Search found 20 matches

by Lydia_S
Tue May 22, 2012 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2368608

Re: DrSclafani answers some questions

Hello Dr Sclafani,

I would like to ask you if there is any progress made for people with atresia/agenesis of the azygos.

If I understand correctly is Pattern D, based on Dr's Zamboni Protocol, and there is no good prognosis for this kind of situation.

Thank you for your time.
by Lydia_S
Sun Jan 23, 2011 3:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Procedure Completed
Replies: 3
Views: 1646

CCSVI Procedure Completed

Hi everyone, I’m very happy that I can finally write about his CCSVI procedure. He did it 2 days ago. Unfortunately we don’t have yet the details of the procedure so I am writing a new post, instead of writing at “CCSVI tracking project-POST PER P.1 FORMAT ONLY”, with everything that was told to us ...
by Lydia_S
Wed Jan 19, 2011 5:21 am
Forum: Introductions
Topic: I thought it went away forever
Replies: 3
Views: 1890

Hello Kiki!

I hope that there will be a time that you forget ms again. Until then try to be as informed as possible about the treatments.

Welcome :)
by Lydia_S
Wed Jan 19, 2011 5:09 am
Forum: Introductions
Topic: Hello from Europe
Replies: 4
Views: 1937

Hi,

It seems that you had a bad start with ms...Is your doctor confident that it is ms, because if I read correctly your lumbar puncture came up negative...
by Lydia_S
Tue Jan 18, 2011 2:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: So I did the CCSVI
Replies: 6
Views: 2220

Congratulations!!! I hope you see results really soon. It's strange even the people that didn't see immediately something amazing always say that they would do it again!! Do you feel like something has changed?
by Lydia_S
Mon Jan 17, 2011 2:03 am
Forum: General Discussion
Topic: Brain MRI heterogeneity of the cervical cord
Replies: 2
Views: 2189

Thanks for answering, both times :D. I'll check out the link you send me. He will see the neurologist tomorrow. I'll write if there is an interesting answer besides "That indicates that you should change the wonderful REBIF and take the most wonderful TYSABRI"...
by Lydia_S
Thu Jan 13, 2011 2:32 am
Forum: General Discussion
Topic: Brain MRI heterogeneity of the cervical cord
Replies: 2
Views: 2189

Brain MRI heterogeneity of the cervical cord

"In conclusion, and compared with an earlier control you get the impression of small deterioration, due to the presence of diffuse heterogeneity of the cervical cord along it's election without apparent outbreak of pathological lession".... Has anyone heard it before? The doctor that made ...
by Lydia_S
Wed Jan 12, 2011 7:42 am
Forum: Diet
Topic: Coffee good or bad?
Replies: 6
Views: 3547

Coffee made him really tensed. Although he found a brand of coffee that he can enjoy without feeling like there is a war inside him. (That's the expression he used)
by Lydia_S
Wed Jan 12, 2011 7:25 am
Forum: Introductions
Topic: HOWDY ALL,
Replies: 4
Views: 1646

Welcome to both of you!!! If I got it right your husband replied the topic of "Marrying an MS'er". It' always nice to see 2 people that trully love and support each other. :D Welcome!!
by Lydia_S
Fri Jan 07, 2011 2:57 am
Forum: Introductions
Topic: Considering Marrying MS'er
Replies: 9
Views: 3986

I will agree with Stabilo. You should already have known that unfortunately there aren't any guarantees. I know that is terrible to hear and to bear. You should know that you might face problems along the way. I believe it's important you try to be informed as much as you can about this disease sinc...
by Lydia_S
Fri Jan 07, 2011 1:46 am
Forum: Introductions
Topic: Hey you
Replies: 3
Views: 1555

Isn't it funny?...in a way at least :?
Thank you for your good words. It's true that we are pursuing CCSVI, I know that I shouldn't but I've really put my hopes on that procedure. I believe that CCSVI is having a loud present and will have a louder future.
by Lydia_S
Tue Dec 28, 2010 1:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
Replies: 1011
Views: 371360

He hasn't done the procedure yet, just the ultrasound. The doctor we addressed for the ultrasound is the most experienced at this time. In Greece, such and in other countries I suppose, there aren't many doctors from which you can choose. We've heard that there is 1 good doctor for the ultrasound an...
by Lydia_S
Thu Dec 23, 2010 8:58 am
Forum: General Discussion
Topic: HELP PLEASE...I'M NEW HERE.
Replies: 12
Views: 2581

You and all of us deserve proper treatment when needed. It just makes me mad!! Hang in there...
by Lydia_S
Thu Dec 23, 2010 2:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: i'd like to hear from someone who had it year ago or so
Replies: 11
Views: 3109

Here's CUREious's thread, with updates along the way. He was treated over a year ago and is doing very well: http://www.thisisms.com/ftopic-7822-0.html But eric is right, there are no guarantees. It's riskier when done out-of-pocket if a repeat procedure is out of reach financially. It's riskier wh...
by Lydia_S
Thu Dec 23, 2010 2:26 am
Forum: General Discussion
Topic: Spasticity and Smoking
Replies: 5
Views: 3210

Yes!!! We saw great difference the first time he quite...he told me that he could wake up much more easily and that he had greater strength, I could see that from the way he walked. But our smoky friend isn;t easy to drop so he started again...Now he has quite for about three months and smokes a cig...

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