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I understand what you are saying Bromley. I faced this same quandry for two years before I finally felt that I had enough information to make an informed personal decision. I didn't trust the published CRAB statistics, so I did my own extensive research. In the end, I found that things aren't always...

Ah yes . . . I know the Dr. O'Connor you speak so highly of. Actually, my sister bought me his book "Multiple Sclerosis, The Facts You Need", and I was really angry the first few times I read it. I'm not sure what it was that he said that got my back up, but I was tempted to throw it in th...

Most of my lesions are in my spine too. I've never had a spinal MRI, but my symptoms and the type of attacks I have (Transverse Myelitis) confirms that I have spinal lesions. I have never heard that spinal lesions = PP . . .?? I know that TM attacks are very dangerous, and in one attack we can becom...

Relapsing-remitting multiple sclerosis is a form of MS in which symptoms randomly flare up (relapse) and then improve or fade (remission). This pattern emerges with the onset of the disease and may last for many years. MS can cause problems with muscle control and strength, vision, balance, sensatio...

I didn't start on anything until 14+ years into this disease, and ultimately chose LDN. I don't think that the disability scale is the primary evaluation tool. I think that as long as he is still R/R, or he started out as benign or R/R, (but is now S/P) he can still go on the drugs. Traditionally th...

My first big attack was in 1991.
I was officially diagnosed in Aug, 2003.
I have had 1 brain MRI and it showed 2 lesions. (I think most of my lesions are in my spine).
Since my MRI (2003), I have had no additional disability.
I took nothing for 14 yrs, and LDN since May/05.

Cherie

I have had MS for about 15 yrs. My triggers are stress, over-heating, and any kind of fever from infection (especially bladder).

Cherie

Very interesting!

I located another (much older) article on this too:

http://www.mult-sclerosis.org/news/Mar1 ... Flash.html

Cherie

What happens with me is that my lower arms curl into weird positions (claw hands/twisted wrists), without me even being aware. Before I realized it, my arms would ache severely, so much so that I had to wear braces just to keep my body from crippling up. I had the same pain in my lower legs (althoug...

From The MS Information Sourcebook, produced by the National MS Society. Spasticity refers to feelings of stiffness and a wide range of involuntary muscle spasms-sustained muscle contractions or sudden movements. It is one of the more common symptoms of MS. Spasticity may be as mild as the feeling o...

Hi Karbren, I did about 6 months of research before I started on LDN. I did hear some negatives along the way, including: - side effects during the first one to two weeks; nausea, slight fever, vivid dreams, insomnia, dry mouth - some people quit early on because they did not see immediate improveme...

Hi Phil, Yes the LDN has most definitely had a very positive affect on all of my MS symptoms, but most importantly on spasticity pain, bladder/bowel function, and fatigue/brain-fog. These were my worst symptoms, so I am very pleased (and lucky). My newfound energy means that I am always testing the ...

Hi Phil, I had my first Transverse Myelitis attack (NOT NICE!) in 1991 and recovered fairly well from it. I was dx with "probable MS" at the time, but was advised that there was a chance that the TM attack would be an isolated occurence and it wasn't MS-related at all. (TM attacks are an i...

I'm afraid I don't have any answers either, but perhaps I can add a few pieces to the puzzle . . . LDN apparently remains in your system for only 18 hours, from the time you take it. So, theoretically, by 3:00 pm each day, you are operating without LDN. I find that I start to wear down anywhere from...

I agree with Harry that we do not have enough information to move forward with bringing Tysabri back on the market. My biggest pet peeve is that I don't like what happened with execs selling their shares, just prior to releasing the information about the first death due to PML. If it was an innocent...