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I had right side Bell's Palsy and my stenosis was in my left jugular.

Spinal lesions vs no spinal lesions??

I had no spinal lesions and I got great results....

The question remains - he is going to get treated??

I'm the only one in my family with MS (no thyroid probs for me), but my whole mother's side is absolutely riddled with thyroid problems. Coincidence? I suspect that my mother (low thyroid, no MS) does actually have CCSVI because of her very cold feet....

It felt like someone was pouring warm water down my legs while I was on the table. Oddest sensation ever. The color in my feet, hands and face also improved immediately. For the first few months after the procedure my feet would go cold in patches or alternate between hot and cold. They were warm mo...

I asked Dr Petrov in Bulgaria if I could have red wine (this was three days post op). He looked at me like I was nuts for even asking, and said that I could.

Hi Java, Just my $0.02 here..... If I were you, for now I'd stop at the two procedures. Give the science a year (or three) to develop and then re-evaluate. My advice would be different if you were MUCH older or much more progressive. But for now, I'd concentrate on trying to manage the symptoms and ...

Makes instinctive sense to me. For ten years I was thought to be hypoglycemic. Turns out I just had CCSVI.

I was happy with my treatment in Bulgaria. Tokuda Hospital in Sofia (capital city) has a website with information. I know personally three other people who were very happy with their treatment there. The center in Varna (seaside) was opened more recently. Have not heard any reports on the Varna loca...

My left ear had a whooshing sound it before treatment, but that is gone now. It was never painful, just really odd.

My very non-scientific thinking is maybe only a sub-set of MSers will be helped my CCSVI.

Reason being that we don't all actually have the exact same disease?

The medical benefits through most employers include short term travel insurance. There is no coverage for complications from elective treatments though. Most people are purchasing additional travel insurance unnecessarily.

Just wondering about something. I had great CCSVI treament results. I had clinically definite RRMS, but my spinal tap did not show the bands. For others who have had successful CCSVI treatment (ie. feeling better), did you have the bands in your spinal fluid? I realize that many people who have been...

Had it done May 31st. Still doing much better than I was pre-procedure. I still have some MS limitations, but I still believe treatment gave me my life back. Have not used my cane once since the treatment. Used to crawl up stairs and can now RUN up them! Energy levels dramatically improved. List goe...

Brightspot wrote: In the space allowed for payment, I made a brief note explaining that that I am unable to pay, as any disposable income I have will be used to fight for the rights of Canadians with MS to access vascular medical care in Canada.

That is awesome!