Search found 26 matches

by tiredloulou
Fri Jun 17, 2011 4:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: update on the meeting in Toronto M.S. society ??
Replies: 23
Views: 4581

update on the meeting in Toronto M.S. society ??

looking forward on hearing how this all went......... hoping for open minds , know Rubin was not into it I had my doctor call his office for my follow up appointment after my procedure told Not necessary, unless i was having medical problems and then, he would not refuse ...........da da...............
by tiredloulou
Tue May 17, 2011 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1637728

ccsvi- medication on follow up?

my ccsvi treatment was 6 months ago 1 stent I just had ultra sound last follow up..........all appeared to be good( and it was the zamboni outline of ultra sound done in toronto but, reading about the poor follow up's we do have, to none in canada makes me wonder if I should request script from my f...
by tiredloulou
Tue May 17, 2011 2:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1637728

medication, after ccsvi, Dr. S. question?

my follow up was to take 1 aspirin daily...........
no mention or script of plavix or?

since the only follow up is my family dr.
should I be requesting to be placed on plavix?
due to stent
and procedure..
by tiredloulou
Sun May 15, 2011 5:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who has had angioplasty and stopped drug treatment?
Replies: 26
Views: 4131

M.S. medications..........

I have been on rebief for the past 7 yrs..........copaxon before that for 1 I choice to stop injections , after my ccsvi treatment......... I just had my 6 month follow up, results to be given this week feeling good, balance improved. cognitive improved, fatique has not return as of to date if menta...
by tiredloulou
Mon Mar 28, 2011 2:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Alberta MS Society says "We are sorry"
Replies: 50
Views: 7128

election time for Canadians..........

definitely you know the math into this time of elections, Pattycakes ..... it is now our time to vote and support our cause the handling of ccsvi with our m.s. society was the most unprofessional move they have made in our time era......... their lost of funds from msers / family/ friends to give no...
by tiredloulou
Mon Jan 31, 2011 7:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 120560

Cece's treatment

amazing, look at all the good wishes , all the hard work and homework you did for us will pay off for you

your an inspiration............only good

lou
by tiredloulou
Wed Jan 12, 2011 2:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4468

re- stents used in ccsvi treatment

no
no
no

just had dopler ultra sound, 3 month check up
all is good so far..........

improvements definitely..............
by tiredloulou
Sat Dec 18, 2010 2:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: pacific interventionalists poll
Replies: 25
Views: 6125

pacific Interventionalist-

no stenois to date...........2 months when I asked, Dr.Arata about follow up his answer was, you will know, compare it to the before and after effect...... if your symptoms return, .........then you re-stenoised I asked about, Ultra sound, etc for follow up..........he shoke his head not necessary B...
by tiredloulou
Fri Dec 17, 2010 10:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up on ccsvi- in ontario- Niagara region
Replies: 3
Views: 1445

follow up on ccsvi- in ontario- Niagara region

There is a clinic called, Niagara vascular lab, for imaging, dopplers etc 2 vascular Drs, involved with it A doppler ultra sound was ordered for a follow up asking for, doppler on left IJV, re- stent after, their booking clerk asked my doctors nurse questions on where and why/ who did this treatment...
by tiredloulou
Sun Dec 12, 2010 6:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3738

follow up in Ontario

Well, I did what was suggested here on getting a simple doppler follow up
I went to our ER........headache, chest pain........
told them, had high blood pressure/ stent

they did a cardio-gram and sent me home..........
oh, and said, I might have a pinched nerve.........
by tiredloulou
Fri Dec 10, 2010 1:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3738

ccsvi follow up

oh, I am not finished with this from our gov't......... and, if need be, I will cross the border and take care of it in Buffalo NY and pay then, visit our newspapers....... grease that wheel........ laughing, it all makes us stronger as a unit......... and I am stronger from my treatment ...
by tiredloulou
Fri Dec 10, 2010 12:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: follow up after ccsvi treatment
Replies: 19
Views: 3738

follow up after ccsvi treatment

I have a great family doctor, supporting my decision on my ccsvi treatment being from Ontario Canada.............we all know, I had to go out of country for this I am now trying to get a follow up ultra sound doppler They have contacted me, that they do not know how to do the Zamboni protocol so she...
by tiredloulou
Tue Dec 07, 2010 6:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Tracking
Replies: 7
Views: 2276

change in voice and swallowing

yes, my voice had changed, right after my procedure it was noticed by, 3 diff friends on phone 1 girl who attended my treatment it has been 1 month now, and all my positive effects are hanging tough fatigue pain swallowing much better balance( amazes people who know me) starting to work out at the Y...
by tiredloulou
Wed Nov 10, 2010 6:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Hewett at Pacific Interventionalists
Replies: 9
Views: 2937

Dr.Arata.....ccsvi

I just got home 2 weeks ago Dr.Arata did my treatment office is professional, and busy...... all is on time explained well no pain medication is given to calm you during procedure IV 1 location for test the treatment 45 minutes away........bring GPS 1 stent needed the other ballooned Do not leave wi...
by tiredloulou
Wed Nov 10, 2010 4:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a Doctor recommended to me today..
Replies: 5
Views: 1951

ccsvi update on treatment- 14 days later

I am feeling much stronger, very noticeable using a walker in house 100 feet x 3 rounds a day free-standing comfortable on balance issues, no holding hands out no holding on to something the triple swallow, which happens occasionally in past gone fatique.......gone good sleep people are amazed when ...