Search found 102 matches
- Fri Oct 12, 2018 8:02 am
- Forum: Ampyra (Dalfampridine)
- Topic: generic dalfampridine
- Replies: 1
- Views: 11180
generic dalfampridine
Does anyone know if the generic ampyra can be purchased yet in the US. I read where Mylan has brought it to the market this month.
- Tue Oct 13, 2015 5:55 am
- Forum: Biotin (Qizenday, Cerenday, MD1003)
- Topic: Biotene - diahrea?
- Replies: 10
- Views: 6583
Re: Biotene - diahrea?
I am a member of the facebook for Biotin & spasticity seems to be a very common side effect. I also have this normally as a MS side effect so I was frustrated when it got worse after the biotin. I can say mine has lessened some after 3 mos. on it. So many of us have positive results on bladder i...
- Mon Oct 12, 2015 12:32 pm
- Forum: Biotin (Qizenday, Cerenday, MD1003)
- Topic: Biotene - diahrea?
- Replies: 10
- Views: 6583
Re: Biotene - diahrea?
3 mos. on biotin. Only problem is the stiffness many of us encounter taking it.
- Sun Oct 04, 2015 6:22 am
- Forum: Undiagnosed
- Topic: Seeking guidance—what testing should I have done?
- Replies: 9
- Views: 2275
Re: Seeking guidance—what testing should I have done?
Wobblylegs or Jimmylegs--Would you mind if I ask if wobblylegs is a female. I was comparing her test results for HGB & HCT and noticed the guidelines were different then what I was given. I am a female & told my HCT of 45.5 was high & HGB of 15.2 was high. She mentioned I might have poly...
- Tue Jul 14, 2015 7:05 am
- Forum: Biotin (Qizenday, Cerenday, MD1003)
- Topic: VITAMIN B7 FOR PMS
- Replies: 13
- Views: 7514
Re: VITAMIN B7 FOR PMS
Thanks--Yes I am a member. Appreciate your help though.
- Tue Jul 14, 2015 5:54 am
- Forum: Biotin (Qizenday, Cerenday, MD1003)
- Topic: VITAMIN B7 FOR PMS
- Replies: 13
- Views: 7514
Re: VITAMIN B7 FOR PMS
Hi Seeva. I can't open the website. Says page not found. I'm interested in reading it since I will be starting Biotin soon. My neuro didn't object but didn't no anything about the study but then he's not a MS specialist. Thanks.
- Sun Apr 12, 2015 12:57 pm
- Forum: General Discussion
- Topic: Any one have neck pain?
- Replies: 2
- Views: 1318
Re: Any one have neck pain?
I have numerous bouts with severe neck & back pain including intense spasms. I have multiple cervical spine lesions. In the beginning I would use Aleve & a heating pad but it would take days for relief. At one point I ended up in ER as it moved to my shoulders & I thought I might be havi...
- Wed Mar 26, 2014 12:22 pm
- Forum: Ampyra (Dalfampridine)
- Topic: Too expensive
- Replies: 8
- Views: 6683
Re: Too expensive
I will be losing my private insurance & will be going with a plan where medicare d is used for prescriptions. They have terrible coverage for ampyra. Does anyone know the requirements for ampyra assistance when on medicare d & not private insurance?
- Tue Jan 28, 2014 6:29 am
- Forum: MS in the Golden Years
- Topic: Shingles Vaccine ???
- Replies: 4
- Views: 9215
Re: Shingles Vaccine ???
I had the shingles shot a couple of years ago with no reaction at all. Shingles seem to run in my family & my neuro said it would be fine to get it. It went well.
- Thu Aug 08, 2013 12:55 pm
- Forum: Drug Pipeline
- Topic: SPMS drug?
- Replies: 0
- Views: 1930
SPMS drug?
Is anyone aware of any drug being used for spms?
- Wed Jan 16, 2013 6:15 pm
- Forum: General Discussion
- Topic: Influenza Vaccination?
- Replies: 15
- Views: 3308
Re: Influenza Vaccination?
I have asked numerous times & my neurologist has told me it's perfectly fine to get the flu shot. I am a firm believer in it this year for sure as my 30 yr. old niece is comatose & in critical condition with pnemonia after contracting influenza a. So sad to see.
- Wed Aug 29, 2012 6:53 am
- Forum: General Discussion
- Topic: Reclast
- Replies: 0
- Views: 1065
Reclast
Has anyone had any experience with the Reclast infusion (once a year infusion for osteroposis)? Wondering if it has any negative effects on the ms. Thanks.
- Tue Jul 24, 2012 10:43 am
- Forum: General Discussion
- Topic: Anyone with MS received vaccines after DX
- Replies: 14
- Views: 3317
Re: Anyone with MS received vaccines after DX
I have the flu shot yearly & this past year a shingles shot. No reaction from the MS side.
- Thu Jan 19, 2012 6:53 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How are you doing since treatment??
- Replies: 35
- Views: 7439
Re: How are you doing since treatment??
It's been 1 yr. & 2 months for me. I had a complication from the procedure so I was pretty stressed. I am SPMS & the only positive result were no more sinus issues. Actually, because I was pretty stressed the numbness got worse & my walk & balance deteriated. Since insurance has deni...
- Sun Dec 25, 2011 4:37 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Merry Christmas and a HAPPY NEW YEAR to all of us!
- Replies: 12
- Views: 2180
Re: Merry Christmas
Cece--Merry Christmas & thanks for all you do to keep us informed everday. Your optimism & compassion is so uplifting giving us all hope for a better tomorrow. Hope you & your family had a great Christmas. God Bless!