Search found 23 matches
- Sat Feb 12, 2011 9:30 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: EHC Commences Doppler Scans in Guildford
- Replies: 30
- Views: 7171
Thanks for your replies. Alex (hope you don't mind m e calling you that) bladder control and lessened clonus are the two things at the top of my shopping list too! Please,please please......... Yes,I think we have tried everything going in the past 5 or 6 years! Yes,the Edinburgh clinic looks beauti...
- Fri Feb 11, 2011 4:34 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: EHC Commences Doppler Scans in Guildford
- Replies: 30
- Views: 7171
Patients(!) of a saint...
I was scanned on Jul 13th and have been told this morning that procedure won't be for another six weeks as they have to fit step-lift down five steps to operating theatre at Edinburgh.This was with building-control at the council for 10 weeks and the clinic have only just ordered this lift hence the...
- Fri Oct 15, 2010 7:19 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI treatment for MS in the UK
- Replies: 60
- Views: 14188
Hi there.... had my positive scan at EHC on Jul 13th and still waiting for appt. date. When I spoke to the receptionist there last week re my LDN repeat script,she said that they would give us all plenty of notice so as to arrange travel etc . So it can't be much longer...... It's like waiting for C...
- Tue Jan 26, 2010 8:35 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: News from Dr. Zamboni- CCSVI lesions congenital
- Replies: 40
- Views: 12077
At last - please,please can this be shown to and read by all the very sceptical doctors,specialists and consultants at the National Hospital in London. All I've got from them are dismissive answers( unless there are years of trials and tests) and an intrathecal Baclofen pump that was positioned wron...
- Sat Nov 28, 2009 4:31 am
- Forum: Low Dose Naltrexone
- Topic: Online LDN?
- Replies: 2
- Views: 3113
Thank you for that information-I really appreciate your help. At the moment,it seems that trying LDN is simpler than waiting for any medical help regarding CCSVI...... I'm lucky living in London and being treated at the National Hospital,but I have never been offered anything(because I'm SPMS) apart...
- Fri Nov 27, 2009 10:04 am
- Forum: Low Dose Naltrexone
- Topic: Online LDN?
- Replies: 2
- Views: 3113
Online LDN?
Hi everyone After a ton of research,my GP is very reluctant to even consider prescribing LDN. I understand her reasoning but I'm getting very desparate to start taking LDN and I wonder if anyone gets it online,or knows a London-based or UK doctor who will listen and prescribe??? Thanks so much for a...
- Wed Nov 25, 2009 5:41 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Bucket of Cold Water from National Hospital doctor
- Replies: 2
- Views: 2067
Bucket of Cold Water from National Hospital doctor
Hey lovely people I've been around here for years and would really love some advice... During an appt for a higher dose of Baclofen in my 6month old Baclofen pump (pretty useless so far),I asked her opinion on CCSVI. She gave mr the usual "doctorspeak"reply saying that nothing was proven,m...
- Mon Feb 06, 2006 5:06 am
- Forum: Regimens
- Topic: Gibbledygook's antibiotic log
- Replies: 466
- Views: 116954
Hi Alex I burst into tears when I read your last post, because I feel exactly the same about the poisonous,thick undergrowth which I feel completely trapped on at the moment! To be getting noticeably worse each day must be due to the Tinidazole 'cos I just don't think we can deteriorate quite so qui...
- Fri Jul 22, 2005 8:00 am
- Forum: Antibiotics
- Topic: Link with asthma and chronic infections
- Replies: 13
- Views: 4866
- Tue Jun 28, 2005 8:56 am
- Forum: General Discussion
- Topic: Sativex
- Replies: 0
- Views: 1975
Sativex
Hi to everyone in Canada.
Just wondering if any of you have tried the new Cannabis derived "Sativex" yet and if so are you noticing any difference?
Would love to hear your thoughts
Debbie x
Just wondering if any of you have tried the new Cannabis derived "Sativex" yet and if so are you noticing any difference?
Would love to hear your thoughts
Debbie x
- Sun Apr 24, 2005 2:02 am
- Forum: Regimens
- Topic: Also getting better on antibiotic regime
- Replies: 72
- Views: 26076
Hi Phil I wish i knew!!! The aimspro started off brilliantly 15 months ago but gradually stopped making any real difference which is why I started david Wheldon's regime. Again that was giving me definite and immediate improvements. I carried on using both on david's advice as they do different thin...
- Thu Apr 21, 2005 6:33 am
- Forum: Regimens
- Topic: Also getting better on antibiotic regime
- Replies: 72
- Views: 26076
- Tue Feb 08, 2005 7:28 am
- Forum: Aimspro
- Topic: Debbie's Aimspro Story
- Replies: 3
- Views: 9132
Hi Philoz and Sarah To answer both of you-yes,I am still taking Aimspro as well as being in my third month of antibiotics. I asked David's (Wheldon) advice about using both at the same time,and he did not forsee any problem. My reaction to both seems to be very positive at the moment, and maybe I've...
- Wed Jan 26, 2005 5:32 am
- Forum: Regimens
- Topic: An Empirical Course Of Treatment
- Replies: 9
- Views: 6054
Hi Magpie so glad that you're feeling strong and well. I stared the Rifampicin yesterday and immediateley felt stronger too,although today I feel a bit nauseous and hungry at the same time! Hopefully,I'll continue to feel quite strong and I have to say that the orange wee is quite spectacular! Take ...
- Mon Jan 24, 2005 10:39 am
- Forum: Regimens
- Topic: Treating for Chlamydia pneumoniae - a possible cause of MS
- Replies: 62
- Views: 22304