Search found 13 matches

by James78
Sun Oct 03, 2010 2:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Misdiagnosis of MS??
Replies: 28
Views: 6816

very interesting thread this for me, I am in no mans land at the moment GP said MS, but a neuro (specialising in MS) took one look at me, dd some cursory tests and said no way I had it, we then had MRIs of neck, spine and brain so he could prove it and all came back clear How the heck he can be so s...
by James78
Thu Sep 16, 2010 12:17 pm
Forum: Introductions
Topic: A little advice....
Replies: 11
Views: 2882

Thankyou Mirry/ Jimmy I should add Mirry that I have bought a power juicer, I am having one a day, and apart from cleaning the damn thing its pretty hassle free and the juices taste wayy nicer than supermarket stuff.....I sneakily add in things like celery, which you cant taste because the apples an...
by James78
Wed Sep 15, 2010 12:12 pm
Forum: Introductions
Topic: A little advice....
Replies: 11
Views: 2882

Thankyou again jimmylegs So here is my 'plan' so to speak - Yoga session early am every day - Freshly made fruit juice early am (with lots of fruits with antioxidants) - 3 square meals during the day, minimise saturated fats, excess iron - No junk food, fruit only inbetween meals - Smoking given up ...
by James78
Tue Sep 14, 2010 10:50 am
Forum: Introductions
Topic: A little advice....
Replies: 11
Views: 2882

Thanks Jimmy, I will read through all of this This is very useful, but Im interested in the whole question, 'what would you do differently if you can go back to the time of diagnosis, before decline had set in'? Torn between living like a monk, and living like a crazy person and enjoying certain thi...
by James78
Thu Sep 09, 2010 11:42 pm
Forum: Introductions
Topic: A little advice....
Replies: 11
Views: 2882

Thankyou both, I am based in London, I saw a GP end of last year when first had problems who thought 'hmmm, sounds like MS'....But he sent me to a urulogist last year, who thought 'hmmm, sounds like MS' and called in a favour from a very well respected/known neurosurgeon who ordered an MRI of spine ...
by James78
Thu Sep 09, 2010 1:26 pm
Forum: Introductions
Topic: A little advice....
Replies: 11
Views: 2882

A little advice....

Hi there, my name is James, i'm 31 and based in the UK As I write this, I feel OK, in fact I havent been officially diagnosed yet, after seeing a very eminant neurologist who gave me some simple tests in his office, he told me I dont have MS, this was followed up by bloodwork and an MRI of neck, spi...
by James78
Fri Aug 06, 2010 10:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Neutral or Critical Perspectives
Replies: 185
Views: 74742

And maybe I am too new to be commenting on all this, but how come I dont see youtube videos reporting placebo affects after taking the latest 'wonderdrugs' created with loving care by our pharma companies with the neuros giving them theit thumbs up and telling us 'these will make you feel better'?.....
by James78
Fri Aug 06, 2010 5:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Passport Medical
Replies: 17
Views: 5277

out of interest, what are the general waiting times to have the procedure done in poland, bulgaria, anywhere else at the moment? If anyone could just give me a very rough idea (2 months, 6 months?)....I am relapsing at the moment and dont want to be on the phone to hospitals right now when all I wan...
by James78
Thu Aug 05, 2010 2:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI UK
Replies: 3
Views: 1484

Thankyou silverbirch, you are very kind to take the time to write to me...I have already bought a ton of vitamins based on EHC and jimmylegs advice......weird though you mention manuka honey, I have been using that for years, longtime before MS reared its head......thanks again
by James78
Thu Aug 05, 2010 5:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI UK
Replies: 3
Views: 1484

CCSVI UK

Hello all, If anyone knows of any vascular surgeons in the UK that are prepared to (and know how to) scan/ veno correctly for CCSVI I'd really appreciate a PM. If they can do the procedure even better but I know thats unlikely presently....I can be discrete if advised to be I know I have the alterna...
by James78
Sat Jul 31, 2010 2:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Visualizing iron deposition in MS cadaver brains
Replies: 48
Views: 10557

hi james LOL as i was reading your post my internal monologue was going like this: no smell (zinc).. dermatitis (zinc) ah he's got the zinc link.. and deficient - bingo. funny! yep i think there's a strong zinc-iron-ms connection. there's also a strong zinc-uric acid-ms connection. both resulting f...
by James78
Sat Jul 31, 2010 2:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Visualizing iron deposition in MS cadaver brains
Replies: 48
Views: 10557

I had test done at EHC I was pleased with results although the report was about omega levels I was told to increase Omega 3 by ??? Did you ask for a special test on zinc or did bloods just return with zinc levels ? Silverbirch[/quote] Thankyou, to be honest I just did a hometest, will get a proper t...
by James78
Sat Jul 31, 2010 6:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Visualizing iron deposition in MS cadaver brains
Replies: 48
Views: 10557

Appologies if i'm rambling, having some heavy brain fog today Just wanted to add a thought, since I can remember ive never really had anything like a sense of smell, furthermore years before I got diagnosed I ended up getting Seborrhoeic dermatitis (eased off now) which apparently 35% of those with ...

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