Search found 10 matches

by ccsviadvocate
Thu Jul 29, 2010 4:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any place in South FL for CCSVI test?
Replies: 34
Views: 10391

I am waiting to hear back for an appointment date for my husband which would be wonderful. Again it is only about 45 minutes from our house and my husband is dreading flying.

Cannot wait to get a date!!!!
by ccsviadvocate
Thu Jul 29, 2010 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 month update
Replies: 15
Views: 6189

Hi Sofia, great to hear that you are slowly getting back to a normal life and enjoying yourself. I hope that things get better and better.....
by ccsviadvocate
Thu Jul 29, 2010 3:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Excited, numb, scared, you name it -- liberation today!!!!!!
Replies: 102
Views: 23105

Thank you Bluesky for such a great description of what you went through. It really helps to know that goes on and what to expect. I don't have M.S but my husband does. We are on the waiting list for the procedure and cannot wait for it to happen. I think it will be like a second birthday for him.....
by ccsviadvocate
Mon Jul 26, 2010 4:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 225080

Congratulations Trish317 your dear man is going to be liberated on our Wedding Anniversary. I know how you feel about trying to keep expectations low, I am the same. I want to shout from the roof tops but again I realise that with my husband the results might not be dramatic. He was dianosed in 2002...
by ccsviadvocate
Mon Jul 26, 2010 10:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI: Rant about neurologists
Replies: 31
Views: 8695

Hi, I just wanted to take a moment and agree that most neurologists are very bad when it comes to thinking outside of the box. Every neurologist that my husband has been to has been about pushing the medications and interferon's. Each interferon that my husband tried in fact made his M.S worse but t...
by ccsviadvocate
Mon Jul 26, 2010 9:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 225080

I just wanted to take a moment to thank all of the wonderful people that have taken a moment out of their day to contact me with information for my husband. I am going to hit the phones and do some work and I could not have done it without all of the great information that everyone has shared. What ...
by ccsviadvocate
Fri Jul 23, 2010 8:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 225080

Hi Everyone, I called Albany three days ago and received a call for information today. I was really happy as my husband went to the Doctor and I was going with him but decided to stay home in case they called. My son took him instead, so needless to say I was really relieved that I heard back. I wou...
by ccsviadvocate
Fri Jul 23, 2010 9:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 225080

Yay, just wanted to say that the Albany office called back and I was home and they took my husband's information down. They say at this point that it will be about December time for his appointment.

Still a long way away but I am happy and thrilled. Doing a happy dance!!!!!
by ccsviadvocate
Fri Jul 23, 2010 9:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 225080

Thank you jcher for getting back to me it is so appreciated. I have for the last while sat down finally and read through all 34 pages of post and was able to get a lot of information that everyone was kind enough to leave. I have called Siskin in Albany and also Haskel and left our number. So now al...
by ccsviadvocate
Wed Jul 21, 2010 7:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 225080

Hello, I am completely new to all of this but have been earnestly reading all about CCSVI for my husband who is about a 7.5 on the M.S scale. I have him on a waiting list for Bulgaria but he is desperate to get the treatment here in the U.S. If any of you could give me the name of a Doctor performin...

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