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I'm in the states and it seems like the doctors here are saying this means I have to come off Tysabri. I see references to a lot of our British members having a steroid booster with each infusion, is this to manage an allergy to Tysabri, are people able to continue taking it when they have developed...

Hey guys, I had my first Tysabri infusion last Wednesday with no steroid or weird reactions or anything. (it actually went quickly and smoothly, so I was glad about that) and I was feeling great the first few days. My balance had improved by that night by the next morning I wasn't missing words, my ...

REPORT THEM! you can't let these degenerates roam free.

Update:

my insurance company as agreed to pay for my tysabri and I'm having my first transfusion early next week.
I haven't talked to my doctor again.

Since my doctor took me off copaxone to switch over to tysabri, I've started having more balance issues and the sensation that I wasn't bearing my weight while I was walking. My doctor doesn't want to treat it with steriods because he says that you can't do your first dose of Tysabri until a month a...

I didn't know this was news. My Doctor (in New York) ran the JC test on me when we started looking at Tysabri. I'm JC negative but we're not sure if I'm progressing or not yet (turns out a lot of me newer symptoms are probably related to a slipped disc in my neck. which is a total bitch, having MS a...

I'm pretty sure you are not supposed to take a missed dose if you're coming up on your next injection

from link

There are about 46,000 people on Tysabri in the US

and that was 9/16

I'm thinking 33% over 46k doesn't seem horrible. But I won't deny that on some level the PML thing gives me pause.

If I am ever trolling please tell me, I sometimes do it out of habit as the rest of the forums I visit are.... more recreational in nature.

But it looks like the 2% estimate my doctor gave me is pretty close to accurate. Sorry my doctor is looking at switching me too this and the bulk of the what I'm seeing is not providing me with what feels like complete info. Also I would point out the 2-3 year+ rate drop is (IMO) probably due to peo...

Hey Paul, the one thing I would point out is that a lot of the things that are believed about the causes are not mutually exclusive. Also some of the ones that are further from the core set of possibilities revolving around some sort of auto-immune condition triggered by a virus (which is my doctor'...

Honestly, I found my heat intolerance to be much worse after I started treatment, and I attributed this to a combination of my being aware that I am heat intolerant and that my baseline of how I feel has improved enough that I'm noticing the variability in how I'm feeling more from day to day. I don...

How many people have taken it, the number of people affected by PML is not meaningful without the context.

I have a doctors appointment the first to review my spinal (Cervial and Thorassic) MRIs and see if I need to move to a more aggressive control scheme. (best working I could come up with) anyone here have any tips for reading spinal, in what I know how to read on these I can see that I have a new Leg...

For what it's worth this sort of shit happens constantly, I had Blue Cross do the same with my Copaxone, and then reverse after we chased them down and got my doctor on the phone with the person. Are you working with an MS Care center? find out of they, or if the MS Society have any insurance advoca...