Search found 23 matches

by debbie8067
Sat Feb 12, 2011 9:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: EHC Commences Doppler Scans in Guildford
Replies: 30
Views: 5598

Thanks for your replies. Alex (hope you don't mind m e calling you that) bladder control and lessened clonus are the two things at the top of my shopping list too! Please,please please......... Yes,I think we have tried everything going in the past 5 or 6 years! Yes,the Edinburgh clinic looks beauti...
by debbie8067
Fri Feb 11, 2011 4:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: EHC Commences Doppler Scans in Guildford
Replies: 30
Views: 5598

Patients(!) of a saint...

I was scanned on Jul 13th and have been told this morning that procedure won't be for another six weeks as they have to fit step-lift down five steps to operating theatre at Edinburgh.This was with building-control at the council for 10 weeks and the clinic have only just ordered this lift hence the...
by debbie8067
Fri Oct 15, 2010 7:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment for MS in the UK
Replies: 60
Views: 9949

Hi there.... had my positive scan at EHC on Jul 13th and still waiting for appt. date. When I spoke to the receptionist there last week re my LDN repeat script,she said that they would give us all plenty of notice so as to arrange travel etc . So it can't be much longer...... It's like waiting for C...
by debbie8067
Tue Jan 26, 2010 8:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News from Dr. Zamboni- CCSVI lesions congenital
Replies: 40
Views: 10073

At last - please,please can this be shown to and read by all the very sceptical doctors,specialists and consultants at the National Hospital in London. All I've got from them are dismissive answers( unless there are years of trials and tests) and an intrathecal Baclofen pump that was positioned wron...
by debbie8067
Sat Nov 28, 2009 4:31 am
Forum: Low Dose Naltrexone
Topic: Online LDN?
Replies: 2
Views: 2369

Thank you for that information-I really appreciate your help. At the moment,it seems that trying LDN is simpler than waiting for any medical help regarding CCSVI...... I'm lucky living in London and being treated at the National Hospital,but I have never been offered anything(because I'm SPMS) apart...
by debbie8067
Fri Nov 27, 2009 10:04 am
Forum: Low Dose Naltrexone
Topic: Online LDN?
Replies: 2
Views: 2369

Online LDN?

Hi everyone After a ton of research,my GP is very reluctant to even consider prescribing LDN. I understand her reasoning but I'm getting very desparate to start taking LDN and I wonder if anyone gets it online,or knows a London-based or UK doctor who will listen and prescribe??? Thanks so much for a...
by debbie8067
Wed Nov 25, 2009 5:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bucket of Cold Water from National Hospital doctor
Replies: 2
Views: 1689

Bucket of Cold Water from National Hospital doctor

Hey lovely people I've been around here for years and would really love some advice... During an appt for a higher dose of Baclofen in my 6month old Baclofen pump (pretty useless so far),I asked her opinion on CCSVI. She gave mr the usual "doctorspeak"reply saying that nothing was proven,much more r...
by debbie8067
Mon Feb 06, 2006 5:06 am
Forum: Regimens
Topic: Gibbledygook's antibiotic log
Replies: 466
Views: 94252

Hi Alex I burst into tears when I read your last post, because I feel exactly the same about the poisonous,thick undergrowth which I feel completely trapped on at the moment! To be getting noticeably worse each day must be due to the Tinidazole 'cos I just don't think we can deteriorate quite so qui...
by debbie8067
Fri Jul 22, 2005 8:00 am
Forum: Antibiotics
Topic: Link with asthma and chronic infections
Replies: 13
Views: 3792

Hi Sarah Due to this worsening & seemingly never-ending "relapse" or bad patch,I'm about to start an intense course of Prednisilone steroids to try and start a recovery from all this so i can begin my first pulse of Metro. I take 12x5mg per day for 5 days and have had positive results in the past. D...
by debbie8067
Tue Jun 28, 2005 8:56 am
Forum: General Discussion
Topic: Sativex
Replies: 0
Views: 1700

Sativex

Hi to everyone in Canada.
Just wondering if any of you have tried the new Cannabis derived "Sativex" yet and if so are you noticing any difference?

Would love to hear your thoughts

Debbie x
by debbie8067
Sun Apr 24, 2005 2:02 am
Forum: Regimens
Topic: Also getting better on antibiotic regime
Replies: 72
Views: 21267

Hi Phil I wish i knew!!! The aimspro started off brilliantly 15 months ago but gradually stopped making any real difference which is why I started david Wheldon's regime. Again that was giving me definite and immediate improvements. I carried on using both on david's advice as they do different thin...
by debbie8067
Thu Apr 21, 2005 6:33 am
Forum: Regimens
Topic: Also getting better on antibiotic regime
Replies: 72
Views: 21267

Hi Colin. we've never actually "spoken" but I've been following your progress avidly. I'm now at the end of my 5th month on David Wheldon's regime.(what a lovely man) Your post was so timely and almost lifesaving as I'm at such a low point physically and emotionally. After a really great start duri...
by debbie8067
Tue Feb 08, 2005 7:28 am
Forum: Aimspro
Topic: Debbie's Aimspro Story
Replies: 3
Views: 7450

Hi Philoz and Sarah To answer both of you-yes,I am still taking Aimspro as well as being in my third month of antibiotics. I asked David's (Wheldon) advice about using both at the same time,and he did not forsee any problem. My reaction to both seems to be very positive at the moment, and maybe I've...
by debbie8067
Wed Jan 26, 2005 5:32 am
Forum: Regimens
Topic: An Empirical Course Of Treatment
Replies: 9
Views: 5185

Hi Magpie so glad that you're feeling strong and well. I stared the Rifampicin yesterday and immediateley felt stronger too,although today I feel a bit nauseous and hungry at the same time! Hopefully,I'll continue to feel quite strong and I have to say that the orange wee is quite spectacular! Take ...
by debbie8067
Mon Jan 24, 2005 10:39 am
Forum: Regimens
Topic: Treating for Chlamydia pneumoniae - a possible cause of MS
Replies: 62
Views: 16686

Sarah, Forgive my being nosey, but I think the "early morning" pictures that are on the QE2 are beautiful because of their clarity and amost photographic quality. I love "clean" art, and it's very comforting to put flesh on the bones of someone to whom i am so indebted. It also helps as I'm going th...