrSclafani answers some questions

Is there a review of Arata's TVA paper? Is it possible that this could perhaps be an unintended result of some ccsvi treatments that could explain the disparate results, with some 'lucky' patients having these nerve fibers simulated and a dysautonomia corrected whilst others had blockages corrected ...
by Thekla
Fri Jun 27, 2014 12:20 am
Forum: General Discussion
Topic: progesterone and MS
Replies: 33
Views: 13520

Re: progesterone and MS

Do you take a break from the progesterone during the month? I have read to take a week off to simulate natural fluctuations. I have also read that it can accumulate in fatty tissues affecting results. What kind of benefits are you getting? I've been taking estriol in the am and progesterone before b...
by Thekla
Thu Jun 26, 2014 11:50 pm
Forum: Diet
Topic: Wahls diet discussion
Replies: 372
Views: 95941

Re: Wahls diet discussion

Very interesting---I wasn't aware of the B12 connection. I have been supplemented B12 sublingually though. I'll have to dig more. Thanks 8)
by Thekla
Thu Jun 26, 2014 4:34 am
Forum: Diet
Topic: Wahls diet discussion
Replies: 372
Views: 95941

Re: Wahls diet discussion

jimmylegs, How do you feel about the nightshades? I've heard rumblings about them on and off for years and lately cholinesterase inhibitors. I really hate the idea of eliminating chili peppers, etc from my diet. I prefer a modified wahl's/paleo with loads of veggies and grassfed meats including orga...
by Thekla
Wed Jun 25, 2014 3:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New research- UV rays, nitric oxide and MS symptom relief
Replies: 48
Views: 8707

Re: New research- UV rays, nitric oxide and MS symptom relie

This makes so much sense to me. I have had low vit D and I have lived in the tropics. But here in the north, I definitely 'feel' better when I get some sun on my skin. I know late in the afternoon, I'm not getting sun that will produce vit D, but it still feels good and if I stay hydrated and don't ...
by Thekla
Wed Jun 25, 2014 2:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Range of Electrical Frequencies Effect Blood Vessels
Replies: 4
Views: 1196

Re: Range of Electrical Frequencies Effect Blood Vessels

I wonder what Tesla would have come up with. I have played with various electric/frequency devices--fascinating stuff.
by Thekla
Tue Jun 24, 2014 1:34 pm
Forum: General Discussion
Topic: Is perimenopause making my ms symptoms worse?
Replies: 46
Views: 6899

Re: Is perimenopause making my ms symptoms worse?

I am trying bio-identical hormones from the US now but I have heard they are available here in Germany. If they help, I will have to find a local source. Maybe your pharmacist friend could find out for you? I have heard a lot about bio-identical being far superior to synthetic---also for thyroid! I ...
by Thekla
Tue Jun 24, 2014 12:57 pm
Forum: General Discussion
Topic: progesterone and MS
Replies: 33
Views: 13520

Re: progesterone and MS

I started using a prescription progesterone creme and 8mg estriol again last month. I have heard it takes several months to really see benefits. When are others taking it? Morning or evening? Should I do them together?
by Thekla
Sat Jun 21, 2014 1:28 pm
Forum: Regimens
Topic: Estriol
Replies: 73
Views: 35717

Re: Estriol

Hi! I just came across this thread. I am just restarting treatment with estriol (8mg) and progesterone (creme). I had been copying an earlier study that used 8mg estriol--the progesterone just made sense! I had drifted away from it with CCSVI in 2010-11. I had previously felt the hormones helped wit...