Search found 61 matches

by surfbird
Wed Jun 25, 2014 6:18 am
Forum: General Discussion
Topic: Anyone in Charleston, SC have a doctor they like?
Replies: 0
Views: 949

Anyone in Charleston, SC have a doctor they like?

I've been to two neurologists here in Charleston and am not happy with either of them. I'd like to avoid switching every year, so I'm hoping to find some referrals to other doctors on the area. Anyone have any suggestions? I have been to MUSC and Tidewater Neurology and do not like either one. So fr...
by surfbird
Fri Aug 09, 2013 4:25 am
Forum: General Discussion
Topic: Any doctor recommendations in the Charleston, SC area?
Replies: 4
Views: 1709

Re: Any doctor recommendations in the Charleston, SC area?

Hi Paul, I can help in that I can tell you MUSC's MS program is a joke and you should avoid it if possible. It is also ridiculously expensive. I am now seeing Dr. Charles Kelly at Tidewater Neurology. I like him, but his staff and office hours leave something to be desired. They have very limited of...
by surfbird
Thu Feb 07, 2013 9:00 am
Forum: Regimens
Topic: What do you do when you have a flare up?
Replies: 4
Views: 2527

Re: What do you do when you have a flare up?

Mixed in water?
by surfbird
Thu Feb 07, 2013 8:14 am
Forum: Regimens
Topic: What do you do when you have a flare up?
Replies: 4
Views: 2527

What do you do when you have a flare up?

I am lucky enough that I have not had any flare-ups since those involved with my initial diagnosis. During the first several months, anytime I noticed something weird, like tingling or numbness, or something off with my vision, I would mention to my doctor and ask if it was a flare up. His response ...
by surfbird
Tue Sep 04, 2012 3:17 am
Forum: General Discussion
Topic: Any doctor recommendations in the Charleston, SC area?
Replies: 4
Views: 1709

Any doctor recommendations in the Charleston, SC area?

I'm new in town and looking for a new neurologist. Anyone have any recommendations? I went to MUSC's "MS Clinic" and the doctor I saw there left A LOT to be desired. He didn't anything about Betaseron, it's side effects, didn't really give a thorough exam....he even broke the skin and made me bleed ...
by surfbird
Fri Jun 22, 2012 8:07 am
Forum: Betaseron
Topic: How do you get Betaseron without insurance?
Replies: 5
Views: 5649

Re: How do you get Betaseron without insurance?

Honestly, I'm not sure because I haven't requested the paperwork. I'll officially be off the insurance that covers the drugs July 1, so I will ask for the paperwork then. I haven't considered LDN before. I am totally symptom free. I've basically just done what the doctor recommended since I got diag...
by surfbird
Wed Jun 06, 2012 5:02 am
Forum: Betaseron
Topic: How do you get Betaseron without insurance?
Replies: 5
Views: 5649

How do you get Betaseron without insurance?

Our household income exceeds the income requirements for the patient assistance programs. Are there any other options besides paying the full amount out of pocket? The meds would still cost more than a 1/3 of what we make!
by surfbird
Tue Oct 11, 2011 1:00 pm
Forum: Betaseron
Topic: Betaseron overseas?
Replies: 4
Views: 4958

Re: Betaseron overseas?

oops - i meant customs at the post office/shipping facilities, not at the airport. from what i understand you can go through customs at the airport with medication, no problem.
by surfbird
Mon Sep 26, 2011 12:00 pm
Forum: Betaseron
Topic: Betaseron overseas?
Replies: 4
Views: 4958

Re: Betaseron overseas?

Thanks for my response! It's been a while since I posted that and since posting, I've figured out the only solution is to carry it with me. I was able to get my insurance company to give me a 6 month override, so I'll be set for a while. I've done a lot of research and everything shows that it is il...
by surfbird
Fri Sep 16, 2011 10:15 am
Forum: General Discussion
Topic: Getting MS Drugs in Europe
Replies: 2
Views: 1705

Re: Getting MS Drugs in Europe

Hi JG, Thanks for the response...after all the research I've done the best thing is for me to just take enough for the whole trip. Even though we'll have to take an extra bag, at least our load will get lighter as we go! The best thing is that I actually CAN go :) Definitely taking advantage of ever...
by surfbird
Mon Sep 12, 2011 10:24 am
Forum: General Discussion
Topic: Anyone here in Europe taking Betaseron / Betaferon?
Replies: 0
Views: 2753

Anyone here in Europe taking Betaseron / Betaferon?

I'd love to find out some info via PM if you're out there!
by surfbird
Mon Sep 12, 2011 10:22 am
Forum: General Discussion
Topic: Getting MS Drugs in Europe
Replies: 2
Views: 1705

Getting MS Drugs in Europe

Hi, I'm going to be traveling for 4-6 months in Europe and am having a really hard time finding a way to get my Betaseron while I'm traveling. Here is what I've done so far: Called Betaplus Program and Bayer directly. Both suggested I have a family member ship the medication Called UPS, USPS and Fed...
by surfbird
Mon Sep 12, 2011 10:05 am
Forum: General Discussion
Topic: Travel plans and an unexpected flare
Replies: 6
Views: 1427

Re: Travel plans and an unexpected flare

I would definitely go! Don't let MS keep you from living your life. Worse case scenario, you have to fly back earlier than you thought, but even if you had a relapse while traveling...maybe you just lay low in the hotel after seeing the doctor. Go, go go! Regarding travel insurance, I'm in the marke...
by surfbird
Fri Jul 29, 2011 11:56 am
Forum: Betaseron
Topic: Betaseron overseas?
Replies: 4
Views: 4958

Betaseron overseas?

Has anyone living in the US ever had to order Betaseron while traveling overseas? If so, how did you get it in another country? Is it cheaper in Europe? I called Betaseron and they said they only thing to do would be to have it shipped to someone in the US and they can personally ship it to wherever...
by surfbird
Fri Jul 29, 2011 11:47 am
Forum: Betaseron
Topic: Necrosis?
Replies: 2
Views: 5473

I haven't had this happen before, but I've read about it online. Were you manually injecting or using the Betaject? I'm sorry this happened to you :(

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