Search found 926 matches

by David1949
Tue Jan 23, 2024 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How much does Leucocyte obstruction matter?
Replies: 7
Views: 3920

Re: How much does Leucocyte obstruction matter?

Just for the record I got Mononucleosis in my 60's. About 20 years after the start of PPMS.
by David1949
Sun Jul 02, 2023 8:51 am
Forum: General Discussion
Topic: new research on EBV and MS
Replies: 0
Views: 1071

new research on EBV and MS



I had mono but it happened after MS started.
by David1949
Fri Jun 30, 2023 12:28 pm
Forum: General Discussion
Topic: Frequent UTIs
Replies: 3
Views: 752

Re: Frequent UTIs

I have frequent UTIs. I was hospitalized twice in the past year because of UTI. Both times my family doctor prescribed antibiotics. The next day I was so weak I couldn't get up off the floor. Ended up in the hospital for about 2 weeks both times. Recently a link was discovered between certain gut ba...
by David1949
Fri Jun 16, 2023 12:22 pm
Forum: General Discussion
Topic: Technology to help us walk
Replies: 2
Views: 911

Technology to help us walk

A Paralyzed Man Walks Again Using Device that Connects His Thoughts to His Spinal Cord Maybe this technology will help us before medical technology finds a cure. Personally I'd rather have a normally functioning nervous system. But if the technology is available I'd take it in a heartbeat. What abo...
by David1949
Sun May 21, 2023 3:09 pm
Forum: General Discussion
Topic: progressive relapsing MS
Replies: 2
Views: 1087

Re: progressive relapsing MS

Scott

Thanks for the info

Dave
by David1949
Fri May 19, 2023 2:51 pm
Forum: General Discussion
Topic: progressive relapsing MS
Replies: 2
Views: 1087

progressive relapsing MS

MS was dxed 28 years ago. I believed it was primary progressive because I never had relapses. But recently I had 2 episodes that could have been relapses. In both cases I became so weak I had to be hospitalized. Now I'm wondering if maybe i have progressive relapsing. Any suggestions as to how I cou...
by David1949
Tue Jan 03, 2023 9:12 am
Forum: General Discussion
Topic: Oxygen treatment
Replies: 5
Views: 2237

Re: Oxygen treatment

At this point I am willing to try anything even if it might be dangerous. Cure me or kill me.
by David1949
Tue Dec 13, 2022 3:37 pm
Forum: General Discussion
Topic: Milk
Replies: 2
Views: 852

Re: Milk

In plain English can anyone tell us what this means? Does milk increase or decrease the risk of MS?
by David1949
Tue Mar 29, 2022 10:44 am
Forum: General Discussion
Topic: Mobility Scooter or Electric Wheelchair
Replies: 3
Views: 1257

Re: Mobility Scooter or Electric Wheelchair

I have a 3 wheel scooter similar to the one you linked to. It works well on pavement but is tippy on the lawn. I think all 3 wheel scooters have that problem. I flipped mine twice.

I haven't tried a power wheelchair but it looks like they are considerably more expensive.
by David1949
Sat Jan 15, 2022 5:15 pm
Forum: General Discussion
Topic: strong evidence about EBV involvement
Replies: 3
Views: 1354

Re: strong evidence about EBV involvement

Are any organizations doing research on a vaccine for this? Thanks to Trump's Operation Warp Speed the Covid vaccine was developed in 9 months whereas it usually takes up to ten years to develop a vaccine. Could that same strategy be used to develop one for the EBV virus? That would be fantastic!
by David1949
Thu Apr 01, 2021 8:43 am
Forum: General Discussion
Topic: Moderna vaccine
Replies: 1
Views: 1473

Moderna vaccine

My wife and I got the 2nd dose of the Moderna vaccine for Covic19 yesterday. I'm having soreness in the shoulder at the injection site. That was minor. But today I'm feeling very weak. This is much worse than the 1st shot. It was a struggle getting out of bed. Just for the record I have the PPMS var...
by David1949
Sun Feb 14, 2021 10:16 am
Forum: General Discussion
Topic: COVID Vaccine and MS
Replies: 0
Views: 1733

COVID Vaccine and MS

According to the National MS society's website people with MS should get the COVID vaccine . Although there are a few noteworthy comments. Source COVID-19 mRNA vaccine guidance for people living with MS People living with multiple sclerosis (MS) are seeking peace of mind on the safety and effectiven...
by David1949
Sun Jan 03, 2021 3:56 pm
Forum: General Discussion
Topic: PPMS & SPMS are qualitatively indistinguishable
Replies: 3
Views: 1493

Re: PPMS & SPMS are qualitatively indistinguishable

I'm not sure what they mean by "qualitatively indistinguishable". The simple way to tell is this: If you had relapses and remissions in the past but no longer have them and you have a continuous progression of disability then you probably have secondary progressive. If you never had relaps...
by David1949
Wed Dec 09, 2020 1:14 pm
Forum: General Discussion
Topic: Caring for the disabled or elderly
Replies: 5
Views: 1911

Re: Caring for the disabled or elderly

NHE You're right about that. I do seem to be progressing more rapidly especially now that the weather is cold and I don't get outside much. And I am spending more time sitting on my posterior instead of exercising. So I'm starting to ride the exercise bike now. Also I'll see if my doctor will prescr...
by David1949
Tue Dec 08, 2020 7:56 pm
Forum: General Discussion
Topic: Caring for the disabled or elderly
Replies: 5
Views: 1911

Re: Caring for the disabled or elderly

Thank you both for your thoughtful replys.

Dave

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