Search found 85 matches

by LivabirdsHubbie
Fri Jul 08, 2011 7:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 13859

Re: Mr success

Nice try If that is all it took to get Arata on Tims.... He is not interested enough in his clients, To come and be real. He doesn't have the integrity of a Sclafani. Narcissists only come out to brag Egotists come out to say they are the best in the world. Words are easy. Actions not so much. He w...
by LivabirdsHubbie
Fri Jul 01, 2011 7:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

quick update...

We arrived safe and sound in California after a 12 hour flight. Settled in quite nice, Patrick picked us up at LAX, what a great guy... Jayne met with Dr Hewett yesterday where he went over her scans from Poland and Bulgaria. He showed us where her azygos was damaged in Bulgaria, but was hopeful tha...
by LivabirdsHubbie
Fri Jul 01, 2011 7:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 40516

I'm betting it was Arata. Isn't he the most experienced? And I bet Hewitt was in the room also! I'd also speculate that he did not have any stents placed or they probably would not have risked the MRI - not worth nudgin newly deployed stents around with those magnetic fields, right? So he likely ju...
by LivabirdsHubbie
Tue Jun 28, 2011 4:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

1 day to go

Well, almost time, we fly out tomorrow.... procdure on Friday
Will keep you posted on how it goes... as usual pictures will be posted on FB
Fingers crossed 3rd time lucky
by LivabirdsHubbie
Wed Jun 22, 2011 8:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

7 days and counting

Well this came up fast, 7 days until we leave, well hopefully... As you all know the issues with Poland and then Bulgaria... and now the Virgin Atlantic pilots have voted 98% to strike, and yes you guessed it we are flying with Virgin !!!!!!!!! First time we have flown Virgin, first time they have e...
by LivabirdsHubbie
Wed May 18, 2011 8:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

clarify

just let me clarify.. by volcano i mean volcano, we had to pack the car and drive from the uk to Poland because all flights were grounded..... by robbery i mean robbery, my wallet was stolen from the hospital our first day there and we were left with no cash or credit cards, don't get me wrong Prof ...
by LivabirdsHubbie
Wed May 18, 2011 6:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

Thanks LR1234, i felt the same way...
We are still advocates for the procedure, otherwise i would not have remortgaged my house to raise the money to take my wife to California
by LivabirdsHubbie
Wed May 18, 2011 4:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

what was rude aries78

Are you referring to the robbery or the fact there were no benefits....
I don't actually think either are rude...

I know many have had benefits, my wife did also have improvements after Poland, just nothing from Bulgaria...

If you don't want to hear the truth don't read the post
by LivabirdsHubbie
Wed May 18, 2011 3:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabirds California Adventure
Replies: 15
Views: 3752

Livabirds California Adventure

Hello to all our old TIMS friends. We are back, sorry it has been so long, since Oct'10 when we went to Bulgaria..... So just a quick update ... Livabird is not doing well at all after Bulgaria, she had no benefits at all and is in fact worse than ever... We have now decided that she will be third t...
by LivabirdsHubbie
Tue Oct 12, 2010 8:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Would you do it again?
Replies: 35
Views: 7551

Yes and in fact Liva just did in Bulgaria, procedure was last Thursday.
Would we do it a third time if necessary, well that depends on the results this time, so far very little changes, some but little...
We will be patient as she has PPMS and has had it for 30 years
by LivabirdsHubbie
Tue Oct 12, 2010 7:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 30301

scorpion wrote:
garyak wrote: I said nothing in my post about Barb so I have no clue whaqt the caring guy comment was all about.
All this topic is about how Barb is doing, might not be my place but can we stick to this and see how Barb is doing....
by LivabirdsHubbie
Mon Oct 11, 2010 5:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: IRISH TIMES Coverage - It is finally getting out
Replies: 4
Views: 1761

no matter whether it is a report or a letter from a MS patient, if it is published in the paper, that is what matters
by LivabirdsHubbie
Mon Oct 11, 2010 1:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MSS study grants
Replies: 34
Views: 4694

Re: MSS study grants

Team doing this study is: Additional Personnel (all are affiliated with The Ottawa Hospital, the Ottawa Hospital Research Institute and the University of Ottawa):  Dr. Ian G. Cameron, Department of Diagnostic Imaging (MRI Unit)  Dr. Matthew J. Hogan, Division of Neurology  Dr. Mark E. Schweitzer...
by LivabirdsHubbie
Sun Oct 10, 2010 10:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Livabird's Bulgaria Adventure
Replies: 46
Views: 9622

Just one more quick update, Liva is doing very well, tired as we did lots yesterday. Prof G came to see us this morning, moved us to the private room until we go back on Thursday, lovely room. He also is arranging Physiotherapy each day for Liva until we return... absolutely fantastic. So we have no...

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