Search found 926 matches
- Tue Jan 23, 2024 4:52 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How much does Leucocyte obstruction matter?
- Replies: 7
- Views: 4126
Re: How much does Leucocyte obstruction matter?
Just for the record I got Mononucleosis in my 60's. About 20 years after the start of PPMS.
- Sun Jul 02, 2023 8:51 am
- Forum: General Discussion
- Topic: new research on EBV and MS
- Replies: 0
- Views: 1242
new research on EBV and MS
I had mono but it happened after MS started.
- Fri Jun 30, 2023 12:28 pm
- Forum: General Discussion
- Topic: Frequent UTIs
- Replies: 3
- Views: 823
Re: Frequent UTIs
I have frequent UTIs. I was hospitalized twice in the past year because of UTI. Both times my family doctor prescribed antibiotics. The next day I was so weak I couldn't get up off the floor. Ended up in the hospital for about 2 weeks both times. Recently a link was discovered between certain gut ba...
- Fri Jun 16, 2023 12:22 pm
- Forum: General Discussion
- Topic: Technology to help us walk
- Replies: 2
- Views: 971
Technology to help us walk
A Paralyzed Man Walks Again Using Device that Connects His Thoughts to His Spinal Cord Maybe this technology will help us before medical technology finds a cure. Personally I'd rather have a normally functioning nervous system. But if the technology is available I'd take it in a heartbeat. What abo...
- Sun May 21, 2023 3:09 pm
- Forum: General Discussion
- Topic: progressive relapsing MS
- Replies: 2
- Views: 1175
Re: progressive relapsing MS
Scott
Thanks for the info
Dave
Thanks for the info
Dave
- Fri May 19, 2023 2:51 pm
- Forum: General Discussion
- Topic: progressive relapsing MS
- Replies: 2
- Views: 1175
progressive relapsing MS
MS was dxed 28 years ago. I believed it was primary progressive because I never had relapses. But recently I had 2 episodes that could have been relapses. In both cases I became so weak I had to be hospitalized. Now I'm wondering if maybe i have progressive relapsing. Any suggestions as to how I cou...
- Tue Jan 03, 2023 9:12 am
- Forum: General Discussion
- Topic: Oxygen treatment
- Replies: 5
- Views: 2466
Re: Oxygen treatment
At this point I am willing to try anything even if it might be dangerous. Cure me or kill me.
- Tue Dec 13, 2022 3:37 pm
- Forum: General Discussion
- Topic: Milk
- Replies: 2
- Views: 880
Re: Milk
In plain English can anyone tell us what this means? Does milk increase or decrease the risk of MS?
- Tue Mar 29, 2022 10:44 am
- Forum: General Discussion
- Topic: Mobility Scooter or Electric Wheelchair
- Replies: 3
- Views: 1308
Re: Mobility Scooter or Electric Wheelchair
I have a 3 wheel scooter similar to the one you linked to. It works well on pavement but is tippy on the lawn. I think all 3 wheel scooters have that problem. I flipped mine twice.
I haven't tried a power wheelchair but it looks like they are considerably more expensive.
I haven't tried a power wheelchair but it looks like they are considerably more expensive.
- Sat Jan 15, 2022 5:15 pm
- Forum: General Discussion
- Topic: strong evidence about EBV involvement
- Replies: 3
- Views: 1450
Re: strong evidence about EBV involvement
Are any organizations doing research on a vaccine for this? Thanks to Trump's Operation Warp Speed the Covid vaccine was developed in 9 months whereas it usually takes up to ten years to develop a vaccine. Could that same strategy be used to develop one for the EBV virus? That would be fantastic!
- Thu Apr 01, 2021 8:43 am
- Forum: General Discussion
- Topic: Moderna vaccine
- Replies: 1
- Views: 1509
Moderna vaccine
My wife and I got the 2nd dose of the Moderna vaccine for Covic19 yesterday. I'm having soreness in the shoulder at the injection site. That was minor. But today I'm feeling very weak. This is much worse than the 1st shot. It was a struggle getting out of bed. Just for the record I have the PPMS var...
- Sun Feb 14, 2021 10:16 am
- Forum: General Discussion
- Topic: COVID Vaccine and MS
- Replies: 0
- Views: 1801
COVID Vaccine and MS
According to the National MS society's website people with MS should get the COVID vaccine . Although there are a few noteworthy comments. Source COVID-19 mRNA vaccine guidance for people living with MS People living with multiple sclerosis (MS) are seeking peace of mind on the safety and effectiven...
- Sun Jan 03, 2021 3:56 pm
- Forum: General Discussion
- Topic: PPMS & SPMS are qualitatively indistinguishable
- Replies: 3
- Views: 1528
Re: PPMS & SPMS are qualitatively indistinguishable
I'm not sure what they mean by "qualitatively indistinguishable". The simple way to tell is this: If you had relapses and remissions in the past but no longer have them and you have a continuous progression of disability then you probably have secondary progressive. If you never had relaps...
- Wed Dec 09, 2020 1:14 pm
- Forum: General Discussion
- Topic: Caring for the disabled or elderly
- Replies: 5
- Views: 2077
Re: Caring for the disabled or elderly
NHE You're right about that. I do seem to be progressing more rapidly especially now that the weather is cold and I don't get outside much. And I am spending more time sitting on my posterior instead of exercising. So I'm starting to ride the exercise bike now. Also I'll see if my doctor will prescr...
- Tue Dec 08, 2020 7:56 pm
- Forum: General Discussion
- Topic: Caring for the disabled or elderly
- Replies: 5
- Views: 2077
Re: Caring for the disabled or elderly
Thank you both for your thoughtful replys.
Dave
Dave