This Is MS Multiple Sclerosis Knowledge & Support Community

I was "out-ed" right away. Although I have no outward symptoms, let's just say it's a small town. Everyone knew something serious was up and so when people asked me how I was, I decided to tell them. I had the feeling they all knew anyway. I'm a fairly private person, so this was quite awk...

I noticed similar hair thinning on Rebif. I started supplementing with Vitamin E and Selenium. Can't say I noticed any difference or not.

carolsue

Alcohol: Worse (at least temporarily) I had a facial spasm several months ago and found my first alcoholic drink at the end of the day aggravated it a lot for an hour or so. The gymnastics seemed to calm back down to their normal dance after the second drink, however. Stress and fatigue: Worse carol...

I hear that sometimes after liver enzymes increase, they may come back down after a couple months.

Anyone have low platelet levels after being on rebif for a while?

As a followup to my original vertigo post, my sister (who does not have MS) saw a neuro about her vertigo. He seemed to think it was BPPV (benign paroxysmal positioning vertigo--click on Art's link above), and if it got worse for her, she might consider the physical manipulation that Art mentioned. ...

I'm wondering if Cathy (last post june 23) has anything to report on her use of zocor. My cholesterol is somewhat high (200) but I've never been concerned because my ratio of HDL:LDL is very desireable. But if Zocor might have an added beneficial effect to my interferon therapy, I might consider it,...

I'd characterize it as uncertainty and doubt that surrounds any new treatment. The doc I was talking to didn't discount the efficacy of antegren at all, and did say it sounds like antegren is well tolerated. but he was expressing caution about possible unintended consequences, given that there are t...

FYI, one concern I heard from a MS specialist last week regarding Antegren is that it might be too good at sealing up the blood-brain barrier, thus preventing the immune system from getting into the brain when you'd actually want it to (e.g., to fight meningitis).

carolsue

New Rebif formulation is supposed to be out that has a higher pH and therefore should sting less. Anyone gotten it yet? Also it's supposed to be coming with a smaller needle. I'd appreciate hearing reports. I have about a 1.5 month supply of the old stuff to use up first. FYI, I saw a MS specialist ...

And, I notice, there is no discussion of a bacterial or infectious cause.

I'd definitely buy a black "This is MS" t-shirt if it was in the same font as "this is spinal tap." that would be way cool. Not sure where you'd put the umlaut, though

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Thank you Felly, and Sarah, for sharing information from your two apparently different perspectives. I have benefited from both of you. It's so critical that we keep open minds and encourage healthy debate. I hope you two will keep it up.

carolsue

I sometimes have similar problems with going back to sleep if I wake up in the middle of the night. Felly has some great advice. I'll add that I sometimes wear earplugs so that some late night noise doesn't wake me in the first place. And I'll give myself about 15 minutes to fall back asleep. If I d...

Hi Philip, For 40 years I've been an extremely healthy person who catches a cold once a year that slows me down for a couple days. In Aug 2003 I was backpacking in an area thick w/ mosquitoes. About a week later I had a fever and body aches and fatigue that were not typical of a normal cold/flu. I k...

You wrote: I need a neuro. Since I am going down the path of using antibiotics as a treatment, I need an open - minded neuro. Does anyone know of a good doctor in Colorado? If you find one, please let me know! I am intrigued by this thread as I've wondered if West Nile Virus was a trigger for my MS....