Search found 13 matches
- Sun Oct 03, 2010 2:10 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Misdiagnosis of MS??
- Replies: 28
- Views: 6816
very interesting thread this for me, I am in no mans land at the moment GP said MS, but a neuro (specialising in MS) took one look at me, dd some cursory tests and said no way I had it, we then had MRIs of neck, spine and brain so he could prove it and all came back clear How the heck he can be so s...
- Thu Sep 16, 2010 12:17 pm
- Forum: Introductions
- Topic: A little advice....
- Replies: 11
- Views: 2882
Thankyou Mirry/ Jimmy I should add Mirry that I have bought a power juicer, I am having one a day, and apart from cleaning the damn thing its pretty hassle free and the juices taste wayy nicer than supermarket stuff.....I sneakily add in things like celery, which you cant taste because the apples an...
- Wed Sep 15, 2010 12:12 pm
- Forum: Introductions
- Topic: A little advice....
- Replies: 11
- Views: 2882
Thankyou again jimmylegs So here is my 'plan' so to speak - Yoga session early am every day - Freshly made fruit juice early am (with lots of fruits with antioxidants) - 3 square meals during the day, minimise saturated fats, excess iron - No junk food, fruit only inbetween meals - Smoking given up ...
- Tue Sep 14, 2010 10:50 am
- Forum: Introductions
- Topic: A little advice....
- Replies: 11
- Views: 2882
Thanks Jimmy, I will read through all of this This is very useful, but Im interested in the whole question, 'what would you do differently if you can go back to the time of diagnosis, before decline had set in'? Torn between living like a monk, and living like a crazy person and enjoying certain thi...
- Thu Sep 09, 2010 11:42 pm
- Forum: Introductions
- Topic: A little advice....
- Replies: 11
- Views: 2882
Thankyou both, I am based in London, I saw a GP end of last year when first had problems who thought 'hmmm, sounds like MS'....But he sent me to a urulogist last year, who thought 'hmmm, sounds like MS' and called in a favour from a very well respected/known neurosurgeon who ordered an MRI of spine ...
- Thu Sep 09, 2010 1:26 pm
- Forum: Introductions
- Topic: A little advice....
- Replies: 11
- Views: 2882
A little advice....
Hi there, my name is James, i'm 31 and based in the UK As I write this, I feel OK, in fact I havent been officially diagnosed yet, after seeing a very eminant neurologist who gave me some simple tests in his office, he told me I dont have MS, this was followed up by bloodwork and an MRI of neck, spi...
- Fri Aug 06, 2010 10:11 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI Neutral or Critical Perspectives
- Replies: 185
- Views: 74742
And maybe I am too new to be commenting on all this, but how come I dont see youtube videos reporting placebo affects after taking the latest 'wonderdrugs' created with loving care by our pharma companies with the neuros giving them theit thumbs up and telling us 'these will make you feel better'?.....
- Fri Aug 06, 2010 5:39 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Passport Medical
- Replies: 17
- Views: 5277
out of interest, what are the general waiting times to have the procedure done in poland, bulgaria, anywhere else at the moment? If anyone could just give me a very rough idea (2 months, 6 months?)....I am relapsing at the moment and dont want to be on the phone to hospitals right now when all I wan...
- Thu Aug 05, 2010 2:21 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI UK
- Replies: 3
- Views: 1484
- Thu Aug 05, 2010 5:25 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI UK
- Replies: 3
- Views: 1484
CCSVI UK
Hello all, If anyone knows of any vascular surgeons in the UK that are prepared to (and know how to) scan/ veno correctly for CCSVI I'd really appreciate a PM. If they can do the procedure even better but I know thats unlikely presently....I can be discrete if advised to be I know I have the alterna...
- Sat Jul 31, 2010 2:21 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Visualizing iron deposition in MS cadaver brains
- Replies: 48
- Views: 10557
hi james LOL as i was reading your post my internal monologue was going like this: no smell (zinc).. dermatitis (zinc) ah he's got the zinc link.. and deficient - bingo. funny! yep i think there's a strong zinc-iron-ms connection. there's also a strong zinc-uric acid-ms connection. both resulting f...
- Sat Jul 31, 2010 2:18 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Visualizing iron deposition in MS cadaver brains
- Replies: 48
- Views: 10557
I had test done at EHC I was pleased with results although the report was about omega levels I was told to increase Omega 3 by ??? Did you ask for a special test on zinc or did bloods just return with zinc levels ? Silverbirch[/quote] Thankyou, to be honest I just did a hometest, will get a proper t...
- Sat Jul 31, 2010 6:21 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Visualizing iron deposition in MS cadaver brains
- Replies: 48
- Views: 10557
Appologies if i'm rambling, having some heavy brain fog today Just wanted to add a thought, since I can remember ive never really had anything like a sense of smell, furthermore years before I got diagnosed I ended up getting Seborrhoeic dermatitis (eased off now) which apparently 35% of those with ...