Search found 64 matches

by hargarah
Fri Jun 07, 2019 7:56 am
Forum: General Discussion
Topic: Experimental Tongue Therapy Helps Restore Brain Function
Replies: 62
Views: 5393

Re: Experimental Tongue Therapy Helps Restore Brain Function

I called Apollo in Ottawa and they said they should have the PoNS devices in stock by August. They put me on "the list". I also heard that the cost is around $30,000.00! This is really insane. I mean is the device made out of Gold or Platinum? Finally there is a treatment that helps and they price i...
by hargarah
Tue Jul 24, 2018 2:33 pm
Forum: General Discussion
Topic: Pay it forward
Replies: 3
Views: 617

Re: Pay it forward

Ask the drug companies to reciprocate this concept please! Stem Cells would be light years ahead :)
by hargarah
Wed May 02, 2018 6:29 am
Forum: General Discussion
Topic: Constipation
Replies: 18
Views: 1505

Re: Constipation

SENAKOT

Number one for this problem!

I take 6 of them. Always works!

You need something with SENA in it, Trust me!
by hargarah
Thu Nov 02, 2017 8:33 pm
Forum: General Discussion
Topic: youtube video: AHT (Autohemotherapy)
Replies: 6
Views: 856

Re: youtube video: AHT (Autohemotherapy)

All I know is my neurologist told me to never go outside of Canada for stem cell treatment. He said that Canada has the best stem cells in the world and there is no other country with the same type of quality. Otherwise stated, having stem cell treatments of any kind in other countries can be a very...
by hargarah
Tue Oct 31, 2017 7:15 am
Forum: General Discussion
Topic: Really struggling with everything
Replies: 46
Views: 2362

Re: Really struggling with everything

There is a simple response to,your post: SUCK IT UP! I was diagnosed with MS at 19 and am 42 now. I did two degrees, including a Masters Degree. I make a six figure salary and still date and just came back from a 5 star resort in Mexico. Sure...life is harder...but that is the whole point of this li...
by hargarah
Tue Sep 05, 2017 5:24 pm
Forum: General Discussion
Topic: Totally Confused
Replies: 4
Views: 703

Re: Totally Confused

1) It is very difficult for any of us to interpret the results...especially if you're Doctor cannot or did not. 2) If you have a couple of obvious MS signs, like a shock in your spine when you bend your neck forward or vision problems...it would be easier. 3) Although I'm not too fond of neurologist...
by hargarah
Sun Jul 23, 2017 5:07 pm
Forum: General Discussion
Topic: Bladder Issues
Replies: 15
Views: 1616

Re: Bladder Issues

I would consider the use of a catheter. It makes life a lot more simpler. There will come a time when your urine will just not leave your bladder at all...as there is no synergy with the brain telling it to void.
by hargarah
Fri Jan 13, 2017 8:03 am
Forum: General Discussion
Topic: Two pharmaceutical giants join forces to develop treatment..
Replies: 1
Views: 631

Re: Two pharmaceutical giants join forces to develop treatme

Oh wow...how nice of them! Two Big Pharma Giants want to make a difference in the lives of PWS and other sufferers. God bless their black harts . Question: Why don't they join forces and work on stem cells...so they can REALLY make a difference!!?? Answer: There's NO $$$$ in it, because it cannot be...
by hargarah
Fri Dec 16, 2016 11:33 am
Forum: General Discussion
Topic: Amitriptyline for spasticity?
Replies: 6
Views: 1147

Re: Amitriptyline for spasticity?

It is a "Cheap Man's Drug", because it has been around for decades, But it is the BEST for pain! Viagra is meant for the Heart, but they found it has Other Uses! Take it at a low dose and it is amazing for pain. Max of 125mg per day. Neurological pain is the hardest to treat. Even Opiods are often i...
by hargarah
Wed Nov 23, 2016 7:42 am
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrelizumab (Ocrevus) safety footprints create real worries
Replies: 3
Views: 3388

Re: Ocrelizumab (Ocrevus) safety footprints create real worr

Professor Mark Freedman!!?? He is an egomaniac with his own agenda. Don't believe one word that comes from this moron. When he has an orgasm, he screams out his own name! If he is airing out any balanced information, it is because he is trying to get MSers on other drugs which he is a proponent of (...
by hargarah
Mon Oct 03, 2016 9:29 am
Forum: General Discussion
Topic: Lyrica?
Replies: 6
Views: 2343

Re: Lyrica?

It was a miracle drug for me. I am on the max dose: 300mg in the morning and at night. It changes the signal and "type of pain". I used to have such a "burning in my legs"...that I couldn't wear pants (only shorts) and a day at the office in a suit was hell! Lyrica changed the pain to a "Yucky.. not...
by hargarah
Tue Aug 23, 2016 6:25 am
Forum: General Discussion
Topic: THERE IS NO MONEY IN THE CURE!
Replies: 17
Views: 2156

THERE IS NO MONEY IN THE CURE!

Day after day, I read through MS chat rooms, to find something that would give me hope...but it has been over 20 Years that I have had MS, and the truth is that NOTHING works and that NOTHING new has been developed. I am still on the some interferon, not because it works, but because it is profitabl...
by hargarah
Fri Jul 15, 2016 9:06 am
Forum: General Discussion
Topic: Slow thinking and reasoning.
Replies: 11
Views: 1197

Re: Slow thinking and reasoning.

I think this may have nothing to do with MS and is rather a marital problem. 1) You are getting older 2) Maybe you are slow 3) Maybe he is an ego-maniac...In any case, you may find with MS and some medications, that your memory is not as good in certain parts of the day. With me and Lyrica...I forge...
by hargarah
Wed Jul 06, 2016 7:56 am
Forum: General Discussion
Topic: Male Cath Question....
Replies: 7
Views: 1771

Re: Male Cath Question....

1) You probably have a UTI. If you have neuro pain and it has increase, this is also a sign. I would get on CIPRO as quick as possible 2) I cath 4 times a day, and haven't had a UTI in 5 years (seems incredible). I found the key is to have immaculately clean hands. I use a 70% alcohol-based hand san...
by hargarah
Thu Apr 07, 2016 7:09 am
Forum: General Discussion
Topic: Steroid pulse on SPMS (no relapse), reason for improvements?
Replies: 19
Views: 1568

Re: Steroid pulse on SPMS (no relapse), reason for improveme

The correlaton of the MRI to actual MS Symptoms is about 30%. Otherwise stated, the MRI and related plaques/lesions only help to tell 30% of the story. There are so many other things going on in the brain that are unknown and that is why you can be PPMS/SPMS and have no worsening lesions...but have ...