This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Rhonda, I have heard the same things about calcium carbonate, so I made sure to address that point with Dr. B. He said that there is absolutely no problem with the filler. Perhaps other pharmacies (other than Park Irmet that he uses) prepares the capsules differently, which would account for the ...

Hi, hope this helps I had side effects while on LDN treatment for Multiple Sclerosis. I am 54 years old I am female I have RR/ MS for dx 3 years , but probably had it since 1979 I tried LDN for 3 months long I took 3 mg's per night I obtained my LDN from Park Irmet in NYC, started 9/04 the filler us...

Hi Bobby, I've been on 3 mg. for 3 weeks and I'm waking up constantly during the night. Unbelievably, I still feel more energetic than I did before. I just called Dr. Bihari's office, and they suggested cutting back to 2 mg for 15 days. Playing with the dose may be something you want to try. Good lu...

I started taking LDN (3mg) two nights ago and have had very framented sleep since then. I don't feel anywhere as groggy/bad as I normally would. I read that this could occur for 5-7 days initially, before good sleep patterns appear. Has anyone had this experience? I'm also feeling something akin to ...

Xenova--what amounts do you take of these supplements? And did you try LDN alone at first? I'm just about to start taking LDN and I also suffer from numbness.

Group: I've read all the responses, but I haven't heard from anyone who has actually had a consult with Dr. Bahari to see if it was felt that he brought anything special to the table. I also think $500 is too $$$, especially since I found out my insurance will not pay for phone consultations. Theref...

Hi there, This may not be new information for everyone, but I just wanted to make sure everyone was aware of this option. After being frustrated about which neuros in Chicago actually know anything about LDN, let alone prescribe it, I decided to go right to the source. I called Dr. Bihari's office a...

Hi, has anyone had any personal experience with Dr. Steven Myer or Dr.
Alan Buchman mentioned in this site? I'm looking to go for a consult.
I'm now on Avonex and I would like to try LDN without going off Avonex.
Thanks.

Hi all, I've been feeling less steady on my feet, so I went to my neuro, had a brain MRI and it showed no new lesions and that some of the lesions were actually shrinking. I've been on Avonex for 2 years. Can symptoms appear without lesion activity? Or are the lesions likely to be down my spine?

Hi, my name is Janice, I'm 53, and I was diagnosed two years ago with MS. My feet are numb and I'm a little less steady on my feet. I actually had my first bout when I was 29, but without MRIs, it was diagnosed as a virus. Had a few symptoms looking back, but didn't have anything major until 2 years...