Search found 16 matches

by butterfly
Wed Sep 06, 2006 6:46 pm
Forum: Antibiotics
Topic: copaxone with abx and other questions
Replies: 5
Views: 3223

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by butterfly
Wed Sep 06, 2006 6:46 pm
Forum: Antibiotics
Topic: copaxone with abx and other questions
Replies: 5
Views: 3223

Hello Sarah, Thanks for your reply. The ANA was to check out other possible auto-immune problems. I mentioned to my neuro that I had a lot of morning stiffness and fatigue and generally felt much better later in the day (not typical for MS). Also, my Dad has recently been dx with Sjogren's. She thou...
by butterfly
Mon Sep 04, 2006 6:13 am
Forum: Antibiotics
Topic: copaxone with abx and other questions
Replies: 5
Views: 3223

copaxone with abx and other questions

I think this has already been addressed, but just to clarify: is there any reason the abx protocol can't be intiated while also on copaxone? Are there any contraindications or other reasons why this would not be advisable? A little background: I was dx in Dec. '03 at age 34 (but had symptoms at leas...
by butterfly
Mon Sep 04, 2006 5:40 am
Forum: Copaxone
Topic: Trying to conceive and Copaxone
Replies: 13
Views: 24235

copaxone and pregnancy

Hi. I was on copaxone and wanting to get pregnant. My neuro said absolutely not and wanted me off it for three months before trying. But the drug-rep people at copaxone were very helpful and sent me info they have showing little to no risks (you may have already recieved it). Also, my ob sent me for...
by butterfly
Fri Apr 28, 2006 6:11 am
Forum: General Discussion
Topic: Family/Celiac/multiple sclerosis
Replies: 16
Views: 5843

Certainly be tested and get the whole panel not just the antigliadin antibody test ( which many doctors will do as a first pass test) esp in the US where diagnosis of this is terrible), you need to know about the feedback on the antitissue transglutaminase. Marie, Could you state specifically what ...
by butterfly
Sat Apr 02, 2005 1:05 pm
Forum: Regimens
Topic: Daunted's antibiotic log
Replies: 121
Views: 39695

more on butterfly

Thank you so much for your QUICK and thoughtful responses! I can't tell you how much I appreciate your compassion and expertise. The odd thing about the zithromax was the twitching and other mild but unusual (for me) symptoms I had before the onset of the numbness, etc. Most of my relapse symptoms a...
by butterfly
Sat Apr 02, 2005 6:51 am
Forum: Regimens
Topic: Daunted's antibiotic log
Replies: 121
Views: 39695

zithromax?

I see posted that the current protocol for CPn eradication from Vanderbilt, released by Dr. Charles Stratton for compassionate use, recommends the use of Amoxicllin, Zithromax (azithromycin), and Rifampin, with pulses of Flagyl (metronidazole). I have a question about the use of azithromycin.....I t...
by butterfly
Mon Mar 14, 2005 7:53 am
Forum: Copaxone
Topic: copoxone and pregnancy
Replies: 0
Views: 3369

copoxone and pregnancy

Does anyone have any experience or insight regarding taking copoxone throughout pregnancy? Any information or insight would be appreciated.

Thanks.

Christy
by butterfly
Mon Mar 14, 2005 7:48 am
Forum: Antibiotics
Topic: New data on Chlamidia presence in MS
Replies: 5
Views: 3436

IgG and IgM

Please forgive me for asking a question that has no doubt already been addresses in this extensive wealth of information about antibiodics and Chl.pn. But here's my question: After a mild sinus infection in January which was treated first with amoxocillin and then zithromax I had an MS relapse -- mo...
by butterfly
Thu Sep 23, 2004 6:12 pm
Forum: Antibiotics
Topic: Chlamydia pneumoniae: the possible cause of MS?
Replies: 129
Views: 46858

questions, questions, questions

Hello All: This discussion is fascinating! Thank you so much to all who are willing to share their knowledge and experiences. I have a few questions and comments. Questions first. Please forgive me if they've already been covered. Sometimes I need to have things explained more than once.... :wink: 1...
by butterfly
Mon Aug 30, 2004 7:51 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: A desperate mother searching for hope!
Replies: 5
Views: 3956

Lap, I no so little about this disease compared to many of the other immensely knowledgable people in this forum. However, you mentioned she improved during her pregnancies -- I don't know how much, but I wonder if there is anyone (MD) who might explore the hormone link with her. You might investiga...
by butterfly
Mon Aug 30, 2004 7:38 pm
Forum: Antibiotics
Topic: minocycline
Replies: 64
Views: 31005

Cathy, I still have a three month supply in my kitchen cabinet....(no one asked for it back when I dropped out of the study). I suppose I could just take it for awhile, and in fact I did for a week in July. It makes me a little woozy, but I believe that would go away if I took it long enough (back i...
by butterfly
Sat Aug 14, 2004 8:27 pm
Forum: General Discussion
Topic: Team Project: List of every MS Treatment currently in trials
Replies: 37
Views: 13389

Name of the drug/compound: Avonex plus minocycline Manufacturer: Teva pharmaceutics (Copaxone), Wyeth (minocycline is a generic drug, so there might be also other manufacturers) Trial location: Creighton University, Omaha, Nebraska FDA phase: II Treatment for: Disease progression Intended for RRMS M...
by butterfly
Fri Aug 13, 2004 7:47 pm
Forum: Antibiotics
Topic: minocycline
Replies: 64
Views: 31005

Finn asked: That is interesting. Just out of curiosity, was that an official study or a small scale experiment? I'm not sure of the official distinction between "official study" and "small scale experiment," but I think it was "official." At any rate, I believe it was f...
by butterfly
Thu Jul 29, 2004 8:35 pm
Forum: Antibiotics
Topic: minocycline
Replies: 64
Views: 31005

Hi: For what it's worth, I was (briefly) in a study pairing minocyline and avonex. I had to drop out as I did not tolerate the avonex. I recently visited with my doctor and he mentioned a study with minocycline and copoxone going on in Canada right now. He said he suspects the minocycline could stan...

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