This Is MS Multiple Sclerosis Knowledge & Support Community

You need to get a second opinion and see about a spinal tap.

http://www.msdiscovery.org/news/news_synthesis/322-more-meets-eye I was not sure I could find this link. I am posting it many of you may have seen it. I found it very interesting. Of course I know we/I am not a dr. It does not take a genius to see with the eye why an mri is not the whole story. With...

In order for a neuro to know that 2 or more area's of the brain or spine are affected. He has to see this on a neuro exam. These are things that can't be faked. I am not totally familiar with what they would be there are too many to name.. the babinski sign.. Optic N.. ( a trip to an eye specialist ...

I am currently on Cymbalta, and Tysabri.. the cymbalta was prescribed by my GP. Yes, neuro is an PIA. I have been on LDN in the past and it did not help. I appreciate your advice..
Please remember this too, I would change neuro's if I could. Do not always just go to a Dr who tells you what you want.

No one is trying to sell anything. It sounds crazy and I don't meet the criteria. I am on Tysabri. I don't have anything to loose by getting organic cotton and sticking it in one ear. I am going to do it, I have tried a lot worse, more dangerous.. invasive and expensive. Why don't you all just stick...

I have scheduled my tysabri infusion, I do not have another neurologist to go to. My neuro has refused any medications for pain. My family knows I post my story here, I have let them know my user name in case something happens to me. There is more to my pain than I have posted and some more to my ne...

I am going to make some of that right now.
Thanks for reminding me.

I did mean that sarcastic about the Touch program. I have had nothing done but to tell me to show up for the infusion, NOW. I have heard stories about Dr's being pushy like this. I am just now living it. It is a really bad experience. I can't believe it's because he feels he has my best interest at ...

Thanks I will check it out. All I really wanted to discuss was if he thought it was rational to wait and maybe do a once i .v of solu medrol. Or if he had any plan of how to come off of Tysabri .. if I could not take it or if/when I wanted to come off of it. NOT he is not having any conversation. JU...

I am trying I he won't be an option much longer any way. He has made it clear he will not script any meds other than Tysabri. Can you believe that! Can YOU really. I can't I really can't, I did not have any one with me to prove what he said. He has 3 other neuro's in the same practice ( they have a ...

What may I ask just is the TOUCH program? I have done everything I can do my neuro has all but fired me. He insist I mean insist I take this drug. He won't allow me to have any conversation about this drug. I ask questions. He said " all drugs have side effects" He said I don't need the an...

So tell me why do people say the odd are so slim? like 1 in 1000? Are those good odds to any of you?

It is common in MS for the lesions to come and go. In other diseases that cause lesions they do not come and go.

I find it strange they would do this to a drug with a good safety profile. They should come back and black box Gilenya.

Well at least this was one drug my dr did not want to use! He said it was because of the heart problems it caused though. He said if I had one more really bad flare up he would consider it at half dosing. I think he forgot he said it.