Search found 5 matches

by Bodie
Tue Oct 26, 2010 8:54 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Four more cases of PML and two more deaths reported -Tysabri
Replies: 31
Views: 11157

DX 98 RRMS 48 doses Ty and am JCV +

It is why they are starting a JCV test for all the Ty people here. If you have the virus you are done w/ Ty I believe. The wiki for PML says IT IS caused by the virus. I just don't think they know for sure do they? OK, so there was one person who died in the US. We still have pretty good odds. My n...
by Bodie
Mon Oct 25, 2010 5:01 pm
Forum: General Discussion
Topic: Who to tell...and when? any ideas?
Replies: 19
Views: 5199

Re: perhaps its the exposure to RADAR:-}

no one knew until just before I medically retired in 07. Interestingly, there was another officer who was DX at about the same time who let it be known openly. He later told me that he felt like it ruined the remainder of his career. I do not regret holding it back, I was abe to progress further, d...
by Bodie
Mon Oct 25, 2010 3:43 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: mewly diagnosed, starting tysabri?
Replies: 9
Views: 3602

dx 1998 now 48 doses of tysabri...

When interferon stopped working for me I had two doses before it was taken off the market. Once it came back I jumped at the opportunity to get back on it. I have not had a relapse in almost four years. The other day my neuro called me to tell me that the blood work I had given tested positive for J...
by Bodie
Mon Oct 25, 2010 2:40 pm
Forum: General Discussion
Topic: Who to tell...and when? any ideas?
Replies: 19
Views: 5199

perhaps its the exposure to RADAR:-}

I work in a pretty demanding job Me to, I am a cop. Therefore I want NO ONE to know. Ignorance is bliss, the last thing I need is a sarge freaking out thinking about high liability issues. If and when it becomes apparent (MS) and I can no longer hide it, then I will notify those who need to know. I...
by Bodie
Mon Oct 25, 2010 1:20 pm
Forum: General Discussion
Topic: Tysabri and JCV
Replies: 1
Views: 2221

Tysabri and JCV

OK. Have been on Tysabri for over 4 years, DX in 1998, Avonex before Tysabri. After the first blood draw as a part of the "Stratify" study have been told that I have the antibodies for JCV. My neurologist wants to know what I want to do. Tysabri has been very effective for me. I have had p...

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