This Is MS Multiple Sclerosis Knowledge & Support Community

I've been asked to take part in a genetic study here in Glasgow, , don't know alot details yet, but DNA evidence is needed.. On a personal note I do think genetics have a huge influence on MS, my dad passed away a few yeras ago, he had footdrop, fatigue, UTI all the time, have only been DX a few yea...

Had procedure 12th Nov, have been feeling great since then, ignoring the Flu, colds and tonsilitus. stopped my avonex soon after, researched things and decided thay have done nothing for me and as many agree, are next to useless I'm in the UK so insurance is not an issue, although selling it on the ...

See my last post Mark, not EHC

It was CCSVI-Uk that have initiated this, though not connected with MS, they have assumed this is connected???

Don't know how important this is, but have just had an e-mail detailing that NICE is looking into the issues, they deem what should be done on NHS etc
http://guidance.nice.org.uk/IP/891

will anyone enlighten us to what, if any signicance this is??

Thanks [/url]

Update on symptoms....well lack of them :D Was at friends of ours this afternoon for their eldest boys birthday...house was extremely hot and I would usually be in and out of the door trying to cool down, heat tolence is very low...well...never happened..was able to stand the heat when others were c...

Was scanned back in June, 1st to get done, photo on EHC website. Have been anxiously waiting for the procedure, hey it's taken alot talking and a few brick walls by the sound of it, but it's all been worth it I think!! Azigous vein blocked and 2 blockages on R ight side of head & 1 on left. No s...

That's about right, I was No 14.....Still good today, fatigue has definetly dropped...significantly

Had procedure on Sunday, no great issues, really tired that day & the day after, great staff at the Edinburgh Clinic, so professional and Dr Reid and the Anaesthestist are fantastic. Having minor issues with MS, fatigue, numbnes etc, it's hard to say wether things are differant, but not yawning ...

Think you're being very unfair, they are doing so much work to get this up & running and regularly post on their website & FB page
I was scanned in June , procedure on 12 th Nov..... Huge backlog though Keep The Faith