Search found 12 matches

by Nola
Thu Jun 30, 2011 6:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Monkeys with MS
Replies: 16
Views: 4011

can these monkeys communicate? how do they FEEL about their illness?

do their human handlers have ms too?

what is their diet?

oh, everyone will want to get their paws on these monkeys.
by Nola
Thu Jun 30, 2011 5:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370540

Dr. Sclafani, if everyone could be so healthy as you, the whole world would be a happier place. Reading your posts helps me learn, gives me hope, and makes me laugh. Wishing you all the continued health and happiness. Thank you again for turning your life to people like us.
by Nola
Thu Jun 30, 2011 5:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 12724

i wake up with blurry vision too. in the past i have had on a couple of times but not as much as iritis. i also have the deep pain inside the eyes, especially when i move them. and i have had double vision for years (always to the left, in a recent flare-up it also was when i looked up and right. ev...
by Nola
Mon Jun 20, 2011 12:00 pm
Forum: Daily Life
Topic: tired
Replies: 92
Views: 21155

then where is the place to share? there are many ms issues that are embraced and discussed, but others that are met with a thud. so if you are one of the people who experiences these issues and thoughts, where do you go?

please keep expressing yourself, if you want to, that is, if it helps at all.
by Nola
Sun Jun 19, 2011 4:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cerebral microvascular endothelium and the pathogenesis of n
Replies: 11
Views: 3659

if veins rely partly on the action of skeletal muscle, could spasticity and the use of anti-spasticity medications possibly affect this whole system?
by Nola
Sat Jun 18, 2011 5:28 pm
Forum: General Discussion
Topic: Desperate for pain relief
Replies: 11
Views: 2912

are you sure you have ms? with fevers you could have lots of other things and i am very sympathetic to having doctors blow you off because they make a judgment about you based on your appearance. no one ever takes me seriously either. i'm too quiet. anyway, that pain sounds all too familiar, and sei...
by Nola
Sat Jun 18, 2011 5:10 pm
Forum: General Discussion
Topic: Please help with Health Insurance questions
Replies: 6
Views: 2389

call the ms society for the best advice. also make sure you have life insurance and long term disability before dx. i wish i'd gotten advice when it mattered. best of luck to you at a stressful time.
by Nola
Sat Jun 18, 2011 4:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370540

Likewise to Icechick, the Crowne Plaza said to me back in May that all patient rooms were sold out for July 14 & 15. I did ask again, yesterday, and they confirmed this. If more rooms were available at a lower rate I think there would be happy people. More important, I think if Dr. Sclafani took...
by Nola
Sat Jun 18, 2011 4:30 am
Forum: Daily Life
Topic: to dream or not to dream
Replies: 4
Views: 2327

Thank you so much for taking the time to read and respond. You don't even know me but you took time to write. I think being alone is too much. No, not specifically alone, which can be a choice, but so isolated, so lonely, which is not a choice. i would not wish this on anyone.
by Nola
Thu Jun 16, 2011 1:26 pm
Forum: Daily Life
Topic: to dream or not to dream
Replies: 4
Views: 2327

to dream or not to dream

For so long I have thought, is it worth having dreams that you know will never happen? Is an unrealistic dream better than dreamless sleep? But truthfully it really is just painful after so so so long and everything that a person can lose to keep on pretending that anything will ever be any differen...
by Nola
Thu Jun 16, 2011 4:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370540

Dr Sclafani, thank you for the brilliant case studies. You could write a whole book just from this thread. Can I ask why are arachnoid granulations nothing to treat? If they are a physical structure, it seems like they would have an impact on drainage and flow. How often do you see them? Do you ever...
by Nola
Sun Apr 10, 2011 6:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2370540

Hi Dr. Sclafani. Thank you so much for offering yourself in this way.

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