Search found 14 matches

by Rompers
Thu Nov 08, 2012 5:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: do you wonder if you could be amongst the misdiagnosed?
Replies: 17
Views: 3411

Re: do you wonder if you could be amongst the misdiagnosed?

Rosegirl, I could not agree with you more - "Hope" is very powerful!!! ...and I too have it back!
by Rompers
Sun Oct 28, 2012 11:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1761625

Re: DrSclafani answers some questions

I too, religiously read this site daily since the fall of 2010, and more than once a day, but am a lurker not a poster...
by Rompers
Fri Sep 16, 2011 7:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heavy legs
Replies: 14
Views: 7174

Re: Heavy legs

I was diagnosed in 1999 RR, and between that time and the fall of 2010 (SP by then) I had three separate instances, where after sitting straight up, with feet on the floor (at theatre) I arose to have a nearer normal gait (my right leg being the problem, heavy and uncooperative) ...but that ability ...
by Rompers
Sun Aug 21, 2011 6:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: green tea is neuroprotective in rats w intermittent hypoxia
Replies: 3
Views: 1441

Oh Cece, I do enjoy your wit!
...and my morning cup of green tea!
by Rompers
Fri Jun 17, 2011 6:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1761625

Dear Dr. Sclafani, Your Canadian friends especially, will be looking forward to your impressions of how receptive the Canadian MS Society is today in Toronto. "Dr. Hubbard will be addressing CCSVI in MS on a panel with Drs. Sclafani, Rubin, and Selchen on June 17th" (hubbardfoundation,blogspot.com) ...
by Rompers
Wed Jun 15, 2011 10:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post here if you can send out this link
Replies: 5
Views: 1675

I have sent emails to our Canadian Health Minister, my Ontario Health Minister, the Premier of Ontario and a family friend who is an MP in the Canadian Government. As well I have sent a copy of the email letter to our local newspaper, a copy to to CIRA (Canadian Interventional Radiology Association)...
by Rompers
Tue May 17, 2011 6:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ASPRIN
Replies: 26
Views: 4203

DrS ...should all of your patients begin taking the low dose aspirin immediately following our procedures, as I confess that Gene and I both thought the use was to commence following Arixtra as well.

Rhonda
5/3/11

With a penny in my pocket!
by Rompers
Sat Apr 16, 2011 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure w/ Dr. Sclafani 4/1/11
Replies: 22
Views: 4098

Dr. Sclafani wrote:

"That is why you should choose an experienced interventionalist specializing in endovascular treatments"

....and those reasons were why I chose you!

See you May 3rd!!

Rhonda
(still calm)
by Rompers
Fri Mar 18, 2011 8:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 36982

Holly, I feel the same as Angie. I was looking forward to meeting you too, after your kind and patient, assistance to me.

May good wishes follow you were ever you go.

Rhonda
by Rompers
Tue Jan 04, 2011 11:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 36982

Appointment Notice?

Holly, I happened upon Dr. Sclafani's post on the American Thanksgiving Day that he was recommencing practice and immediately sent a request for a "date" with him! A couple of weeks later I applied to AAC as well. (as Chicago is closer) Is this "way too soon" to expect a reply for Dr. Sclafani given...
by Rompers
Sat Dec 11, 2010 9:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Facebook CCSVi
Replies: 13
Views: 2629

I visit thisisms and am following "Dr. Sclafani answers some questions" religiously, ...and I use Facebook - CCSVI in MS, CCSVI in MS Toronto/London daily as well, for info and for the active pulse of the items being written/discussed so passionately. These different sites provide varying views/insi...
by Rompers
Thu Aug 05, 2010 9:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does anyone with CCSVI have 'super hearing' ?
Replies: 24
Views: 5073

I have always thought it was "just me". But perhaps the super hearing issue makes sense. Even when I was a child, I would try to use a pillow to block noise, so I could get to sleep at night. A dripping tap at night will drive me to get up and shut if off, even though my husband and boys cannot hear...
by Rompers
Mon Jul 26, 2010 6:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1761625

Dear lifeisgood, I know what you are talking about!! I too have had 2 repeats of that same type of situation. Mine occurred after sitting through a local theatre (two hour) production. These instances were times that I did not stand/leave for the intermissions. It seemed miraculous that my legs (rig...
by Rompers
Tue Jul 06, 2010 3:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1761625

Dr. Sclafani, may I inquire as to who may be on you invite list? Not by name but generally speaking. I am also curious to know if your invitations are being extended to other countries, and especially your neighbouring Canadian Neurologists/IRAs/VSs? Or is this a specific "think tank"? And as Donnch...

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