Search found 8 matches

by MsJae
Fri Sep 02, 2011 4:39 pm
Forum: General Medications
Topic: Experiences with Amantadine
Replies: 7
Views: 9100

Hi Froggie, I started Amantadine in March of this year for fatigue and yes, it made me dizzy & loopy too, but it also made me less stiff and less fatigued. However, I was noticing most of the time my heart was racing & I was freezing...I spent alot of time wearing fleece in the summer & ...
by MsJae
Tue Aug 30, 2011 3:10 pm
Forum: Novantrone
Topic: Never tested after Novantrone treatments?
Replies: 1
Views: 6310

I saw my neuro & he said he knew nothing of the tests required after the novantrone treatment, he seemed surprised when I brought up the fact that I found the info on the NMS website. Anyways. I went through all of the required tests: echo, holter monitor, ecg, lung function test, blood work, ab...
by MsJae
Mon Aug 15, 2011 12:39 pm
Forum: Novantrone
Topic: Never tested after Novantrone treatments?
Replies: 1
Views: 6310

Never tested after Novantrone treatments?

I have RRMS and my neuro agreed that Novantrone would benefit me. I went for the initial cardio testing, took 3 treatments (he wanted 6), and sent me on my merry way. That was October, November & December of 2008. The FDA sent out a notice for prescribing Drs' to test patients after their treatm...
by MsJae
Fri Sep 10, 2010 10:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Study (satire)
Replies: 64
Views: 18256

:lol: Brilliant!!!!
I can't stop laughing, and when you have MS and can't stop laughing, people laugh at you cause you start to cry and laugh at the same time.

OK, well, just me then.

:lol:
by MsJae
Wed Sep 01, 2010 1:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian experts & MS Society dismiss CCSVI therapy
Replies: 50
Views: 10405

Ms. Aglukkaq said she welcomed the resources that provinces like Saskatchewan have directed towards the issue. But Mr. Savoie said any real clinical trial would require a pan-Canadian approach involving at least 1,000 patients. "A single province, or a single site, would simply not be a way to...
by MsJae
Thu Aug 12, 2010 7:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why MSS Policy on CCSVI is Terribly Wrong & Failing Pati
Replies: 9
Views: 2549

The MS Society car will go off the road soon enough.

And we won’t have to listen to this guff any longer.
I could not agree with you any more.

We are but dollar signs to these people who claim they are helping us.

I wonder how these people sleep at night.
by MsJae
Thu Aug 12, 2010 6:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 201785

I made my initial call to Albany on July 28th. I received my phone call from Albany on August 10th. I am from Canada and totally ticked off that there is nobody in this huge, MS ridden country that will do this locally. :x I have a friend that recently returned from Albany and is doing terrific. His...
by MsJae
Sun Aug 08, 2010 6:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A treatment for multiple sclerosis that upsets Big Pharma
Replies: 108
Views: 20157

Just found this interesting site.

I was just doing some research on MS and candida and I found this gem of a site. If for any reason people have doubts as to who stands to lose the most when CCSVI is proven to work (my opinion, thanks), this should cement that fact. Take with a grain of salt, though. http://www.hendess.net/ms_e.htm ...

Go to advanced search