Search found 10 matches

by andisue50
Tue Jan 04, 2011 2:31 pm
Forum: Low Dose Naltrexone
Topic: Doctors that Prescribe LDN
Replies: 103
Views: 161732

Update - LDN from India

I wasn't able to get a local script so I ordered it from India. Came in 2 weeks and I made 50ml myself. I started at 2.5 and now am up to 4.5 which is where I'll stop. It's been a little over a month and I don't really notice anything different about how I feel but also no bad side effects, except m...
by andisue50
Sun Nov 14, 2010 6:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound Facilities in the US - is there a list?
Replies: 9
Views: 2498

I have it in a pdf file. If you PM me with your email address I'll send it to you.
by andisue50
Sun Nov 14, 2010 5:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Skeptic Mentality
Replies: 198
Views: 29062

it all reminds me of marketing class a million years ago.. adopter categories: Innovators Innovators are the first individuals to adopt an innovation. Risk tolerance has them adopting technologies which may ultimately fail. Early Adopters This is the second fastest category of individuals who adopt...
by andisue50
Sun Nov 14, 2010 5:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound Facilities in the US - is there a list?
Replies: 9
Views: 2498

Re: Ultrasound Facilities in the US - is there a list?

Yes, we need such a list, and we need it as a sticky here (and if we need to reduce or merge some of the stickies to make room for it, I'd like that too). Right now there are far too few doppler ultrasound technicians who know how to do a CCSVI doppler. And doctors who are treating CCSVI are not al...
by andisue50
Sun Nov 14, 2010 10:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Skeptic Mentality
Replies: 198
Views: 29062

Ask someone whose entire financial future is on the line if any of this involves a simple yes or no decision. I'm new to this forum and late to this thread but Lyon, I think you just answered your question. As someone who had angioplasty a month ago and has not seen any major improvements, I would ...
by andisue50
Sun Nov 14, 2010 10:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound Facilities in the US - is there a list?
Replies: 9
Views: 2498

No you are one among many since we are many treated and only have a handful of doppler places in the country that do the Zamboni protocol. Thanks for your reply - Maybe one of the forum admins can take up this project. I know on the LDN forum they have a list of doctors who prescribe and treat with...
by andisue50
Sun Nov 14, 2010 6:27 am
Forum: Low Dose Naltrexone
Topic: Doctors that Prescribe LDN
Replies: 103
Views: 161732

Just for general info, I got really tired of trying to convince my Docs to prescribe LDN for me so I ordered it from Allday Chemists (no prescription necessary) on line in the 50 mg form, bought a $3 50ml bottle and a pediatric ML syringe, mix with distilled water and good to go. It tastes terrible...
by andisue50
Sun Nov 14, 2010 5:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 201177

No significant changes for me

Hi all - I had my angio on October 7th in Florida and was told that they had cleared 3 blockages of approx. 60% in my right and left IJV and azygos. I have not had any symptomatic relief post procedure, other than for a slight improvement in fatigue (but even that may be only in my mind or attributa...
by andisue50
Sun Nov 14, 2010 5:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ultrasound Facilities in the US - is there a list?
Replies: 9
Views: 2498

Ultrasound Facilities in the US - is there a list?

Has anyone compiled a list of 'approved' ultrasound facilities in the US that know how to do the correct protocol for follow up dopplers post-agioplasty? I had my procedure done in Tampa about a month ago and have not really seen improvements. I want to have the follow up to be sure there was no res...
by andisue50
Sun Aug 08, 2010 11:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2366049

Your Decision

Wow - my first time here and I immediately saw your announcement. Can only wish you all the best and hope that your decision, while I'm sure involves much personal sacrifice, advances the acceptance of treating CCSVI. Bless you Dr. S.

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